This paper is in the following e-collection/theme issue:

Viewpoints and Perspectives (551) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1744) Participatory Medicine & E-Patients (820)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/44660, first published .
Listening to Patients With Lupus: Why Not Proactively Integrate the Internet as a Resource to Drive Improved Care?

Listening to Patients With Lupus: Why Not Proactively Integrate the Internet as a Resource to Drive Improved Care?

Listening to Patients With Lupus: Why Not Proactively Integrate the Internet as a Resource to Drive Improved Care?

Authors of this article:

Caroline A Blackie1 Author Orcid Image ;   Lisa Gualtieri2 Author Orcid Image ;   Shanthini Kasturi3 Author Orcid Image
Article Authors Cited by (7) Tweetations (10) Metrics

Journals

  1. Cheng C, Espanha R. Social support and audience engagement of lupus-related posts on social networking sites in China. Heliyon 2024;10(11):e31754 View
  2. Madrid-García A, Merino-Barbancho B, Freites-Núñez D, Rodríguez-Rodríguez L, Menasalvas-Ruíz E, Rodríguez-González A, Peñas A. From Web to RheumaLpack: Creating a Linguistic Corpus for Exploitation and Knowledge Discovery in Rheumatology. Computers in Biology and Medicine 2024;179:108920 View
  3. Lu M, Liu M, Zhan K, Chen Y, Liu X. Dynamic analysis of the relationship between systemic lupus erythematosus disease activity and psychosocial support. Frontiers in Psychology 2024;15 View
  4. Essouma M, Noubiap J. Lupus and other autoimmune diseases: Epidemiology in the population of African ancestry and diagnostic and management challenges in Africa. Journal of Allergy and Clinical Immunology: Global 2024;3(4):100288 View
  5. Jung S, Park S, Lee J, Park Y, Shim S. Understanding patient perspectives on health-related searches on the internet: Insights from an online survey of Korean patients with systemic lupus erythematosus. Lupus 2025;34(1):39 View
  6. Cardwell F, Elliott S, Barber M, Cheema K, George S, Boucher A, Clarke A. Investigating how patients with lupus nephritis access and trust health information: Results from a Canadian survey of patients with lupus nephritis. Lupus 2025;34(2):217 View
  7. Kobza A, Cardwell F, Elliott S, Gibson P, Soliman N, Skeith L, Clarke A, Barber M. Patients with antiphospholipid antibodies preferentially seek health information from physicians: a cross-sectional online patient quantitative survey. Rheumatology International 2025;45(2) View