This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (569) Secondary Use of Clinical Data for Research and Surveillance (433)
Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/7763, first published .
Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

Authors of this article:

Mary P Tully1, 2 Author Orcid Image ;   Kyle Bozentko3 Author Orcid Image ;   Sarah Clement4 Author Orcid Image ;   Amanda Hunn5 Author Orcid Image ;   Lamiece Hassan1 Author Orcid Image ;   Ruth Norris1 Author Orcid Image ;   Malcolm Oswald6, 7 Author Orcid Image ;   Niels Peek1, 8 Author Orcid Image
Article Authors Cited by (36) Tweetations (108) Metrics
All Time | Last Month | Last Six Months | Last Year
Mary Dixon-Woods Mary Dixon-Woods @MaryDixonWoods

Interesting citizen jury study on how far patients should control access to medical records for research https://t.co/yCKNVgItba

4:41 AM · Jul 06, 2018

2
3
Keith Couper Keith Couper @KeithCouper

RT @MaryDixonWoods: Interesting citizen jury study on how far patients should control access to medical records for research https://t.co/y…

5:18 AM · Jul 06, 2018

2
3
Adam Steventon Adam Steventon @ASteventonTHF

RT @MaryDixonWoods: Interesting citizen jury study on how far patients should control access to medical records for research https://t.co/y…

6:33 AM · Jul 06, 2018

2
3
Harry Aagaard Evans Harry Aagaard Evans @HarryAEvans

@RichardTaunt .@Mary_Tully on patient data https://t.co/jqVlMUJ3Ix placement of a hospital in Glos… https://t.co/wog3QZfo78

8:41 PM · Feb 05, 2019

1
0
Sarah Knowles Sarah Knowles @dr_know

Great work on this issue of trust by @Mary_Tully @chcnorth on public attitudes toward health data sharing (spoiler:… https://t.co/NIp19x8u02

9:44 AM · May 17, 2019

1
0
Lisa Federer, PhD Lisa Federer, PhD @lisafederer

A very in-depth study design on the public's attitude toward data sharing, in which informed participants concluded… https://t.co/5TizipO1ZT

3:49 PM · Jun 17, 2019

5
1
Damien C-C Damien C-C @dccc_phd

RT @lisafederer: A very in-depth study design on the public's attitude toward data sharing, in which informed participants concluded"an ind…

3:51 PM · Jun 17, 2019

5
1
Paul Reilly Paul Reilly @PaulJReilly

This looks like a great method! https://t.co/DpUfTE9Iit

3:43 PM · Jul 20, 2019

1
0
Steph Allan Steph Allan @eolasinntinn

https://t.co/xBocUya1fL not the final word on the matter, but interesting study on patient views towards sharing of health data.

12:01 PM · Dec 22, 2019

7
3
Andy Gumley Andy Gumley @andygumley

RT @eolasinntinn: https://t.co/xBocUya1fL not the final word on the matter, but interesting study on patient views towards sharing of heal…

12:39 PM · Dec 22, 2019

7
3
Just Madelen Just Madelen @m4delen

RT @eolasinntinn: https://t.co/xBocUya1fL not the final word on the matter, but interesting study on patient views towards sharing of heal…

2:20 PM · Dec 22, 2019

7
3
Dan Robotham Dan Robotham @djrobotham

Worth reading, about data sharing, public opinion and research. The diagram/figure showing where people changed the… https://t.co/pvpNVSQaw4

10:46 AM · Jan 06, 2020

0
0
Sven Awege Sven Awege @SVENNIECO

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Pr… https://t.co/4VOqWrf895

2:13 PM · Mar 28, 2018

0
0
fredbarney fredbarney @yabbadabbadoo99

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Pr… https://t.co/E75cArXLlS

2:15 PM · Mar 28, 2018

0
0
JMIR Publications JMIR Publications @jmirpub

New in JMIR: Investigating the Extent to Which ##Patients Should Control Access to ##Patient Records for #Research:… https://t.co/QbdQhM3TID

2:43 PM · Mar 28, 2018

1
0
Dr Mary Tully Dr Mary Tully @Mary_Tully

Our latest paper describing our first set of citizens' juries on the extent to which patients should control access… https://t.co/hd0N1OIcwN

