Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/44206, first published .
Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial

Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial

Mobilizing Patient and Public Involvement in the Development of Real-World Digital Technology Solutions: Tutorial

Alison Keogh   1, 2 , BSc, MSc, PhD ;   Ríona Mc Ardle   3 , PhD ;   Mara Gabriela Diaconu   4 , MSc ;   Nadir Ammour   5 , PhD ;   Valdo Arnera   6 , MD ;   Federica Balzani   7 , MSc ;   Gavin Brittain   8, 9 , MD ;   Ellen Buckley   10, 11 , PhD ;   Sara Buttery   12 , BSc ;   Alma Cantu   13 , PhD ;   Solange Corriol-Rohou   14 , PhD ;   Laura Delgado-Ortiz   15, 16, 17 , MSc ;   Jacques Duysens   7 , PhD ;   Tom Forman-Hardy   7 , BA ;   Tova Gur-Arieh   7 , BA ;   Dominique Hamerlijnck   7 , MBA ;   John Linnell   7 , BA ;   Letizia Leocani   18 , MD, PhD ;   Tom McQuillan   7 ;   Isabel Neatrour   3 , MSc ;   Ashley Polhemus   19 , PhD ;   Werner Remmele   7 , DipHE ;   Isabel Saraiva   7 , BA ;   Kirsty Scott   10, 11 , PhD ;   Norman Sutton   7 ;   Koen van den Brande   7 , BSc ;   Beatrix Vereijken   4 , PhD ;   Martin Wohlrab   20, 21 , MSc ;   Lynn Rochester   3, 22 , PhD ;   Mobilise-D consortium   23

1 Insight Centre Data Analytics, University College Dublin, Dublin4, Ireland

2 School of Medicine, Trinity College Dublin, Dublin2, Ireland

3 Translational and Clinical Research Institute, Faculty of Medical Sciences, Newcastle University, Newcastle, United Kingdom

4 Department of Neuromedicine and Movement Science, Faculty of Medicine and Health Sciences, Norwegian University of Science and Technology, Trondheim, Norway

5 Clinical Science and Operations, Global Development, Sanofi Research & Development, Chilly-Mazarin, France

6 Clario, Clario Holdings Inc, Geneva, Switzerland

7 Mobilise-D Patient and Public Advisory Group, Newcastle, United Kingdom

8 Department of Clinical Neurology, Sheffield Teaching Hospitals National Health Service, Foundation Trust, Sheffield, United Kingdom

9 Sheffield Institute for Translational Neuroscience, The University of Sheffield, Sheffield, United Kingdom

10 Department of Mechanical Engineering, University of Sheffield, Sheffield, United Kingdom

11 Insigneo Institute for in Silico Medicine, University of Sheffield, Sheffield, United Kingdom

12 National Heart and Lung Institute, Imperial College London, London, United Kingdom

13 School of Computer Science, Newcastle University, Newcastle, United Kingdom

14 AstraZeneca Research and Development, Global Regulatory Excellence, Paris, France

15 Non-Communicable Diseases and Environment Programme, ISGlobal, Barcelona, Spain

16 Department of Medicine and Life Sciences, Universitat Pompeu Fabra, Barcelona, Spain

17 Centro de Investigación Biomedical en Red Epidemiologia y Salud Publica, Barcelona, Spain

18 Department of Neurology, San Raffele University, Milan, Italy

19 Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Zurich, Switzerland

20 Dr. Margarete Fischer-Bosch-Institute of Clinical Pharmacology, Stuttgart, Germany

21 University of Tuebingen, Tuebingen, Germany

22 Newcastle Upon Tyne Hospitals National Health Service Foundation Trust, Newcastle, United Kingdom

23 See Acknowledgements, Newcastle, United Kingdom

Corresponding Author:

  • Alison Keogh, BSc, MSc, PhD
  • Insight Centre Data Analytics
  • University College Dublin
  • Beech Hill
  • Dublin4, D04 P7W1
  • Ireland
  • Phone: 353 1 716 7777
  • Email: Alison.keogh@tcd.ie