IT-Related Barriers and Facilitators to the Implementation of a New European eHealth Solution, the Digital Survivorship Passport (SurPass Version 2.0): Semistructured Digital Survey

Ismay A E de Beijer   ¹ , MSc ;   Selina R van den Oever   ¹ , MSc ;   Eliana Charalambous   ^{2, 3} , MD ;   Giorgio Cangioli   ² , PhD ;   Julia Balaguer   ⁴ , MD, PhD ;   Edit Bardi   ^{5, 6} , MD, PhD ;   Marie Alfes   ⁷ , PhD ;   Adela Cañete Nieto   ⁴ , MD, PhD ;   Marisa Correcher   ⁸ , MSc ;   Tiago Pinto da Costa   ⁷ , MSc ;   Alexander Degelsegger-Márquez   ⁹ , PhD ;   Vanessa Düster   ¹⁰ , MSc ;   Anna-Liesa Filbert   ¹¹ , MSc ;   Desiree Grabow   ¹¹ , PhD ;   Gerald Gredinger   ⁹ , PhD ;   Hannah Gsell   ⁷ , MSc ;   Riccardo Haupt   ¹² , MD ;   Maria van Helvoirt   ¹³ , MD ;   Ruth Ladenstein   ^{5, 10, 14} , MBA, MD, PhD ;   Thorsten Langer   ¹⁵ , MD, PhD ;   Anja Laschkolnig   ⁹ , MPH ;   Monica Muraca   ¹² , MD ;   Saskia M F Pluijm   ¹ , PhD ;   Jelena Rascon   ^{16, 17} , MD, PhD ;   Günter Schreier   ¹⁸ , PhD ;   Zuzana Tomášikova   ⁷ , MSc ;   Florian Trauner   ⁹ , MSc, MD ;   Justas Trinkūnas   ¹⁶ , PhD ;   Kathrin Trunner   ⁹ , DI, MSc ;   Anne Uyttebroeck   ¹³ , MD, PhD ;   Leontien C M Kremer   ^{1, 19, 20} , MD, PhD ;   Helena J H van der Pal   ^{1 *} , MD, PhD ;   Catherine Chronaki   ^{2 *} , MSc ;   PanCareSurPass Consortium   ²¹

¹ Princess Máxima Center for Pediatric Oncology, Utrecht, Netherlands

² Health Level Seven Europe, Brussels, Belgium

³ Venizeleio General Hospital of Heraklion, Heraklion, Greece

⁴ Hospital Universitario y Politécnico La Fe, Valencia, Spain

⁵ St Anna Children’s Hospital, Vienna, Austria

⁶ Department of Paediatrics and Adolescent Medicine, Kepler University Hospital, Johannes Kepler University Linz, Linz, Austria

⁷ Childhood Cancer International Europe, Vienna, Austria

⁸ Instituto Investigación Sanitaria La Fe, Valencia, Spain

⁹ Gesundheit Österreich GmbH, Vienna, Austria

¹⁰ Department of Studies and Statistics for Integrated Research and Projects, St Anna Children’s Cancer Research Institute, Vienna, Austria

¹¹ Division of Childhood Cancer Epidemiology, German Childhood Cancer Registry, Institute of Medical Biostatistics, Epidemiology and Informatics, University Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany

¹² Diagnosi, Osservazione, Prevenzione dopo trattamento Oncologico Clinic, Department of Hematology/Oncology, Istituto di Ricovero e Cura a Carattere Scientifico Istituto Giannina Gaslini, Genova, Italy

¹³ University Hospitals Leuven, Katholieke Universiteit Leuven, Leuven, Belgium

¹⁴ Department of Paediatrics, Medical University of Vienna, Vienna, Austria

¹⁵ Universitätsklinikum Schleswig-Holstein, Campus Lübeck, Lübeck, Germany

¹⁶ Vilnius University Hospital Santaros Klinikos, Vilnius, Lithuania

¹⁷ Clinics for Children’s Diseases, Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, Vilnius, Lithuania

¹⁸ Center for Health and Bioresources, Austrian Institute of Technology, Graz, Austria

¹⁹ Wilhelmina Children’s Hospital, University Medical Center Utrecht, Utrecht, Netherlands

²⁰ Emma Children’s Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, Netherlands

²¹ See Acknowledgments, Utrecht, Netherlands

*these authors contributed equally