3:26 PM · Mar 28, 2018

30
23
Sarah Clement Sarah Clement @DrSarahClement

My latest article is published. You know how my Twitter profile refers to my broad interests, beyond the environmen… https://t.co/c7TG1OaUby

3:33 PM · Mar 28, 2018

1
1
Understanding Patient Data Understanding Patient Data @Patient_Data

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

3:52 PM · Mar 28, 2018

30
23
Dr Jonathan Boote ????️‍???????????? Dr Jonathan Boote ????️‍???????????? @jonathanboote

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:01 PM · Mar 28, 2018

30
23
UH Research Office UH Research Office @UHertsResearch

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:04 PM · Mar 28, 2018

30
23
OSSU Tweets OSSU Tweets @OSSUtweets

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:07 PM · Mar 28, 2018

30
23
Pauline Whelan Pauline Whelan @_PaulineWhelan

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:20 PM · Mar 28, 2018

30
23
@useMYdata @useMYdata @useMYdata

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

5:13 PM · Mar 28, 2018

30
23
suzanne spicer suzanne spicer @csusies

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

5:40 PM · Mar 28, 2018

30
23
Luke Luke @ReadmanLuke

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

5:43 PM · Mar 28, 2018

30
23
Tom King Tom King @Acertaintom

@HetanShah I think this is the paper derived from the citizen jury work I mentioned https://t.co/WpHERqnpDM

5:50 PM · Mar 28, 2018

1
0
Dr Bella Starling Dr Bella Starling @bellastarling

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

7:17 PM · Mar 28, 2018

30
23
Penny Lewis Penny Lewis @DrPennyLewis

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

7:18 PM · Mar 28, 2018

30
23
Tom van de Belt, PhD Tom van de Belt, PhD @tomvandebelt

'Extent to Which Patients Should Control Access to Patient Records for Research’ via: https://t.co/c1PYF6Oe0D Inter… https://t.co/huw30wQuLe

7:51 PM · Mar 28, 2018

1
0
Ruth Norris Ruth Norris @ruthlady

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

11:29 PM · Mar 28, 2018

30
23
Prof Sheena Cruickshank Prof Sheena Cruickshank @sheencr

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:47 AM · Mar 29, 2018

30
23
Dr Christine Smith Dr Christine Smith @CMSmith215

Lots of implications for how we engage around Big Data projects @CLAHRCYH @EviePPICRNyh @NIHRCRN_yorks @NIHRINVOLVE… https://t.co/anvLsQlzI4

6:44 AM · Mar 29, 2018

0
0
Richard J Dunning Richard J Dunning @RichardJDunning

RT @DrSarahClement: My latest article is published. You know how my Twitter profile refers to my broad interests, beyond the environment (a…

7:39 AM · Mar 29, 2018

1
1
Carolyn Gamble Carolyn Gamble @carolynMgamble

“public benefit was a key justification for access.” #patientdata #citizenjury #healthrecords https://t.co/K4FYMUJYi9

8:33 AM · Mar 29, 2018

0
0
Casey Overby Taylor Casey Overby Taylor @coverbytaylor

JMIR article showing that better informing the public of benefits and risks has potential to lead to more health da… https://t.co/hth7P8NMHP

11:27 AM · Mar 29, 2018

0
0
NorthWest EHealth NorthWest EHealth @NWEHealth

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

1:02 PM · Mar 29, 2018

30
23
Pharmacy DUPP Pharmacy DUPP @PharmacyDUPP

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

2:49 PM · Mar 29, 2018

30
23
Claire Vaughan Claire Vaughan @clairec_vaughan

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:52 PM · Mar 29, 2018

30
23
Dr Paryaneh Rostami Dr Paryaneh Rostami @paryaneh

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:59 PM · Mar 29, 2018

30
23
Cynthia Joyce Cynthia Joyce @CjoyceMQF

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

7:53 PM · Mar 29, 2018

30
23
JMIR Publications JMIR Publications @jmirpub

Top tweeted last mo: Investigating the Extent to Which Patients Should Control Access to Patient Records for Resear… https://t.co/Nhwj8D8pUz

