This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (479) Genomics and Bioinformatics for Clinical Use (35) Secondary Use of Clinical Data for Research and Surveillance (367)

Published on in Vol 21, No 8 (2019): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/14384, first published .
Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Public Views on Models for Accessing Genomic and Health Data for Research: Mixed Methods Study

Authors of this article:

Kerina H Jones1 Author Orcid Image ;   Helen Daniels1 Author Orcid Image ;   Emma Squires1 Author Orcid Image ;   David V Ford1 Author Orcid Image
Article Authors Cited by (10) Tweetations (16) Metrics

Journals

  1. Jones K, Daniels H, Heys S, Lacey A, Ford D. Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review. Journal of Medical Internet Research 2020;22(5):e16346 View
  2. Caulfield T, Murdoch B, Ogbogu U. Research, Digital Health Information and Promises of Privacy: Revisiting the Issue of Consent. Canadian Journal of Bioethics 2020;3(1):164 View
  3. Calabrò G, Sassano M, Tognetto A, Boccia S. Citizens' Attitudes, Knowledge, and Educational Needs in the Field of Omics Sciences: A Systematic Literature Review. Frontiers in Genetics 2020;11 View
  4. Silber H, Gerdon F, Bach R, Kern C, Keusch F, Kreuter F. A preregistered vignette experiment on determinants of health data sharing behavior. Politics and the Life Sciences 2022;41(2):161 View
  5. Daniels H, Jones K, Heys S, Ford D. Exploring the Use of Genomic and Routinely Collected Data: Narrative Literature Review and Interview Study. Journal of Medical Internet Research 2021;23(9):e15739 View
  6. Braunack-Mayer A, Fabrianesi B, Street J, O'Shaughnessy P, Carter S, Engelen L, Carolan L, Bosward R, Roder D, Sproston K. Sharing Government Health Data With the Private Sector: Community Attitudes Survey. Journal of Medical Internet Research 2021;23(10):e24200 View
  7. Middleton A, Adams A, Aidid H, Atutornu J, Boraschi D, Borra J, Bircan T, Burch C, Costa A, Dickinson A, Enticknap A, Galloway C, Gale F, Garlick E, Haydon E, Henriques S, Mitchell M, Milne R, Monaghan J, Morley K, Muella Santos M, Olivares Boldu L, Olumogba F, Orviss K, Parry V, Patch C, Robarts L, Shingles S, Smidt C, Tomlin B, Parkinson S. Public engagement with genomics. Wellcome Open Research 2023;8:310 View
  8. Middleton A, Adams A, Aidid H, Atutornu J, Boraschi D, Borra J, Bircan T, Burch C, Costa A, Dickinson A, Enticknap A, Galloway C, Gale F, Garlick E, Haydon E, Henriques S, Mitchell M, Milne R, Monaghan J, Morley K, Muella Santos M, Olivares Boldu L, Olumogba F, Orviss K, Parry V, Patch C, Robarts L, Shingles S, Smidt C, Tomlin B, Parkinson S. Public engagement with genomics. Wellcome Open Research 2023;8:310 View
  9. Walshe J, Elphinstone B, Nicol D, Taylor M. A systematic literature review of the ‘commercialisation effect’ on public attitudes towards biobank and genomic data repositories. Public Understanding of Science 2024;33(5):548 View
  10. Devarinti R, Ganachari M. Clinical Trial Participant's Perspectives on Genetic Research Data Re-uses for Future Research. Current Pharmacogenomics and Personalized Medicine 2024;21(1):28 View