This paper is in the following e-collection/theme issue:

Theme Issue: The New Digital Normal in Health and Medicine (40) Ethics, Privacy, and Legal Issues (617)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/41095, first published .
Commitments for Ethically Responsible Sourcing, Use, and Reuse of Patient Data in the Digital Age: Cocreation Process

Commitments for Ethically Responsible Sourcing, Use, and Reuse of Patient Data in the Digital Age: Cocreation Process

Commitments for Ethically Responsible Sourcing, Use, and Reuse of Patient Data in the Digital Age: Cocreation Process

Authors of this article:

Sally Okun1 Author Orcid Image ;   Morgan Hanger1 Author Orcid Image ;   Letitia Browne-James2 Author Orcid Image ;   Tara Montgomery3 Author Orcid Image ;   Gary Rafaloff4 Author Orcid Image ;   Johannes JM van Delden5 Author Orcid Image
Article Authors Cited by (8) Tweetations (12) Metrics

Journals

  1. Guan H, Zhao S, Li J, Wang Y, Niu P, Zhang Y, Zhang Y, Fang X, Miao R, Tian J. Exploring the design of clinical research studies on the efficacy mechanisms in type 2 diabetes mellitus. Frontiers in Endocrinology 2024;15 View
  2. Moulaei K, Akhlaghpour S, Fatehi F. Patient consent for the secondary use of health data in artificial intelligence (AI) models: A scoping review. International Journal of Medical Informatics 2025;198:105872 View
  3. Siermann M, Mohan R, Bunnik E, Cambon-Thomsen A, Chadwick R, Cornel M, van Delden J, Joly Y, Molnár-Gábor F, Nicolás Jiménez M, Pinxten W, Rial-Sebbag E, Shabani M, Van Steijvoort E, Wallace S, Zawati M, Knoppers B, Borry P. Emerging and evolving values in the changing landscape of genomics. Frontiers in Genetics 2025;16 View
  4. Alves B, Alhussein G, Riggare S, Duncan T, Saad A, Lyreskog D, Chatzichristos C, Gerasimou I, Hadjidimitriou S, Hadjileontiadis L, B Dias S. Stakeholder Perspectives on Trustworthy AI for Parkinson Disease Management Using a Cocreation Approach: Qualitative Exploratory Study. Journal of Medical Internet Research 2025;27:e73710 View
  5. Lane J, Barber B, Pennell C, Lane K, White M, Doucette N. There’s no app for that! perspectives on engaging diverse communities to promote equitable care. DIGITAL HEALTH 2025;11 View
  6. Kalbande D, Subaveerapandiyan A, Ahmad N, Shimray S. Ethical readiness and awareness of data reuse among LIS professionals. The Electronic Library 2025 View
  7. Satia R. Restoring Public Trust through Ethical Leadership and Accountability Frameworks in Governance. Politeia : Journal of Public Administration and Political Science and International Relations 2024;2(3):1 View

Books/Policy Documents

  1. Calado S, Veloso C. Empowering Value Co-Creation in the Digital Era. View