This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (480) Secondary Use of Clinical Data for Research and Surveillance (368) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (833) Validity, Reliability, and Bias (93)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/42131, first published .
Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review

Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review

Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review

Authors of this article:

Yvonne de Man1 Author Orcid Image ;   Yvonne Wieland-Jorna1 Author Orcid Image ;   Bart Torensma2 Author Orcid Image ;   Koos de Wit3 Author Orcid Image ;   Anneke L Francke1, 4 Author Orcid Image ;   Mariska G Oosterveld-Vlug1 Author Orcid Image ;   Robert A Verheij1, 5 Author Orcid Image
Article Authors Cited by (9) Tweetations (8) Metrics

Yvonne de Man   1 * , PhD ;   Yvonne Wieland-Jorna   1 * , MSc ;   Bart Torensma   2 , PhD ;   Koos de Wit   3 , MD ;   Anneke L Francke   1, 4 , Prof Dr ;   Mariska G Oosterveld-Vlug   1 , PhD ;   Robert A Verheij   1, 5 , Prof Dr

1 Nivel, Netherlands Institute for Health Services Research, Utrecht, Netherlands

2 Leiden University Medical Centre, Leiden, Netherlands

3 Department of Gastroenterology and Hepatology, Amsterdam UMC, University of Amsterdam, Amsterdam Gastroenterology Endocrinology Metabolism, Amsterdam, Netherlands

4 Department of Public and Occupational Health, Location Vrije Universiteit Amsterdam, Amsterdam UMC, Amsterdam, Netherlands

5 Tranzo, School of Social Sciences and Behavioural Research, Tilburg University, Tilburg, Netherlands

*these authors contributed equally

Corresponding Author:

  • Yvonne Wieland-Jorna, MSc
  • Nivel, Netherlands Institute for Health Services Research
  • Otterstraat 118
  • Utrecht, 3513 CR
  • Netherlands
  • Phone: 31 621951136
  • Email: y.jorna@nivel.nl