Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer
Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer
Anja Köngeter
1
, MA ;
Christoph Schickhardt
2
, DPhil ;
Martin Jungkunz
2
, DPhil ;
Susanne Bergbold
3
, Dipl ;
Katja Mehlis
1
* , DPhil ;
Eva C Winkler
1
* , DPhil, Prof Dr
1
Section for Translational Medical Ethics, Department of Medical Oncology, National Center for Tumor Diseases, Heidelberg University Hospital, Heidelberg, Germany
2
Section for Translational Medical Ethics, National Center for Tumor Diseases, German Cancer Research Center, Heidelberg, Germany
3
Epidemiological Cancer Registry Baden-Württemberg, German Cancer Research Center, Heidelberg, Germany
*these authors contributed equally
Corresponding Author:
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Eva C Winkler, DPhil, Prof Dr
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Section for Translational Medical Ethics
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Department of Medical Oncology
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National Center for Tumor Diseases, Heidelberg University Hospital
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Im Neuenheimer Feld 280
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Heidelberg, 69120
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Germany
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Phone:
49 6221 5636049
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Email: eva.winkler@nct-heidelberg.de