Investigating the Extent to Which Patients Should Control Access to Patient Records for Research: A Deliberative Process Using Citizens’ Juries

Mary P Tully   ^{1, 2} , B.Sc (Hons), M.Sc., PhD, FRPharmS, FFRPS ;   Kyle Bozentko   ³ , MTS ;   Sarah Clement   ⁴ , BSc, PhD ;   Amanda Hunn   ⁵ , BSc (Hons), MA ;   Lamiece Hassan   ¹ , BSc (Hons), MPhil, PhD ;   Ruth Norris   ¹ , BSc (Hons), PGDip ;   Malcolm Oswald   ^{6, 7} , BA (Econ), MA, PhD ;   Niels Peek   ^{1, 8} , PhD

¹ Health E-Research Centre, Division of Imaging, Informatics and Data Sciences, School of Health Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom

² Division of Pharmacy and Optometry, School of Health Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom

³ Jefferson Center, Saint Paul, MN, United States

⁴ Department of Geography and Planning, School of Environmental Sciences, University of Liverpool, Liverpool, United Kingdom

⁵ Health Research Authority, London, United Kingdom

⁶ School of Law, Faculty of Humanities, The University of Manchester, Manchester, United Kingdom

⁷ Citizens Juries c.i.c., Manchester, United Kingdom

⁸ Greater Manchester Patient Safety Translational Research Centre, Division of Population Health, Health Services Research and Primary Care, School of Health Sciences, The University of Manchester, Manchester Academic Health Science Centre, Manchester, United Kingdom