Published on in Vol 22, No 5 (2020): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/16879, first published .
All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent

All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent

All Our Data Will Be Health Data One Day: The Need for Universal Data Protection and Comprehensive Consent

Journals

  1. Kimmons R. Safeguarding student privacy in an age of analytics. Educational Technology Research and Development 2021;69(1):343 View
  2. Uslu B, Okay E, Dursun E. Analysis of factors affecting IoT-based smart hospital design. Journal of Cloud Computing 2020;9(1) View
  3. Schneble C, Favaretto M, Elger B, Shaw D. Social Media Terms and Conditions and Informed Consent From Children: Ethical Analysis. JMIR Pediatrics and Parenting 2021;4(2):e22281 View
  4. Cordeiro J. Digital Technologies and Data Science as Health Enablers: An Outline of Appealing Promises and Compelling Ethical, Legal, and Social Challenges. Frontiers in Medicine 2021;8 View
  5. Laestadius L, Craig K, Campos-Castillo C. Perceptions of Alerts Issued by Social Media Platforms in Response to Self-injury Posts Among Latinx Adolescents: Qualitative Analysis. Journal of Medical Internet Research 2021;23(8):e28931 View
  6. Baumgartner S, Sumter S, Petkevič V, Wiradhany W. A Novel iOS Data Donation Approach: Automatic Processing, Compliance, and Reactivity in a Longitudinal Study. Social Science Computer Review 2023;41(4):1456 View
  7. Doerr M, Meeder S. Big Health Data Research and Group Harm: The Scope of IRB Review. Ethics & Human Research 2022;44(4):34 View
  8. Bessenyei K, Suruliraj B, Bagnell A, McGrath P, Wozney L, Huguet A, Elger B, Meier S, Orji R. Comfortability with the passive collection of smartphone data for monitoring of mental health: An online survey. Computers in Human Behavior Reports 2021;4:100134 View
  9. Hicks J, Boswell M, Althoff T, Crum A, Ku J, Landay J, Moya P, Murnane E, Snyder M, King A, Delp S. Leveraging Mobile Technology for Public Health Promotion: A Multidisciplinary Perspective. Annual Review of Public Health 2023;44(1):131 View
  10. Rothstein M. Translational Bioethics and Health Privacy. Ethics & Human Research 2023;45(3):40 View
  11. Rothstein M. Translational Bioethics and Health Privacy. SSRN Electronic Journal 2023 View
  12. Sonin J, Becker A, Nipp K. Designing health outcomes through patient data ownership. Journal of Hospital Medicine 2023;18(8):765 View
  13. Curtis L. Who owns health data anyway?. Practical Diabetes 2023;40(5):5 View
  14. Khatiwada P, Yang B, Lin J, Blobel B. Patient-Generated Health Data (PGHD): Understanding, Requirements, Challenges, and Existing Techniques for Data Security and Privacy. Journal of Personalized Medicine 2024;14(3):282 View
  15. Klein F, Kohl S, Lührs M, Mehler D, Sorger B. From lab to life: challenges and perspectives of fNIRS for haemodynamic-based neurofeedback in real-world environments. Philosophical Transactions of the Royal Society B: Biological Sciences 2024;379(1915) View

Books/Policy Documents

  1. Martins J, Moreira F, Au-Yong-Oliveira M, Gonçalves R, Branco F. Trends and Applications in Information Systems and Technologies. View
  2. McCormick J, Pathak J. Genomic Data Sharing. View
  3. Gooding P. Handbook of Disability. View
  4. Gooding P. Handbook of Disability. View