5:40 AM · Mar 30, 2018

1
0
Muireann Quigley Muireann Quigley @profmq

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

1:56 PM · Mar 30, 2018

30
23
Dr V Palin Dr V Palin @v1kki_p

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

4:56 PM · Mar 30, 2018

30
23
Mark Westwood Mark Westwood @geordiemedic

@GreatNorthCare great work , I feel a lot of convergence and shared understanding , think there will have to be a… https://t.co/XLoZAENh8F

5:29 PM · Mar 30, 2018

2
0
Great North Care Great North Care @GreatNorthCare

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

8:00 PM · Mar 30, 2018

30
23
Health eResearch Health eResearch @HeRC_Tweets

New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets… https://t.co/Zt87ORqZum

2:18 PM · Apr 03, 2018

29
20
Ruth Norris Ruth Norris @ruthlady

Feeling a bit fisher price - my first’ paper authorship’! #teamscience #collaborate #diverseforbenefit @oht_uk… https://t.co/URRBHb0CIF

2:23 PM · Apr 03, 2018

11
2
NCA Research NHS NCA Research NHS @NCAresearchNHS

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

2:31 PM · Apr 03, 2018

29
20
Manchester PSTRC Manchester PSTRC @PSTRC_GM

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

2:38 PM · Apr 03, 2018

29
20
NHSA NHSA @The_NHSA

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

2:40 PM · Apr 03, 2018

29
20
Charlie Harper Charlie Harper @charlieharperuk

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

2:46 PM · Apr 03, 2018

29
20
IIIR Research Mcr IIIR Research Mcr @IIIRresearchMcr

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

2:56 PM · Apr 03, 2018

29
20
IIIR Research Mcr IIIR Research Mcr @IIIRresearchMcr

RT @ruthlady: Feeling a bit fisher price - my first’ paper authorship’! #teamscience #collaborate #diverseforbenefit @oht_uk @FarrInstitute…

2:56 PM · Apr 03, 2018

11
2
Strategic Funding Team (SFT) Strategic Funding Team (SFT) @RD_UoM

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

3:03 PM · Apr 03, 2018

29
20
The Farr Institute The Farr Institute @FarrInstitute

RT @ruthlady: Feeling a bit fisher price - my first’ paper authorship’! #teamscience #collaborate #diverseforbenefit @oht_uk @FarrInstitute…

3:28 PM · Apr 03, 2018

11
2
Dovetail Dovetail @dovetail_health

V interesting paper on patients' views on the complex issue of data sharing. Many changed their mind as they became… https://t.co/NyrTnsVlvo

3:38 PM · Apr 03, 2018

2
2
Dr Mary Tully Dr Mary Tully @Mary_Tully

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

6:15 PM · Apr 03, 2018

29
20
Kyle Bozentko Kyle Bozentko @kylebozentko

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

6:15 PM · Apr 03, 2018

29
20
Jefferson Center Jefferson Center @JeffersonCtr

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

6:16 PM · Apr 03, 2018

29
20
Dr Paryaneh Rostami Dr Paryaneh Rostami @paryaneh

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

6:33 PM · Apr 03, 2018

29
20
Neill Mc Anaspie Neill Mc Anaspie @NeillMcAnaspie

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

7:25 PM · Apr 03, 2018

29
20
Frédéric Piel Frédéric Piel @FredPiel

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

7:36 PM · Apr 03, 2018

29
20
JMIR Publications JMIR Publications @jmirpub

RT @dovetail_health: V interesting paper on patients' views on the complex issue of data sharing. Many changed their mind as they became mo…

9:55 PM · Apr 03, 2018

2
2
Grampian DaSH Grampian DaSH @GrampianDaSH

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

10:03 PM · Apr 03, 2018

29
20
Dr Jo Pennock Dr Jo Pennock @immunoJo

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

10:23 PM · Apr 03, 2018

29
20
NNLM RD3 NNLM RD3 @NNLM_RD3

RT @dovetail_health: V interesting paper on patients' views on the complex issue of data sharing. Many changed their mind as they became mo…

11:14 PM · Apr 03, 2018

2
2
Emma Kennedy Emma Kennedy @MissMarketing__

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

3:33 AM · Apr 04, 2018

29
20
Javier Garcia Leon Javier Garcia Leon @JGarciaLeon

@EASPBioetica @sespas Control de los pacientes sobre el uso de sus datos para investigación #cuali #jurado https://t.co/ptTV3FOVVX

