This paper is in the following e-collection/theme issue:

Recruitment of Research Participants (377) Ethics, Privacy, and Legal Issues (617)

Published on in Vol 24, No 5 (2022): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/31231, first published .
Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework

Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework

Ethical Issues in Social Media Recruitment for Clinical Studies: Ethical Analysis and Framework

Authors of this article:

Bettina M Zimmermann1, 2 Author Orcid Image ;   Theresa Willem1, 3 Author Orcid Image ;   Carl Justus Bredthauer1 Author Orcid Image ;   Alena Buyx1 Author Orcid Image
Article Authors Cited by (20) Tweetations (7) Metrics

Journals

  1. Goldman N, Willem T, Buyx A, Zimmermann B. Practical Benefits, Challenges, and Recommendations on Social Media Recruitment: Multi-Stakeholder Interview Study. Journal of Medical Internet Research 2023;25:e44587 View
  2. Morgan G, Subbiah V. Rare disease research powered by empowered patients: solving the zebra puzzle through social media. Cancer 2023;129(14):2128 View
  3. Jones K, Wilson-Keates B, Melrose S. Using social media to recruit research participants: a literature review. Nurse Researcher 2024;32(1):28 View
  4. Suffoletto B, Lee C, Mason M. A text message intervention aimed at nurturing peer outreach to help meet drinking limit goals: A remote pilot randomized trial in non-collegiate young adults. Addictive Behaviors 2024;154:108020 View
  5. Willem T, Zimmermann B, Matthes N, Rost M, Buyx A. Acceptance of Social Media Recruitment for Clinical Studies Among Patients With Hepatitis B: Mixed Methods Study. Journal of Medical Internet Research 2024;26:e54034 View
  6. Hrincu V, Roy K, Robillard J. Practical social media recommendations for dementia prevention researchers. Alzheimer's & Dementia: Translational Research & Clinical Interventions 2024;10(3) View
  7. Matthes N, Willem T, Buyx A, Zimmermann B. Social Media Recruitment as a Potential Trigger for Vulnerability: Multistakeholder Interview Study. JMIR Human Factors 2024;11:e52448 View
  8. O’Connor C, O’Leary H, Murray D, Boylan G. “Infantgram?” recruitment of infants to a clinical sleep study via social media. Sleep Advances 2024;5(1) View
  9. Wurz A, McLaughlin E, Culos-Reed S. Response to letter regarding “Experiences of young adults affected by cancer within an 8-week yoga intervention delivered by videoconference: a qualitative interview study”. Annals of Medicine 2025;57(1) View
  10. Hrincu V, Zaleski G, Robillard J. Ethical Considerations at the Intersection of Social Media and Dementia Prevention Research. The Journal of Prevention of Alzheimer's Disease 2024;11(2):274 View
  11. Sameen T. The Role of Ethical Marketing Issues in Consumer-Brand Relationships in the Context of Social Media Marketing. European Journal of Business and Management Research 2025;10(1):108 View
  12. Bak M, Hartman L, Graafland C, Korfage I, Buyx A, Schermer M. Ethical Design of Data-Driven Decision Support Tools for Improving Cancer Care: Embedded Ethics Review of the 4D PICTURE Project. JMIR Cancer 2025;11:e65566 View
  13. Lawrence M, Davis B, Clark N, Booth J, Donald G, Dougall N, Fenocchi L, Grealy M, Jamieson M, Jani B, Kontou E, MacDonald J, Mason H, Maxwell M, Parkinson B, Pieri M, Wang X, Mercer S. A Pilot Randomized Controlled Trial Testing the Feasibility and Acceptability of Helping Ease Anxiety and Depression after Stroke (HEADS: UP): An Online Mindfulness-Based Intervention for Stroke Survivors. Mindfulness 2025;16(7):1862 View
  14. Jacobs D, Duffy J, Lerner B, Lerner M. Health-Related Quality of Life Metrics in Patients With Retrograde Cricopharyngeus Dysfunction. Annals of Otology, Rhinology & Laryngology 2025;134(9):663 View
  15. Milbourn H, Campbell A, Clark F, Darrah E, Flaig R, Kirby L, McCartney D, Mitchell I, Robertson S, Richmond A, Tatham R, Xiao Z, McAteer K, Hayward C, Marioni R, McIntosh A, Porteous D, Whalley H, Sudlow C. Effectiveness and Costs of Participant Recruitment Strategies to a Web-Based Population Cohort: Observational Study. Journal of Medical Internet Research 2025;27:e75116 View
  16. Coffin T. Social Media in the Human Subjects Research Setting: Ethical Considerations (Preprint). Journal of Medical Internet Research 2025 View
  17. Dallison S, Munir S, Chubb E, Padley H, Fung H, Desrochers D, Loades M. How have contemporary research studies used social media to recruit to digital self-help intervention research for young people’s mental health?: a mapping review. BMC Medical Research Methodology 2025;25(1) View
  18. Loh I, Miller T, Aggarwal R, Richmond T. Improving Representation of Underserved Populations in Cardiovascular Research. Journal of the American Heart Association 2025;14(18) View
  19. Litke N, Wensing M, Hermeling L, Bombana M. Quantitative evaluation of recruitment strategies in a cluster-randomized trial: segmented regression and cost analysis from the AOK-Family + study. BMC Medical Research Methodology 2025;25(1) View

Books/Policy Documents

  1. Koß J. Handbuch Digitale Gesundheitswirtschaft. View