Published on in Vol 21, No 5 (2019): May

Preprints (earlier versions) of this paper are available at, first published .
Participatory Disease Surveillance Systems: Ethical Framework

Participatory Disease Surveillance Systems: Ethical Framework

Participatory Disease Surveillance Systems: Ethical Framework


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  5. Woldaregay A, Launonen I, Årsand E, Albers D, Holubová A, Hartvigsen G. Toward Detecting Infection Incidence in People With Type 1 Diabetes Using Self-Recorded Data (Part 1): A Novel Framework for a Personalized Digital Infectious Disease Detection System. Journal of Medical Internet Research 2020;22(8):e18911 View
  6. Garg S, Bhatnagar N, Gangadharan N. A Case for Participatory Disease Surveillance of the COVID-19 Pandemic in India. JMIR Public Health and Surveillance 2020;6(2):e18795 View
  7. Carrillo D, Duc Nguyen L, Nardelli P, Pournaras E, Morita P, Rodríguez D, Dzaferagic M, Siljak H, Jung A, Hébert-Dufresne L, Macaluso I, Ullah M, Fraidenraich G, Popovski P. Containing Future Epidemics With Trustworthy Federated Systems for Ubiquitous Warning and Response. Frontiers in Communications and Networks 2021;2 View
  8. Kostkova P, Saigí-Rubió F, Eguia H, Borbolla D, Verschuuren M, Hamilton C, Azzopardi-Muscat N, Novillo-Ortiz D. Data and Digital Solutions to Support Surveillance Strategies in the Context of the COVID-19 Pandemic. Frontiers in Digital Health 2021;3 View
  9. Pandit J, Radin J, Quer G, Topol E. Smartphone apps in the COVID-19 pandemic. Nature Biotechnology 2022;40(7):1013 View
  10. Geneviève L, Martani A, Wangmo T, Elger B. Precision Public Health and Structural Racism in the United States: Promoting Health Equity in the COVID-19 Pandemic Response. JMIR Public Health and Surveillance 2022;8(3):e33277 View
  11. Althobaiti K. Surveillance in Next-Generation Personalized Healthcare: Science and Ethics of Data Analytics in Healthcare. The New Bioethics 2021;27(4):295 View
  12. Kerr J, Naegelin M, Benk M, v Wangenheim F, Meins E, Viganò E, Ferrario A. Investigating Employees’ Concerns and Wishes Regarding Digital Stress Management Interventions With Value Sensitive Design: Mixed Methods Study. Journal of Medical Internet Research 2023;25:e44131 View
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  14. Viberg Johansson J, Bentzen H, Mascalzoni D. What ethical approaches are used by scientists when sharing health data? An interview study. BMC Medical Ethics 2022;23(1) View
  15. Martani A, Geneviève L, Wangmo T, Maurer J, Crameri K, Erard F, Spoendlin J, Pauli-Magnus C, Pittet V, Sengstag T, Soldini E, Hirschel B, Borisch B, Kruschel Weber C, Zwahlen M, Elger B. Sensing the (digital) pulse. Future steps for improving the secondary use of data for research in Switzerland. DIGITAL HEALTH 2023;9:205520762311698 View
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Books/Policy Documents

  1. Elger B. The Bridge Between Bioethics and Medical Practice. View