Published on in Vol 21, No 5 (2019): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/12273, first published .
Participatory Disease Surveillance Systems: Ethical Framework

Participatory Disease Surveillance Systems: Ethical Framework

Participatory Disease Surveillance Systems: Ethical Framework

Lester Darryl Geneviève   1 , MBChB, MSc ;   Andrea Martani   1 , ML ;   Tenzin Wangmo   1 , PhD ;   Daniela Paolotti   2 , PhD ;   Carl Koppeschaar   3 , MSc ;   Charlotte Kjelsø   4 , MEd ;   Caroline Guerrisi   5 , MPH ;   Marco Hirsch   6 , MSc ;   Olivia Woolley-Meza   7, 8 , PhD ;   Paul Lukowicz   6 , PhD ;   Antoine Flahault   9 , MD, PhD ;   Bernice Simone Elger   1, 10 , MD

1 Institute for Biomedical Ethics, University of Basel, Basel, Switzerland

2 ISI Foundation, Torino, Italy

3 De Grote Griepmeting, Science in Action BV, Amsterdam, Netherlands

4 Statens Serum Institut, København, Denmark

5 Sorbonne Université, Institut National de la Santé et de la Recherche Médicale (INSERM), Institut Pierre Louis d’Épidémiologie et de Santé Publique, IPLESP, Paris, France

6 German Research Center for Artificial Intelligence (DFKI), Kaiserslautern, Germany

7 ETH Zurich, Swiss Federal Institute of Technology, Zurich, Switzerland

8 Novartis Pharma AG, Basel, Switzerland

9 Institute of Global Health, Faculty of Medicine, University of Geneva, Geneva, Switzerland

10 University Center of Legal Medicine, University of Geneva, Geneva, Switzerland

Corresponding Author:

  • Lester Darryl Geneviève, MBChB, MSc
  • Institute for Biomedical Ethics
  • University of Basel
  • Bernoullistrasse 28
  • Basel, 4056
  • Switzerland
  • Phone: 41 61-207-17-82
  • Fax: 41 61-267-17-80
  • Email: lester.genevieve@unibas.ch