Patient Design: The Importance of Including Patients in Designing Health Care

Journals

1. Fischer A, Elbeji A, Aguayo G, Fagherazzi G. Recommendations for Successful Implementation of the Use of Vocal Biomarkers for Remote Monitoring of COVID-19 and Long COVID in Clinical Practice and Research. Interactive Journal of Medical Research 2022;11(2):e40655 View
2. Suijker J, Stoop M, Meij-de Vries A, Pijpe A, Boekelaar A, Egberts M, Van Loey N. The impact of necrotizing soft tissue infections on the lives of survivors: a qualitative study. Quality of Life Research 2023;32(7):2013 View
3. Hanchard M. Issue-networks as omitted publics in the construction of #rarediseaseday discourse. Wellcome Open Research 2022;7:276 View
4. Mendieta C, de Vries E, Calvache J, Ahmedzai S, Prue G, McConnell T, Reid J. Co-Designing a Strategy for Implementing the SPARC Holistic Needs Assessment Tool in the Colombian Clinical Context. Healthcare 2023;11(22):2917 View
5. Těšinová J, Dobiášová K, Dušek Z, Tobiášová A. Development of telemedicine in the Czech Republic from patients’ and other key stakeholders’ perspective. Frontiers in Public Health 2023;11 View
6. Dahlberg M, Lek M, Malmqvist Castillo M, Bylund A, Hasson H, Riggare S, Reinius M, Wannheden C. Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review. BMJ Open 2023;13(6):e071363 View
7. Sittig D, Boxwala A, Wright A, Zott C, Desai P, Dhopeshwarkar R, Swiger J, Lomotan E, Dobes A, Dullabh P. A lifecycle framework illustrates eight stages necessary for realizing the benefits of patient-centered clinical decision support. Journal of the American Medical Informatics Association 2023;30(9):1583 View
8. Jahre L, Lortz J, Rassaf T, Rammos C, Mallien C, Skoda E, Teufel M, Bäuerle A. Needs and demands for mHealth cardiac health promotion among individuals with cardiac diseases: a patient-centred design approach. European Heart Journal - Digital Health 2023;4(5):393 View
9. Srivastava U, Dasari S, Shah N. Learnings in Digital Health Design: Insights From a Pilot Web App for Structured Note-Taking for Patients With Rheumatoid Arthritis. JMIR Formative Research 2023;7:e49358 View
10. Zilber S, Woleben K, Johnson S, de Souza C, Boyce D, Freiert K, Boggs C, Messahel S, Burnworth M, Afolabi T, Kayani S. Leigh syndrome global patient registry: uniting patients and researchers worldwide. Orphanet Journal of Rare Diseases 2023;18(1) View
11. Pillai M, Griffin A, Kronk C, McCall T. Toward Community-Based Natural Language Processing (CBNLP): Cocreating With Communities. Journal of Medical Internet Research 2023;25:e48498 View
12. Zhu Y, Li S, Zhang R, Bao L, Zhang J, Xiao X, Jiang D, Chen W, Hu C, Zou C, Zhang J, Zhu Y, Wang J, Liang J, Yang Q. Enhancing doctor-patient relationships in community health care institutions: the Patient Oriented Four Habits Model (POFHM) trial—a stepped wedge cluster randomized trial protocol. BMC Psychiatry 2023;23(1) View
13. Meskó B, Topol E. The imperative for regulatory oversight of large language models (or generative AI) in healthcare. npj Digital Medicine 2023;6(1) View
14. Wannheden C, Riggare S, Luckhaus J, Jansson H, Sjunnestrand M, Stenfors T, Savage C, Reinius M, Hasson H. A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research. Health Expectations 2023;26(4):1757 View
15. Blanchard M, Koller C, Azevedo P, Prétat T, Hügle T. Development of a Management App for Postviral Fibromyalgia-Like Symptoms: Patient Preference-Guided Approach. JMIR Formative Research 2024;8:e50832 View
16. Humphrey G, Keane C, Gharibans A, Andrews C, Benitez A, Mousa H, O'Grady G. Designing, Developing, and Validating a Set of Standardized Pictograms to Support Pediatric-Reported Gastroduodenal Symptoms. The Journal of Pediatrics 2024;267:113922 View
17. Lokmic-Tomkins Z, Borda A, Skouteris H. Climate conscious health equity is essential to achieve climate-resilient digital healthcare. The Journal of Climate Change and Health 2024;16:100301 View
18. Shiralkar P, Bakare P, Woleben K, Zilber S. Interoperability of Leigh Syndrome Patient Registry Data with Regulatory Submission Standards. Journal of the Society for Clinical Data Management 2024;4(1) View
19. Kocol D, Geiger S, Schweda A, Beckord J, Schadendorf T, Jansen C, Robitzsch A, Skoda E, Teufel M, Bäuerle A. An e-mental health intervention to reduce depression symptoms in individuals with obesity: study protocol for the randomized, controlled, two-armed, confirmatory LightMood trial. Trials 2024;25(1) View
20. Anastasi J, Capili B, Norton M, McMahon D, Marder K. Recruitment and retention of clinical trial participants: understanding motivations of patients with chronic pain and other populations. Frontiers in Pain Research 2024;4 View
21. Preston S, Strudwick R, Cox W. Medical Image sharing: What do the public see when reviewing radiographs? A pilot study. Journal of Medical Imaging and Radiation Sciences 2024;55(3):101423 View
22. Thorburn K, Waks S, Aadam B, Fisher K, Spooner C, Harris M. Creating the conditions for collaborative decision-making in co-design. CoDesign 2024:1 View
23. Giannitrapani K, Lin K, Hafi L, Maheta B, Isenberg S. Codesign Use in Palliative Care Intervention Development: A Systematic Review. Journal of Pain and Symptom Management 2024 View
24. Maaß L, Hrynyschyn R, Lange M, Löwe A, Burdenski K, Butten K, Vorberg S, Hachem M, Gorga A, Grieco V, Restivo V, Vella G, Varnfield M, Holl F. Challenges and alternatives to evaluation methods and regulation approaches of medical apps as mobile medical devices: An international and multidisciplinary focus group discussion (Preprint). Journal of Medical Internet Research 2023 View