This paper is in the following e-collection/theme issue:

Viewpoints and Perspectives (575) Ethics, Privacy, and Legal Issues (553) Public (e)Health, Digital Epidemiology and Public Health Informatics (871) Big Data (284) Secondary Use of Clinical Data for Research and Surveillance (419) Data Science (309) Standards and Interoperability (102) Vulnerable Populations in Health Research (137) Big Data for Health Promotion and Health Equity (33)

Published on in Vol 27 (2025)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/70983, first published .
Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Authors of this article:

Cason D Schmit1, 2, 3, 4 Author Orcid Image ;   Meghan Curry O’Connell5 Author Orcid Image ;   Sarah Shewbrooks5 Author Orcid Image ;   Charles Abourezk5, 6, 7 Author Orcid Image ;   Fallon J Cochlin1, 2, 3 Author Orcid Image ;   Megan Doerr8 Author Orcid Image ;   Hye-Chung Kum1, 2, 4 Author Orcid Image
Article Authors Cited by Tweetations Metrics

Cason D Schmit   1, 2, 3, 4 , JD ;   Meghan Curry O’Connell   5 , MD, MPH ;   Sarah Shewbrooks   5 , MPH ;   Charles Abourezk   5, 6, 7 , JD ;   Fallon J Cochlin   1, 2, 3 , JD ;   Megan Doerr   8 , MS, LGC ;   Hye-Chung Kum   1, 2, 4 , PhD, MSW

1 Department of Health Policy and Management, School of Public Health, Texas A&M University, College Station, TX, United States

2 Population Informatics Lab, School of Public Health, Texas A&M University, College Station, TX, United States

3 Program in Health Law and Policy, School of Public Health, Texas A&M University, College Station, TX, United States

4 Institute for Healthcare Access, Texas A&M University, Ft. Worth, TX, United States

5 Great Plains Tribal Leaders Health Board, Rapid City, SD, United States

6 Rosebud Sioux Tribe Supreme Court, Rosebud, SD, United States

7 Lower Brule Sioux Tribe, Lower Brule, SD, United States

8 Sage Bionetworks, Seattle, WA, United States

Corresponding Author:

  • Cason D Schmit, JD
  • Department of Health Policy and Management
  • School of Public Health
  • Texas A&M University
  • 212 Adriance Lab Rd
  • College Station, TX 77843
  • United States
  • Phone: 1 9794360277
  • Email: schmit@tamu.edu