This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (457) E-Health Policy and Health Systems Innovation (207) Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (788) Secondary Use of Clinical Data for Research and Surveillance (320) Quality/Credibility of eHealth Information and Trust Issues (489) Policy (51) Adoption and Change Management of eHealth Systems (674)

Published on in Vol 23, No 10 (2021): October

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/24200, first published .
Sharing Government Health Data With the Private Sector: Community Attitudes Survey

Sharing Government Health Data With the Private Sector: Community Attitudes Survey

Sharing Government Health Data With the Private Sector: Community Attitudes Survey

Authors of this article:

Annette Braunack-Mayer1 Author Orcid Image ;   Belinda Fabrianesi1 Author Orcid Image ;   Jackie Street1 Author Orcid Image ;   Pauline O'Shaughnessy2 Author Orcid Image ;   Stacy M Carter1 Author Orcid Image ;   Lina Engelen3 Author Orcid Image ;   Lucy Carolan1 Author Orcid Image ;   Rebecca Bosward1 Author Orcid Image ;   David Roder4 Author Orcid Image ;   Kylie Sproston5 Author Orcid Image
Article Authors Cited by (16) Tweetations (9) Metrics

Journals

  1. Stephenson N, Smith C, Vajdic C. Health and public sector data sharing requires social licence negotiations. Australian and New Zealand Journal of Public Health 2022;46(4):426 View
  2. Deruelle T, Kalouguina V, Trein P, Wagner J. Designing privacy in personalized health: An empirical analysis. Big Data & Society 2023;10(1):205395172311586 View
  3. Brall C, Berlin C, Zwahlen M, Vayena E, Egger M, Ormond K. Public preferences towards data management and governance in Swiss biobanks: results from a nationwide survey. BMJ Open 2022;12(8):e060844 View
  4. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002 View
  5. Köngeter A, Schickhardt C, Jungkunz M, Bergbold S, Mehlis K, Winkler E. Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer. Journal of Medical Internet Research 2022;24(8):e37665 View
  6. Smith C, Vajdic C, Stephenson N. Centring equity in data‐driven public health: a call for guiding principles to support the equitable design and outcomes of Australia's data integration systems. Medical Journal of Australia 2023;218(8):341 View
  7. Scheibner J, Kroesche N, Wakefield L, Cockburn T, McPhail S, Richards B. Does Legislation Impede Data Sharing in Australia Across Institutions and Jurisdictions? A Scoping Review. Journal of Medical Systems 2023;47(1) View
  8. Benevento M, Mandarelli G, Carravetta F, Ferorelli D, Caterino C, Nicolì S, Massari A, Solarino B. Measuring the willingness to share personal health information: a systematic review. Frontiers in Public Health 2023;11 View
  9. Winkler E, Jungkunz M, Thorogood A, Lotz V, Schickhardt C. Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research. Journal of Medical Ethics 2023:jme-2022-108781 View
  10. Smith C, Vajdic C, Stephenson N. Techno-legal expertise and the datafication of the state: Big data, accountability and the value of a social license with institutional roots. Futures 2023;154:103263 View
  11. Pronicki Ł, Czech M, Gujski M, Boguszewska N. Awareness, Attitudes and Willingness to Donate Biological Samples to a Biobank: A Survey of a Representative Sample of Polish Citizens. Healthcare 2023;11(20):2714 View
  12. Epizitone A, Moyane S, Agbehadji I. A Data-Driven Paradigm for a Resilient and Sustainable Integrated Health Information Systems for Health Care Applications. Journal of Multidisciplinary Healthcare 2023;Volume 16:4015 View
  13. Baines R, Stevens S, Austin D, Anil K, Bradwell H, Cooper L, Maramba I, Chatterjee A, Leigh S. Patient and Public willingness to share personal health data for third-party or secondary uses: A systematic review (Preprint). Journal of Medical Internet Research 2023 View
  14. Braunack‐Mayer A, Adams C, Nettel‐Aguirre A, Fabrianesi B, Carolan L, Beilby J, Flack F. Community views on the secondary use of general practice data: Findings from a mixed‐methods study. Health Expectations 2024;27(1) View
  15. Hamilton D, Everitt S, Page M, Fidler F. What do Australians affected by cancer think about oncology researchers sharing research data? A cross‐sectional survey. Asia-Pacific Journal of Clinical Oncology 2024 View
  16. Soni H, Morrison H, Vasilev D, Ong T, Wilczewski H, Allen C, Hughes-Halbert C, Ritchie J, Narma A, Schiffman J, Ivanova J, Bunnell B, Welch B. User experience of a family health history chatbot: A quantitative analysis. Health Informatics Journal 2024;30(2) View