This paper is in the following e-collection/theme issue:

Viewpoints and Perspectives (514) Participatory Medicine & E-Patients (773) Participatory Design and Participatory Research (329)

Published on in Vol 24, No 8 (2022): August

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/39178, first published .
Patient Design: The Importance of Including Patients in Designing Health Care

Patient Design: The Importance of Including Patients in Designing Health Care

Patient Design: The Importance of Including Patients in Designing Health Care

Authors of this article:

Bertalan Meskó1, 2 Author Orcid Image ;   Dave deBronkart3, 4 Author Orcid Image
Article Authors Cited by (29) Tweetations (133) Metrics Author Video

Journals

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  10. Zilber S, Woleben K, Johnson S, de Souza C, Boyce D, Freiert K, Boggs C, Messahel S, Burnworth M, Afolabi T, Kayani S. Leigh syndrome global patient registry: uniting patients and researchers worldwide. Orphanet Journal of Rare Diseases 2023;18(1) View
  11. Pillai M, Griffin A, Kronk C, McCall T. Toward Community-Based Natural Language Processing (CBNLP): Cocreating With Communities. Journal of Medical Internet Research 2023;25:e48498 View
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  13. Meskó B, Topol E. The imperative for regulatory oversight of large language models (or generative AI) in healthcare. npj Digital Medicine 2023;6(1) View
  14. Wannheden C, Riggare S, Luckhaus J, Jansson H, Sjunnestrand M, Stenfors T, Savage C, Reinius M, Hasson H. A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research. Health Expectations 2023;26(4):1757 View
  15. Blanchard M, Koller C, Azevedo P, Prétat T, Hügle T. Development of a Management App for Postviral Fibromyalgia-Like Symptoms: Patient Preference-Guided Approach. JMIR Formative Research 2024;8:e50832 View
  16. Humphrey G, Keane C, Gharibans A, Andrews C, Benitez A, Mousa H, O'Grady G. Designing, Developing, and Validating a Set of Standardized Pictograms to Support Pediatric-Reported Gastroduodenal Symptoms. The Journal of Pediatrics 2024;267:113922 View
  17. Lokmic-Tomkins Z, Borda A, Skouteris H. Climate conscious health equity is essential to achieve climate-resilient digital healthcare. The Journal of Climate Change and Health 2024;16:100301 View
  18. Shiralkar P, Bakare P, Woleben K, Zilber S. Interoperability of Leigh Syndrome Patient Registry Data with Regulatory Submission Standards. Journal of the Society for Clinical Data Management 2024;4(1) View
  19. Kocol D, Geiger S, Schweda A, Beckord J, Schadendorf T, Jansen C, Robitzsch A, Skoda E, Teufel M, Bäuerle A. An e-mental health intervention to reduce depression symptoms in individuals with obesity: study protocol for the randomized, controlled, two-armed, confirmatory LightMood trial. Trials 2024;25(1) View
  20. Anastasi J, Capili B, Norton M, McMahon D, Marder K. Recruitment and retention of clinical trial participants: understanding motivations of patients with chronic pain and other populations. Frontiers in Pain Research 2024;4 View
  21. Preston S, Strudwick R, Cox W. Medical Image sharing: What do the public see when reviewing radiographs? A pilot study. Journal of Medical Imaging and Radiation Sciences 2024;55(3):101423 View
  22. Thorburn K, Waks S, Aadam B, Fisher K, Spooner C, Harris M. Creating the conditions for collaborative decision-making in co-design. CoDesign 2024:1 View
  23. Giannitrapani K, Lin K, Hafi L, Maheta B, Isenberg S. Codesign Use in Palliative Care Intervention Development: A Systematic Review. Journal of Pain and Symptom Management 2024;68(4):e235 View
  24. Maaß L, Hrynyschyn R, Lange M, Löwe A, Burdenski K, Butten K, Vorberg S, Hachem M, Gorga A, Grieco V, Restivo V, Vella G, Varnfield M, Holl F. Challenges and Alternatives to Evaluation Methods and Regulation Approaches for Medical Apps as Mobile Medical Devices: International and Multidisciplinary Focus Group Discussion. Journal of Medical Internet Research 2024;26:e54814 View
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  26. Blasiak A, Tan L, Chong L, Tadeo X, Truong A, Senthil Kumar K, Sapanel Y, Poon M, Sundar R, de Mel S, Ho D. Personalized dose selection for the first Waldenström macroglobulinemia patient on the PRECISE CURATE.AI trial. npj Digital Medicine 2024;7(1) View
  27. Chen Z, Zhang M, Zhang X, Liu C, Wang H. Understanding the User Experience of Lumbar-Support-Assistive Devices in Lower-Back Pain Patients: Design Recommendations. Applied Sciences 2024;14(17):7495 View
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  29. Al Khatib H, Neupane S, Kumar Manchukonda H, Golilarz N, Mittal S, Amirlatifi A, Rahimi S. Patient-centric knowledge graphs: a survey of current methods, challenges, and applications. Frontiers in Artificial Intelligence 2024;7 View