This paper is in the following e-collection/theme issue:

Viewpoints and Perspectives (485) Ethics, Privacy, and Legal Issues (458) Innovative Methods in Public Health and Surveillance (307) Participatory Epidemiology and Surveillance (107)

Published on in Vol 21, No 5 (2019): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/12273, first published .
Participatory Disease Surveillance Systems: Ethical Framework

Participatory Disease Surveillance Systems: Ethical Framework

Participatory Disease Surveillance Systems: Ethical Framework

Authors of this article:

Lester Darryl Geneviève1 Author Orcid Image ;   Andrea Martani1 Author Orcid Image ;   Tenzin Wangmo1 Author Orcid Image ;   Daniela Paolotti2 Author Orcid Image ;   Carl Koppeschaar3 Author Orcid Image ;   Charlotte Kjelsø4 Author Orcid Image ;   Caroline Guerrisi5 Author Orcid Image ;   Marco Hirsch6 Author Orcid Image ;   Olivia Woolley-Meza7, 8 Author Orcid Image ;   Paul Lukowicz6 Author Orcid Image ;   Antoine Flahault9 Author Orcid Image ;   Bernice Simone Elger1, 10 Author Orcid Image
Article Authors Cited by (21) Tweetations (14) Metrics

Journals

  1. Aiello A, Renson A, Zivich P. Social Media– and Internet-Based Disease Surveillance for Public Health. Annual Review of Public Health 2020;41(1):101 View
  2. Leal-Neto O, Santos F, Lee J, Albuquerque J, Souza W. Prioritizing COVID-19 tests based on participatory surveillance and spatial scanning. International Journal of Medical Informatics 2020;143:104263 View
  3. Petersen C, Subbian V. Special Section on Ethics in Health Informatics. Yearbook of Medical Informatics 2020;29(01):077 View
  4. Zeeb H, Pigeot I, Schüz B. Digital Public Health – ein Überblick. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2020;63(2):137 View
  5. Woldaregay A, Launonen I, Årsand E, Albers D, Holubová A, Hartvigsen G. Toward Detecting Infection Incidence in People With Type 1 Diabetes Using Self-Recorded Data (Part 1): A Novel Framework for a Personalized Digital Infectious Disease Detection System. Journal of Medical Internet Research 2020;22(8):e18911 View
  6. Garg S, Bhatnagar N, Gangadharan N. A Case for Participatory Disease Surveillance of the COVID-19 Pandemic in India. JMIR Public Health and Surveillance 2020;6(2):e18795 View
  7. Carrillo D, Duc Nguyen L, Nardelli P, Pournaras E, Morita P, Rodríguez D, Dzaferagic M, Siljak H, Jung A, Hébert-Dufresne L, Macaluso I, Ullah M, Fraidenraich G, Popovski P. Containing Future Epidemics With Trustworthy Federated Systems for Ubiquitous Warning and Response. Frontiers in Communications and Networks 2021;2 View
  8. Kostkova P, Saigí-Rubió F, Eguia H, Borbolla D, Verschuuren M, Hamilton C, Azzopardi-Muscat N, Novillo-Ortiz D. Data and Digital Solutions to Support Surveillance Strategies in the Context of the COVID-19 Pandemic. Frontiers in Digital Health 2021;3 View
  9. Pandit J, Radin J, Quer G, Topol E. Smartphone apps in the COVID-19 pandemic. Nature Biotechnology 2022;40(7):1013 View
  10. Geneviève L, Martani A, Wangmo T, Elger B. Precision Public Health and Structural Racism in the United States: Promoting Health Equity in the COVID-19 Pandemic Response. JMIR Public Health and Surveillance 2022;8(3):e33277 View
  11. Althobaiti K. Surveillance in Next-Generation Personalized Healthcare: Science and Ethics of Data Analytics in Healthcare. The New Bioethics 2021;27(4):295 View
  12. Kerr J, Naegelin M, Benk M, v Wangenheim F, Meins E, Viganò E, Ferrario A. Investigating Employees’ Concerns and Wishes Regarding Digital Stress Management Interventions With Value Sensitive Design: Mixed Methods Study. Journal of Medical Internet Research 2023;25:e44131 View
  13. Sood S, Rawat K, Kumar D. Analytical mapping of information and communication technology in emerging infectious diseases using CiteSpace. Telematics and Informatics 2022;69:101796 View
  14. Viberg Johansson J, Bentzen H, Mascalzoni D. What ethical approaches are used by scientists when sharing health data? An interview study. BMC Medical Ethics 2022;23(1) View
  15. Martani A, Geneviève L, Wangmo T, Maurer J, Crameri K, Erard F, Spoendlin J, Pauli-Magnus C, Pittet V, Sengstag T, Soldini E, Hirschel B, Borisch B, Kruschel Weber C, Zwahlen M, Elger B. Sensing the (digital) pulse. Future steps for improving the secondary use of data for research in Switzerland. DIGITAL HEALTH 2023;9:205520762311698 View
  16. Pagani V, García V, Claudot F. Valeurs et principes éthiques en santé publique : une revue systématique. Santé Publique 2022;Vol. 34(2):191 View
  17. Bolt K, Gil-González D, Oliver N. Unconventional data, unprecedented insights: leveraging non-traditional data during a pandemic. Frontiers in Public Health 2024;12 View
  18. Bouyer F, Thiongane O, Hobeika A, Arsevska E, Binot A, Corrèges D, Dub T, Mäkelä H, van Kleef E, Jori F, Lancelot R, Mercier A, Fagandini F, Valentin S, Van Bortel W, Ruault C. Epidemic intelligence in Europe: a user needs perspective to foster innovation in digital health surveillance. BMC Public Health 2024;24(1) View
  19. Yalçınkaya Ü, Sütcü C, Eken İ. CONCERNS OF THE PEOPLE IN TURKEY REGARDING THE NATIONAL CONTACT TRACING MOBILE APPLICATION OF THE COVID-19 PERIOD. Turkish Online Journal of Design Art and Communication 2024;14(3):735 View

Books/Policy Documents

  1. Elger B. The Bridge Between Bioethics and Medical Practice. View