Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial

Alison Keogh   ^{1, 2} , BSc, MSc, PhD ;   Ríona Mc Ardle   ³ , PhD ;   Mara Gabriela Diaconu   ⁴ , MSc ;   Nadir Ammour   ⁵ , PhD ;   Valdo Arnera   ⁶ , MD ;   Federica Balzani   ⁷ , MSc ;   Gavin Brittain   ^{8, 9} , MD ;   Ellen Buckley   ^{10, 11} , PhD ;   Sara Buttery   ¹² , BSc ;   Alma Cantu   ¹³ , PhD ;   Solange Corriol-Rohou   ¹⁴ , PhD ;   Laura Delgado-Ortiz   ^{15, 16, 17} , MSc ;   Jacques Duysens   ⁷ , PhD ;   Tom Forman-Hardy   ⁷ , BA ;   Tova Gur-Arieh   ⁷ , BA ;   Dominique Hamerlijnck   ⁷ , MBA ;   John Linnell   ⁷ , BA ;   Letizia Leocani   ¹⁸ , MD, PhD ;   Tom McQuillan   ⁷ ;   Isabel Neatrour   ³ , MSc ;   Ashley Polhemus   ¹⁹ , PhD ;   Werner Remmele   ⁷ , DipHE ;   Isabel Saraiva   ⁷ , BA ;   Kirsty Scott   ^{10, 11} , PhD ;   Norman Sutton   ⁷ ;   Koen van den Brande   ⁷ , BSc ;   Beatrix Vereijken   ⁴ , PhD ;   Martin Wohlrab   ^{20, 21} , MSc ;   Lynn Rochester   ^{3, 22} , PhD ;   Mobilise-D consortium   ²³

¹ Insight Centre Data Analytics, University College Dublin, Dublin4, Ireland

² School of Medicine, Trinity College Dublin, Dublin2, Ireland

³ Translational and Clinical Research Institute, Faculty of Medical Sciences, Newcastle University, Newcastle, United Kingdom

⁴ Department of Neuromedicine and Movement Science, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway

⁵ Clinical Science and Operations, Global Development, Sanofi Research & Development, Chilly-Mazarin, France

⁶ Clario, Clario Holdings Inc, Geneva, Switzerland

⁷ Mobilise-D Patient and Public Advisory Group, Newcastle, United Kingdom

⁸ Department of Clinical Neurology, Sheffield Teaching Hospitals National Health Service, Foundation Trust, Sheffield, United Kingdom

⁹ Sheffield Institute for Translational Neuroscience, The University of Sheffield, Sheffield, United Kingdom

¹⁰ Department of Mechanical Engineering, University of Sheffield, Sheffield, United Kingdom

¹¹ Insigneo Institute for in Silico Medicine, University of Sheffield, Sheffield, United Kingdom

¹² National Heart and Lung Institute, Imperial College London, London, United Kingdom

¹³ School of Computer Science, Newcastle University, Newcastle, United Kingdom

¹⁴ AstraZeneca Research and Development, Global Regulatory Excellence, Paris, France

¹⁵ Non-Communicable Diseases and Environment Programme, ISGlobal, Barcelona, Spain

¹⁶ Department of Medicine and Life Sciences, Universitat Pompeu Fabra, Barcelona, Spain

¹⁷ Centro de Investigación Biomedical en Red Epidemiologia y Salud Publica, Barcelona, Spain

¹⁸ Department of Neurology, San Raffele University, Milan, Italy

¹⁹ Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland

²⁰ Dr. Margarete Fischer-Bosch-Institute of Clinical Pharmacology, Stuttgart, Germany

²¹ University of Tuebingen, Tuebingen, Germany

²² Newcastle Upon Tyne Hospitals National Health Service Foundation Trust, Newcastle, United Kingdom

²³ See Acknowledgements, Newcastle, United Kingdom