This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (456) Secondary Use of Clinical Data for Research and Surveillance (317) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (782) Validity, Reliability, and Bias (89)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/42131, first published .
Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review

Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review

Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review

Authors of this article:

Yvonne de Man1 Author Orcid Image ;   Yvonne Wieland-Jorna1 Author Orcid Image ;   Bart Torensma2 Author Orcid Image ;   Koos de Wit3 Author Orcid Image ;   Anneke L Francke1, 4 Author Orcid Image ;   Mariska G Oosterveld-Vlug1 Author Orcid Image ;   Robert A Verheij1, 5 Author Orcid Image
Article Authors Cited by (5) Tweetations (8) Metrics

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  3. Joyce M, Segal M, Shukla A. Ethics and Terminology for Opting In and Out. JAMA Internal Medicine 2024;184(4):451 View
  4. Lutomski J, Manders P, Chandna A. From opt-out to opt-in consent for secondary use of medical data and residual biomaterial: An evaluation using the RE-AIM framework. PLOS ONE 2024;19(3):e0299430 View
  5. de Frutos Lucas J, Haugo H. Moving forward with the European health data space: the need to restore trust in European health systems. The Lancet Regional Health - Europe 2024;40:100906 View