7:12 AM · Apr 04, 2018

0
1
maryrose tarpey maryrose tarpey @mrtarpey

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

7:19 AM · Apr 04, 2018

29
20
SESPAS SESPAS @sespas

RT @JGarciaLeon: @EASPBioetica @sespas Control de los pacientes sobre el uso de sus datos para investigación #cuali #jurado https://t.co/pt…

12:00 PM · Apr 04, 2018

0
1
Niels Peek Niels Peek @NielsPeek

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

4:17 PM · Apr 04, 2018

29
20
Effy Vayena Effy Vayena @EffyVayena

“Public benefit a key justification for access” #datasharing #privacy #healthresearch https://t.co/YD0xj0eQnv

4:52 PM · Apr 04, 2018

2
0
The Health Research Authority The Health Research Authority @HRA_Latest

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

2:07 PM · Apr 05, 2018

29
20
Jim Elliott Jim Elliott @Drakesyard

Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Pr… https://t.co/brwiUf2byZ

3:50 PM · Apr 05, 2018

1
2
Sandy Oliver Sandy Oliver @profsandyoliver

RT @Drakesyard: Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Us…

3:54 PM · Apr 05, 2018

1
2
Nottingham Eczema Nottingham Eczema @eczemasupport

RT @Drakesyard: Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Us…

7:13 AM · Apr 06, 2018

1
2
▶️ @MEDICINEGOV ▶️ @MEDICINEGOV @MedicineGov

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

10:36 PM · Apr 08, 2018

30
23
Clinical Practice Research Datalink Clinical Practice Research Datalink @CPRD

‘Citizens believe an individual’s right to privacy should not prevent research that can benefit the general public… https://t.co/vTSBSRdIku

12:35 PM · Apr 09, 2018

4
5
Nicola Perrin Nicola Perrin @NMRPerrin

RT @CPRD: ‘Citizens believe an individual’s right to privacy should not prevent research that can benefit the general public provided safeg…

1:08 PM · Apr 09, 2018

4
5
Harry Aagaard Evans Harry Aagaard Evans @HarryAEvans

New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors sup… https://t.co/liNpf3hgJk

1:36 PM · Apr 09, 2018

30
25
Rich Corbridge Rich Corbridge @R1chardatron

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:38 PM · Apr 09, 2018

30
25
Peter Wells Peter Wells @peterkwells

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:44 PM · Apr 09, 2018

30
25
Richard Pantlin Richard Pantlin @richardpantlin

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:54 PM · Apr 09, 2018

30
25
Nicola Blackwood Nicola Blackwood @nicolablackwood

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:55 PM · Apr 09, 2018

30
25
Laura Price Laura Price @Laujeprice

RT @CPRD: ‘Citizens believe an individual’s right to privacy should not prevent research that can benefit the general public provided safeg…

2:00 PM · Apr 09, 2018

4
5
FutureNeuro Centre FutureNeuro Centre @Futureneuro_ie

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

2:06 PM · Apr 09, 2018

30
25
Jonathan Bloor Jonathan Bloor @DrJonathanBloor

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

2:29 PM · Apr 09, 2018

30
25
Stuart Fordyce Stuart Fordyce @StuartFordyce1

RT @CPRD: ‘Citizens believe an individual’s right to privacy should not prevent research that can benefit the general public provided safeg…

2:46 PM · Apr 09, 2018

4
5
Ruth Norris Ruth Norris @ruthlady

RT @CHCNorth: Excellent research from @Mary_Tully @LamieceHassan @ruthlady @HeRC_Farr #datasaveslives https://t.co/NFp67uohsT

