This paper is in the following e-collection/theme issue:

Viewpoints and Perspectives (624) Protocols for Public Health Research and Surveillance (112) Participatory Design and Participatory Research (432) Digital Science, Open Science (92) Theme Issue: Medical Informatics and COVID-19 (125) Data Science (364) Secondary Use of Clinical Data for Research and Surveillance (480) Big Data (312) Outbreak and Pandemic Preparedness and Management (1831) Teamwork (72) Co-Design & Participatory Design (179) JMIR Theme Issue: COVID-19 Special Issue (2558) Policy and Policy Proposals (152) Open Source and Data for Public Health (33) Bioinformatics, genomics, tools and databases (33)

Published on in Vol 26 (2024)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/50235, first published .
The Challenges and Lessons Learned Building a New UK Infrastructure for Finding and Accessing Population-Wide COVID-19 Data for Research and Public Health Analysis: The CO-CONNECT Project

The Challenges and Lessons Learned Building a New UK Infrastructure for Finding and Accessing Population-Wide COVID-19 Data for Research and Public Health Analysis: The CO-CONNECT Project

The Challenges and Lessons Learned Building a New UK Infrastructure for Finding and Accessing Population-Wide COVID-19 Data for Research and Public Health Analysis: The CO-CONNECT Project

Authors of this article:

Emily Jefferson1, 2 Author Orcid Image ;   Gordon Milligan3 Author Orcid Image ;   Jenny Johnston3 Author Orcid Image ;   Shahzad Mumtaz3 Author Orcid Image ;   Christian Cole1, 3 Author Orcid Image ;   Joseph Best4 Author Orcid Image ;   Thomas Charles Giles4 Author Orcid Image ;   Samuel Cox4 Author Orcid Image ;   Erum Masood3 Author Orcid Image ;   Scott Horban3 Author Orcid Image ;   Esmond Urwin4 Author Orcid Image ;   Jillian Beggs5 Author Orcid Image ;   Antony Chuter5 Author Orcid Image ;   Gerry Reilly2 Author Orcid Image ;   Andrew Morris2 Author Orcid Image ;   David Seymour2 Author Orcid Image ;   Susan Hopkins6 Author Orcid Image ;   Aziz Sheikh7 Author Orcid Image ;   Philip Quinlan4 Author Orcid Image
Article Authors Cited by (3) Tweetations (2) Metrics

Journals

  1. Bienzeisler J, Kombeiz A, Ehrentreich S, Otto R, Schirrmeister W, Pegoraro M, Brammen D, Puladi B, Röhrig R, W Majeed R. Implementation report on pioneering federated data access for the German National Emergency Department Data Registry. npj Digital Medicine 2025;8(1) View
  2. Crowe S, Pagel C, Ramnarayan P, Taylor J. Health research in England is grinding to a halt. BMJ 2025;390:r1386 View
  3. Nakayama L, Matos J, Ainomugisha B, Baryashaba A, Gallifant J, Han A, Kaggwa F, Lee E, Mwavu R, Restrepo D, Soomlek C, Suresha D, Wasswa W, Celi L. A scoping review of ethical data sharing in critical care: A global framework for distributed Trusted Research Environments. Journal of Translational Critical Care Medicine 2025;7(4) View