This paper is in the following e-collection/theme issue:

Consumer & Patient Education and Shared-Decision Making (795) Ethics, Privacy, and Legal Issues (578) Public Health Informatics (111) Ethical, Legal, and Social Implications of Public Health Informatics (16) Data Science (333)
Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/50421, first published .
Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review

Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review

Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review

Authors of this article:

Rebecca Baines1 Author Orcid Image ;   Sebastian Stevens1, 2 Author Orcid Image ;   Daniela Austin1 Author Orcid Image ;   Krithika Anil3 Author Orcid Image ;   Hannah Bradwell1 Author Orcid Image ;   Leonie Cooper1 Author Orcid Image ;   Inocencio Daniel Maramba1 Author Orcid Image ;   Arunangsu Chatterjee1, 4 Author Orcid Image ;   Simon Leigh2, 5 Author Orcid Image
Article Authors Cited by (14) Tweetations (5) Metrics

Journals

  1. Yusuf Z, Dixon W, Sharp C, Cook L, Holm S, Sanders C. Building and Sustaining Public Trust in Health Data Sharing for Musculoskeletal Research: Semistructured Interview and Focus Group Study. Journal of Medical Internet Research 2024;26:e53024 View
  2. Kaplow K, Downey M, Stewart D, Massie A, Motter J, Taylor L, Massarelli J, Matalon T, Sidoti C, Levan M, Parent B. Data professionals’ attitudes on data privacy, sharing, and consent in healthcare and research. DIGITAL HEALTH 2024;10 View
  3. Shi L, Fiscella N, Leung W. Status in using wearable devices as surveillance tools in public health research among people with disabilities: preliminary analysis of 2017 BRFSS. Disability and Rehabilitation: Assistive Technology 2025;20(4):1117 View
  4. Eversdijk M, Douma E, Habibovic M, Kop W. The Association of Psychological Factors With Willingness to Share Health-Related Data From Technological Devices: Cross-Sectional Questionnaire Study. JMIR Formative Research 2025;9:e64244 View
  5. Skovgaard L, Ekstrøm C, Svendsen M, Hoeyer K, Chima S. Survey of attitudes in a Danish public towards reuse of health data. PLOS ONE 2024;19(12):e0312558 View
  6. Nagappan A, Zhu X. Patterns of willingness to share health data with key stakeholders in US consumers: a latent class analysis. Journal of the American Medical Informatics Association 2025;32(4):702 View
  7. Sassa M, Eguchi A, Maruyama-Sakurai K, Fujita T, Kawamura Y, Kawashima T, Tanoue Y, Yoneoka D, Miyata H, Yamashita T, Nakashima N, Nomura S. Heterogeneity in willingness to share personal health information: a nationwide cluster analysis of 20,000 adults in Japan. Archives of Public Health 2025;83(1) View
  8. Dotter C, Haug S, Schnell R, Raptis G, Weber K. Sharing health data for research purposes: results of a population survey in Germany. BMC Health Services Research 2025;25(1) View
  9. Alimohamed M, Obeng G, Csanadi M, Masimirembwa C, Dandara C. Implementing health economics for pharmacogenomics research translation in Africa. Communications Medicine 2025;5(1) View
  10. van Drumpt S, Chawla K, Barbereau T, Spagnuelo D, van de Burgwal L. Secondary use under the European Health Data Space: setting the scene and towards a research agenda on privacy-enhancing technologies. Frontiers in Digital Health 2025;7 View
  11. Ahmed M, Okesanya O, Oweidat M, Othman Z, Musa S, Lucero-Prisno III D. The ethics of data mining in healthcare: challenges, frameworks, and future directions. BioData Mining 2025;18(1) View
  12. Smedinga M, Ballantyne A, Schaefer G. Why de-identified data sharing for research should be in the public interest. Journal of Medical Ethics 2025:jme-2025-110825 View
  13. Bedenik T, Geaney F, Foley B, Flynn R, Bennett K. If it wasn’t for us, there would be no data: stakeholders’ perspectives on patient involvement in the use of health data in Ireland. Research Involvement and Engagement 2025;11(1) View
  14. DENG Z. LEGAL REGULATION OF PERSONAL HEALTH DATA SHARING IN THE EU AND ITS IMPLICATIONS FOR CHINA. SSRN Electronic Journal 2025 View