This paper is in the following e-collection/theme issue:

Participatory Medicine & E-Patients (773) Focus Groups and Qualitative Research for Human Factors Research (851) User Needs and Competencies (303) Information Seeking, Information Needs (465)

Published on in Vol 21, No 8 (2019): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/13022, first published .
From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients

From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients

From Information Seekers to Innovators: Qualitative Analysis Describing Experiences of the Second Generation of E-Patients

Authors of this article:

Therese Scott Duncan1 Author Orcid Image ;   Sara Riggare1 Author Orcid Image ;   Sabine Koch1 Author Orcid Image ;   Lena Sharp2, 3 Author Orcid Image ;   Maria Hägglund1, 4 Author Orcid Image
Article Authors Cited by (11) Tweetations (56) Metrics

Journals

  1. Wannheden C, Revenäs Å. How People with Parkinson's Disease and Health Care Professionals Wish to Partner in Care Using eHealth: Co-Design Study. Journal of Medical Internet Research 2020;22(9):e19195 View
  2. De Simoni A, Shah A, Fulton O, Parkinson J, Sheikh A, Panzarasa P, Pagliari C, Coulson N, Griffiths C. Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study. Journal of Medical Internet Research 2020;22(6):e18185 View
  3. Framer A. What I have learnt from helping thousands of people taper off antidepressants and other psychotropic medications. Therapeutic Advances in Psychopharmacology 2021;11 View
  4. Jansson H, Stenfors T, Riggare S, Hasson H, Reinius M. Patient lead users experience of the COVID-19 pandemic: a qualitative interview study. BMJ Open 2022;12(8):e059003 View
  5. Scott Duncan T, Engström J, Riggare S, Hägglund M, Koch S. Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers. Journal of Participatory Medicine 2022;14(1):e39174 View
  6. Scott Duncan T, Riggare S, Bylund A, Hägglund M, Stenfors T, Sharp L, Koch S. Empowered patients and informal care-givers as partners?—a survey study of healthcare professionals’ perceptions. BMC Health Services Research 2023;23(1) View
  7. Wannheden C, Riggare S, Luckhaus J, Jansson H, Sjunnestrand M, Stenfors T, Savage C, Reinius M, Hasson H. A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research. Health Expectations 2023;26(4):1757 View
  8. Walker L, Sillence E. Examining Healthcare Professionals’ Communication Around Decision-Making with Internet-Informed Patients. Health Communication 2024;39(6):1094 View
  9. Chang F, Chang C, Tao C. Adolescent pursuit of health information online during the COVID-19 pandemic: The roles played by eHealth literacy and psychological distress. Cambridge Prisms: Global Mental Health 2023;10 View
  10. Dahlberg M, Luckhaus J, Hasson H, Jansson H, Lek M, Savage C, Riggare S, Wannheden C. Why publish? An interview study exploring patient innovators’ reasons for and experiences of scientific publishing. Research Involvement and Engagement 2024;10(1) View
  11. Gustafson Hedov E, Nyberg F, Gustafsson S, Li H, Gisslén M, Sundström J. Person-Centered Web-Based Mobile Health System (Symptoms) for Reporting Symptoms in COVID-19 Vaccinated Individuals: Observational Study of System, Users, and Symptoms. JMIR Formative Research 2024;8:e57514 View