This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (477) Participatory Medicine & E-Patients (770) Electronic Health Records (1050) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (570) Secondary Use of Clinical Data for Research and Surveillance (362) Safety and Error Prevention in Health (202)

Published on in Vol 23, No 2 (2021): February

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/22744, first published .
Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study

Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study

Opening a “Can of Worms” to Explore the Public's Hopes and Fears About Health Care Data Sharing: Qualitative Study

Authors of this article:

Olivia Lounsbury1, 2 Author Orcid Image ;   Lily Roberts1 Author Orcid Image ;   Jonathan R Goodman1 Author Orcid Image ;   Philippa Batey3 Author Orcid Image ;   Lenny Naar3 Author Orcid Image ;   Kelsey M Flott1 Author Orcid Image ;   Anna Lawrence-Jones1 Author Orcid Image ;   Saira Ghafur4 Author Orcid Image ;   Ara Darzi1 Author Orcid Image ;   Ana Luisa Neves1, 5 Author Orcid Image
Article Authors Cited by (16) Tweetations (4) Metrics

Olivia Lounsbury   1, 2 * , BS ;   Lily Roberts   1 * , BSc ;   Jonathan R Goodman   1 , MA, MPhil ;   Philippa Batey   3 , MRes ;   Lenny Naar   3 , BFA ;   Kelsey M Flott   1 , BA, MSc, PhD ;   Anna Lawrence-Jones   1 , BSc (Hons) ;   Saira Ghafur   4 , MBChB, MRCP (Resp), MSc ;   Ara Darzi   1 , PC, KBE, FRS, FMedSci, HonFREng ;   Ana Luisa Neves   1, 5 , MSc, PhD, MD

1 Patient Safety Translational Research Centre, Institute of Global Health Innovation, London, United Kingdom

2 Patient Safety Movement Foundation, Irvine, CA, United States

3 The Helix Centre, Institute of Global Health Innovation, London, United Kingdom

4 Centre for Health Policy, Institute of Global Health Innovation, Imperial College London, London, United Kingdom

5 Center for Health Technology and Services Research / Department of Community Medicine, Health Information and Decision, Faculty of Medicine, University of Porto, Porto, Portugal

*these authors contributed equally

Corresponding Author:

  • Ana Luisa Neves, MSc, PhD, MD
  • Patient Safety Translational Research Centre
  • Institute of Global Health Innovation
  • Imperial College London, St Mary’s Campus
  • Queen Elizabeth Queen Mother Wing
  • London, W2 1NY
  • United Kingdom
  • Phone: 44 (0)20 7589 5111
  • Email: ana.luisa.neves14@imperial.ac.uk