8:39 PM · Apr 09, 2018

1
2
Georgina Moulton Georgina Moulton @GeneralGeorge

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

8:50 PM · Apr 09, 2018

30
25
garyleeming garyleeming @grazulis

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

9:26 PM · Apr 09, 2018

30
25
Lauren C Lauren C @constaconstable

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

10:01 PM · Apr 09, 2018

30
25
John McGovern John McGovern @mcgov10

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

11:08 PM · Apr 09, 2018

30
25
Monolayer Monolayer @MonolayerLlc

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

3:14 AM · Apr 10, 2018

30
25
Matthew G Reynolds Matthew G Reynolds @Reynolds2G

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

3:17 AM · Apr 10, 2018

30
25
Axel Heitmueller Axel Heitmueller @axelheitmueller

This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https://t.co/DKwLgmyVk3

4:51 AM · Apr 10, 2018

7
9
James Goodyear James Goodyear @JamesGoodyear1

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

5:17 AM · Apr 10, 2018

7
9
Charlotte Augst Charlotte Augst @CharlotteAugst

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

6:11 AM · Apr 10, 2018

7
9
Lesley Brennan Lesley Brennan @LesleyBzz

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

6:15 AM · Apr 10, 2018

7
9
Hannah Harniess Hannah Harniess @hharniess

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

6:38 AM · Apr 10, 2018

7
9
Helen McKenna Helen McKenna @helenamacarena

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

8:07 AM · Apr 10, 2018

7
9
@useMYdata @useMYdata @useMYdata

RT @CPRD: ‘Citizens believe an individual’s right to privacy should not prevent research that can benefit the general public provided safeg…

8:25 AM · Apr 10, 2018

4
5
Harry Aagaard Evans Harry Aagaard Evans @HarryAEvans

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

1:04 PM · Apr 10, 2018

7
9
Future Advocacy Future Advocacy @FutureAdvocacy

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

1:05 PM · Apr 10, 2018

7
9
Future Advocacy Future Advocacy @FutureAdvocacy

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:05 PM · Apr 10, 2018

30
25
Andrew Bennett Andrew Bennett @andrewjb_

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:05 PM · Apr 10, 2018

30
25
Public Health Data Science Public Health Data Science @PublicHealthBot

FutureAdvocacy RT HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about healt… https://t.co/e2aeFf6keT

1:05 PM · Apr 10, 2018

0
0
Public Health Data Science Public Health Data Science @PublicHealthBot

andrewjb_ RT HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health dat… https://t.co/KQTzXROT2W

1:06 PM · Apr 10, 2018

0
0
AYRwave Louise Ayr: Nobody's #Bandwagon ???? AYRwave Louise Ayr: Nobody's #Bandwagon ???? @LouiseAyr

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:19 PM · Apr 10, 2018

30
25
saira ghafur saira ghafur @sairaghafur

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

1:28 PM · Apr 10, 2018

30
25
Cynthia Joyce Cynthia Joyce @CjoyceMQF

Excellent work! #datasaveslives https://t.co/K1jM1XX97n

3:44 PM · Apr 10, 2018

0
0
Jonathan Harris Jonathan Harris @Jonoinengland

RT @axelheitmueller: This is tremendously encouraging and makes it even more frustrating that we have wasted a decade by not doing it https…

4:33 PM · Apr 10, 2018

7
9
Dr Harpreet Sood Dr Harpreet Sood @hssood

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

10:35 PM · Apr 10, 2018

30
25
engagementmanchester engagementmanchester @UoMEngage

RT @Mary_Tully: Our latest paper describing our first set of citizens' juries on the extent to which patients should control access to pati…

9:48 AM · Apr 11, 2018

30
23
Understanding Patient Data Understanding Patient Data @Patient_Data

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

3:06 PM · Apr 12, 2018

30
25
Tracy Keech Tracy Keech @tracy_keech

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

3:16 PM · Apr 12, 2018

30
25
MSC Clin Bioinf MSC Clin Bioinf @MSCclinbioinf

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

4:43 PM · Apr 12, 2018

30
25
IHDP Scotland IHDP Scotland @IHDPscot

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

9:18 AM · Apr 13, 2018

30
25
Hetan Shah Hetan Shah @HetanShah

When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right… https://t.co/lhsr9G8Wd1

11:26 AM · Apr 13, 2018

7
8
Helen Barnard Helen Barnard @Helen_Barnard

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

11:31 AM · Apr 13, 2018

7
8
Emily Petherick Emily Petherick @DrEPetherick

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

11:36 AM · Apr 13, 2018

7
8
Robert Finnigan Robert Finnigan @finnigr

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

11:38 AM · Apr 13, 2018

7
8
Gérard Chenais #emojibzh Gérard Chenais #emojibzh @GChenais

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

12:04 PM · Apr 13, 2018

7
8
Tom King Tom King @Acertaintom

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

3:05 PM · Apr 13, 2018

7
8
Health eResearch Health eResearch @HeRC_Tweets

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

3:37 PM · Apr 13, 2018

7
8
???????????????????????? Steve the skeptic ???????????????????????? Steve the skeptic @sib313

