Published on in Vol 23, No 10 (2021): October

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/24200, first published .
Sharing Government Health Data With the Private Sector: Community Attitudes Survey

Sharing Government Health Data With the Private Sector: Community Attitudes Survey

Sharing Government Health Data With the Private Sector: Community Attitudes Survey

Journals

  1. Stephenson N, Smith C, Vajdic C. Health and public sector data sharing requires social licence negotiations. Australian and New Zealand Journal of Public Health 2022;46(4):426 View
  2. Deruelle T, Kalouguina V, Trein P, Wagner J. Designing privacy in personalized health: An empirical analysis. Big Data & Society 2023;10(1):205395172311586 View
  3. Brall C, Berlin C, Zwahlen M, Vayena E, Egger M, Ormond K. Public preferences towards data management and governance in Swiss biobanks: results from a nationwide survey. BMJ Open 2022;12(8):e060844 View
  4. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002 View
  5. Köngeter A, Schickhardt C, Jungkunz M, Bergbold S, Mehlis K, Winkler E. Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer. Journal of Medical Internet Research 2022;24(8):e37665 View
  6. Smith C, Vajdic C, Stephenson N. Centring equity in data‐driven public health: a call for guiding principles to support the equitable design and outcomes of Australia's data integration systems. Medical Journal of Australia 2023;218(8):341 View
  7. Scheibner J, Kroesche N, Wakefield L, Cockburn T, McPhail S, Richards B. Does Legislation Impede Data Sharing in Australia Across Institutions and Jurisdictions? A Scoping Review. Journal of Medical Systems 2023;47(1) View
  8. Benevento M, Mandarelli G, Carravetta F, Ferorelli D, Caterino C, Nicolì S, Massari A, Solarino B. Measuring the willingness to share personal health information: a systematic review. Frontiers in Public Health 2023;11 View
  9. Winkler E, Jungkunz M, Thorogood A, Lotz V, Schickhardt C. Patient data for commercial companies? An ethical framework for sharing patients’ data with for-profit companies for research. Journal of Medical Ethics 2023:jme-2022-108781 View
  10. Smith C, Vajdic C, Stephenson N. Techno-legal expertise and the datafication of the state: Big data, accountability and the value of a social license with institutional roots. Futures 2023;154:103263 View
  11. Pronicki Ł, Czech M, Gujski M, Boguszewska N. Awareness, Attitudes and Willingness to Donate Biological Samples to a Biobank: A Survey of a Representative Sample of Polish Citizens. Healthcare 2023;11(20):2714 View
  12. Epizitone A, Moyane S, Agbehadji I. A Data-Driven Paradigm for a Resilient and Sustainable Integrated Health Information Systems for Health Care Applications. Journal of Multidisciplinary Healthcare 2023;Volume 16:4015 View
  13. Baines R, Stevens S, Austin D, Anil K, Bradwell H, Cooper L, Maramba I, Chatterjee A, Leigh S. Patient and Public willingness to share personal health data for third-party or secondary uses: A systematic review (Preprint). Journal of Medical Internet Research 2023 View
  14. Braunack‐Mayer A, Adams C, Nettel‐Aguirre A, Fabrianesi B, Carolan L, Beilby J, Flack F. Community views on the secondary use of general practice data: Findings from a mixed‐methods study. Health Expectations 2024;27(1) View