Published on in Vol 21, No 1 (2019): January

Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line

Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line

Protecting User Privacy and Rights in Academic Data-Sharing Partnerships: Principles From a Pilot Program at Crisis Text Line

Anthony R Pisani   1, 2 , PhD ;   Nitya Kanuri   3, 4 , BA (Hons) ;   Bob Filbin   5 , MA ;   Carlos Gallo   6 , PhD ;   Madelyn Gould   7, 8 , MPH, PhD ;   Lisa Soleymani Lehmann   9, 10 , MD, PhD ;   Robert Levine   11, 12 , MD ;   John E Marcotte   13, 14 , PhD ;   Brian Pascal   15 , JD ;   David Rousseau   16 , MPH ;   Shairi Turner   5 , MD, MPH ;   Shirley Yen   17 , PhD ;   Megan L Ranney   18 , MD, MPH

1 Department of Psychiatry, University of Rochester Medical Center, University of Rochester, Rochester, NY, United States

2 Department of Pediatrics, University of Rochester Medical Center, University of Rochester, Rochester, NY, United States

3 Yale School of Management, Yale University, New Haven, CT, United States

4 Yale School of Public Health, Yale University, New Haven, CT, United States

5 Crisis Text Line, New York, NY, United States

6 Department of Psychiatry and Behavioral Sciences, Northwestern University, Chicago, IL, United States

7 Department of Psychiatry, Columbia University, New York, NY, United States

8 Department of Epidemiology, Columbia University, New York, NY, United States

9 National Center for Ethics in Health Care, Veterans Health Administration, Washington, DC, United States

10 Harvard Medical School, Harvard University, Boston, MA, United States

11 Department of Internal Medicine, Yale University, New Haven, CT, United States

12 Center for Bioethics, Yale University, New Haven, CT, United States

13 Institute for Social Research, University of Michigan, Ann Arbor, MI, United States

14 School of Nursing, University of Michigan, Ann Arbor, MI, United States

15 Center for Internet and Society, Stanford Law School, Palo Alto, CA, United States

16 Henry J Kaiser Family Foundation, Menlo Park, CA, United States

17 Department of Psychiatry and Human Behavior, Alpert Medical School, Brown University, Providence, RI, United States

18 Emergency Digital Health Innovation Program, Department of Emergency Medicine, Alpert Medical School, Brown University, Providence, RI, United States

Corresponding Author:

  • Anthony R Pisani, PhD
  • Department of Psychiatry
  • University of Rochester Medical Center
  • University of Rochester
  • 300 Crittenden Boulevard Box PSYCH
  • Rochester, NY, 14642
  • United States
  • Phone: 1 585 275 3571
  • Email: anthony_pisani@urmc.rochester.edu