This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (479) E-Health Policy and Health Systems Innovation (230) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (573)

Published on in Vol 24, No 8 (2022): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/37665, first published .
Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer

Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer

Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer

Authors of this article:

Anja Köngeter1 Author Orcid Image ;   Christoph Schickhardt2 Author Orcid Image ;   Martin Jungkunz2 Author Orcid Image ;   Susanne Bergbold3 Author Orcid Image ;   Katja Mehlis1 Author Orcid Image ;   Eva C Winkler1 Author Orcid Image
Article Authors Cited by (17) Tweetations (19) Metrics

Journals

  1. Schickhardt C, Winkler E, Sax U, Buchner B. Dateninfrastrukturen für die Gesundheitsforschung. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2023;66(2):160 View
  2. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002 View
  3. Al-Shami K, Ahmed W, Alzoubi K. Attitudes Toward Providing Open Access for Use of Biospecimens and Health Records: A Cross-Sectional Study from Jordan. Patient Preference and Adherence 2023;Volume 17:895 View
  4. Winkler E, Jungkunz M, Thorogood A, Lotz V, Schickhardt C. Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research. Journal of Medical Ethics 2023:jme-2022-108781 View
  5. Stenzinger A, Moltzen E, Winkler E, Molnar‐Gabor F, Malek N, Costescu A, Jensen B, Nowak F, Pinto C, Ottersen O, Schirmacher P, Nordborg J, Seufferlein T, Fröhling S, Edsjö A, Garcia‐Foncillas J, Normanno N, Lundgren B, Friedman M, Bolanos N, Tatton‐Brown K, Hill S, Rosenquist R. Implementation of precision medicine in healthcare—A European perspective. Journal of Internal Medicine 2023;294(4):437 View
  6. Schickhardt C, Mehlis K, Winkler E, Jungkunz M. Zur Ethik der Forschungsnutzung von Patientendaten. Die Onkologie 2024;30(1):25 View
  7. Wiertz S. How to Design Consent for Health Data Research? An Analysis of Arguments of Solidarity. Public Health Ethics 2023;16(3):261 View
  8. Hummel P, Braun M, Bischoff S, Samhammer D, Seitz K, Fasching P, Dabrock P. Perspectives of patients and clinicians on big data and AI in health: a comparative empirical investigation. AI & SOCIETY 2024 View
  9. Richter G, Trigui N, Caliebe A, Krawczak M. Attitude towards consent-free research use of personal medical data in the general German population. Heliyon 2024;10(6):e27933 View
  10. Zenker S, Strech D, Jahns R, Müller G, Prasser F, Schickhardt C, Schmidt G, Semler S, Winkler E, Drepper J. National standardisierter Broad Consent in der Praxis: erste Erfahrungen, aktuelle Entwicklungen und kritische Betrachtungen. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2024;67(6):637 View
  11. Richter G, Krawczak M. How to Elucidate Consent-Free Research Use of Medical Data: A Case for “Health Data Literacy”. JMIR Medical Informatics 2024;12:e51350 View
  12. Wiertz S, Boldt J. Ethical, Legal, and Practical Concerns Surrounding the Implemention of New Forms of Consent for Health Data Research: Qualitative Interview Study. Journal of Medical Internet Research 2024;26:e52180 View
  13. Bruns A, Winkler E. Dynamic consent: a royal road to research consent?. Journal of Medical Ethics 2024:jme-2024-110153 View
  14. Moser K, Bauch F, Richter M, Brütting C, Bauer A, Vinker S, Deutsch T, Frese T. Bias in obtaining broad consent in a German general practice? – Preliminary results from a cross-sectional study. Journal of Family Medicine and Primary Care 2024;13(9):4056 View
  15. Jungkunz M, Winkler E, Schickhardt C. Haben Krankenhäuser die Pflicht, die sekundäre Forschungsnutzung von Behandlungsdaten zu unterstützen?. Ethik in der Medizin 2024 View
  16. Song S, Ashton M, Yoo R, Lkhagvajav Z, Wright R, Mathews D, Taylor C. Participant Contributions to Person-generated Health Data Research Using Mobile Devices: A Scoping Review (Preprint). Journal of Medical Internet Research 2023 View
  17. Hermansen A, Pollard S, McGrail K, Bansback N, Regier D. Heuristics Identified in Cancer Patients’ Health Data Sharing Preferences: A Focus Group Study (Preprint). Journal of Medical Internet Research 2024 View