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

6:23 PM · Apr 13, 2018

7
8
Paraskevi Pericleous Paraskevi Pericleous @pericleous

RT @HetanShah: When informed of both risks and opportunities associated with data sharing, citizens believe an individual’s right to privac…

12:32 PM · Apr 14, 2018

7
8
X.M. Meijome #Sentidiño!! X.M. Meijome #Sentidiño!! @EnferEvidente

Proceso deliberativo con jurado ciudadano ¿Hasta qué punto los pacientes deberían controlar el acceso a su HCE? https://t.co/RIxIyC5QZF

9:20 AM · Apr 16, 2018

1
1
Jesús Palacio Jesús Palacio @je_pala

RT @EnferEvidente: Proceso deliberativo con jurado ciudadano ¿Hasta qué punto los pacientes deberían controlar el acceso a su HCE? https://…

10:27 AM · Apr 16, 2018

1
1
Breda Corish Breda Corish @BredaCorish

Fascinating to see a citizens' jury considering complex issue of health data sharing & recommendations made by… https://t.co/vqAcKLxjNe

10:41 AM · Apr 17, 2018

0
1
N16Breda #VaccinesWork N16Breda #VaccinesWork @N16Breda

RT @BredaCorish: Fascinating to see a citizens' jury considering complex issue of health data sharing & recommendations made by #InformedCi…

10:44 AM · Apr 17, 2018

0
1
Jonathan Tedds Jonathan Tedds @jtedds

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

11:18 AM · Apr 17, 2018

30
25
Betsy Rolland Betsy Rolland @betsyrolland

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

12:08 PM · Apr 17, 2018

30
25
CamInformatics CamInformatics @CamInformatics

RT @CPRD: ‘Citizens believe an individual’s right to privacy should not prevent research that can benefit the general public provided safeg…

1:37 PM · Apr 18, 2018

4
5
Tamasine Grimes Tamasine Grimes @Tagrimes

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

2:49 PM · Apr 19, 2018

29
20
Connected Health Cities Connected Health Cities @CHCNorth

RT @HeRC_Tweets: New paper + #teamscience collab: 1⃣@Mary_Tully @LamieceHassan @NielsPeek @ruthlady + Malcolm Oswald w/ @HeRC_Tweets + @Off…

9:53 PM · Apr 19, 2018

29
20
JMIR Publications JMIR Publications @jmirpub

Top tweeted last yr: Investigating the Extent to Which Patients Should Control Access to Patient Records for Resear… https://t.co/5hlQtnbq5j

5:52 AM · Apr 20, 2018

1
1
Christine K Jacob Christine K Jacob @JacobChristine

RT @jmirpub: Top tweeted last yr: Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Delib…

10:05 AM · Apr 20, 2018

1
1
Marcel Heldoorn ツ Marcel Heldoorn ツ @bakeeneitje

Investigating the Extent to Which Patients Should Control Access to Patient Records for.. - https://t.co/2fjblSs4Lg via @_feedspot

2:31 AM · Apr 21, 2018

0
1
Chris Flim Chris Flim @Flim4ehealth

RT @bakeeneitje: Investigating the Extent to Which Patients Should Control Access to Patient Records for.. - https://t.co/2fjblSs4Lg via @_…

6:42 AM · Apr 21, 2018

0
1
Matthew G Reynolds Matthew G Reynolds @Reynolds2G

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

10:47 PM · Apr 23, 2018

30
25
Jennifer Zelmer Jennifer Zelmer @jenzelmer

Citizen juries in the UK weigh what control individuals should have over the use of health records for research… https://t.co/N3WM7wdpfZ

3:17 PM · Apr 24, 2018

1
1
Neil Drimer Neil Drimer @ndrimer

RT @jenzelmer: Citizen juries in the UK weigh what control individuals should have over the use of health records for research https://t.c…

8:29 PM · Apr 24, 2018

1
1
Matthew G Reynolds Matthew G Reynolds @Reynolds2G

RT @HarryAEvans: New findings from a citizens' jury in Manchester show that when informed about health data sharing, many jurors support th…

4:24 AM · May 11, 2018

30
25