This paper is in the following e-collection/theme issue:

Digital Health Reviews (1331) Participatory Medicine & E-Patients (787) Peer-to-Peer Support and Online Communities (652)

Published on in Vol 23, No 2 (2021): February

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/19910, first published .
Online Communities as a Driver for Patient Empowerment: Systematic Review

Online Communities as a Driver for Patient Empowerment: Systematic Review

Online Communities as a Driver for Patient Empowerment: Systematic Review

Authors of this article:

Victoria Johansson1 Author Orcid Image ;   Anna Sigridur Islind1, 2 Author Orcid Image ;   Tomas Lindroth1, 3 Author Orcid Image ;   Eva Angenete4, 5 Author Orcid Image ;   Martin Gellerstedt1, 6 Author Orcid Image
Article Authors Cited by (52) Tweetations (24) Metrics

Journals

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  4. François J, Audrain‐Pontevia A, Menvielle L, Chevalier N. Empowering health care consumers in the era of Internet of Things. International Journal of Consumer Studies 2023;47(3):1060 View
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  8. Cuzco C, Torres-Castro R, Torralba Y, Manzanares I, Muñoz-Rey P, Romero-García M, Martínez-Momblan M, Martínez-Estalella G, Delgado-Hito P, Castro P. Nursing Interventions for Patient Empowerment during Intensive Care Unit Discharge: A Systematic Review. International Journal of Environmental Research and Public Health 2021;18(21):11049 View
  9. Lin J, Shorey S. Online peer support communities in the infertility journey: A systematic mixed-studies review. International Journal of Nursing Studies 2023;140:104454 View
  10. Smit D, Vrijsen J, Broekman T, Groeneweg B, Spijker J. User Engagement Within an Online Peer Support Community (Depression Connect) and Recovery-Related Changes in Empowerment: Longitudinal User Survey. JMIR Formative Research 2022;6(11):e39912 View
  11. Thomas T, Go K, Go K, McKinley N, Dougherty K, You K, Lee Y. Empowerment through technology: A systematic evaluation of the content and quality of mobile applications to empower individuals with cancer. International Journal of Medical Informatics 2022;163:104782 View
  12. Bernardi R, Wu P. Online health communities and the patient-doctor relationship: An institutional logics perspective. Social Science & Medicine 2022;314:115494 View
  13. Nguyen B, Perez A, Mesinkovska N, Tosti A. Characterizing and assessing the reliability of TikTok's most viewed alopecia‐related videos. Journal of the European Academy of Dermatology and Venereology 2023;37(1) View
  14. Bizzotto N, Marciano L, de Bruijn G, Schulz P. The Empowering Role of Web-Based Help Seeking on Depressive Symptoms: Systematic Review and Meta-analysis. Journal of Medical Internet Research 2023;25:e36964 View
  15. Chu H, Jang H. Exploring Unmet Information Needs of People with Parkinson’s Disease and Their Families: Focusing on Information Sharing in an Online Patient Community. International Journal of Environmental Research and Public Health 2022;19(5):2521 View
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  17. Ziegler E, Hill J, Lieske B, Klein J, dem O, Kofahl C. Empowerment in cancer patients: Does peer support make a difference? A systematic review. Psycho-Oncology 2022;31(5):683 View
  18. Kastora S, Karakatsanis A, Masannat Y. Comprehending the impact of #Breastcancer, #Breastsurgery and related hashtags on Twitter: A content and social network cross-sectional analysis #Breastcancer#Breastsurgery. European Journal of Surgical Oncology 2023;49(4):716 View
  19. Merchant R, Goldin A, Manjanatha D, Harter C, Chandler J, Lipp A, Nguyen T, Naslund J. Opportunities to expand access to mental health services: A case for the role of online peer support communities. Psychiatric Quarterly 2022;93(2):613 View
  20. Guerrot D, de Nattes T, Lanot A, Hazzan M. La néphrologie 2.0 : communication avec les patients connectés et les professionnels de santé. Néphrologie & Thérapeutique 2022;18(4):222 View
  21. Abdelraheem O, Sami D, Salama M. Online Health Communities: an alternative feasible data registry tool for developing countries. Health Research Policy and Systems 2023;21(1) View
  22. GÜRDAP Z, CENGİZ Z. Sağlık Bakım Sisteminde Hastayı Güçlendirme: Fırsatlar ve Zorluklar. Artuklu International Journal of Health Sciences 2023;3(1):74 View
  23. Liu J, Zeng Y. A Study of Factors Influencing the Volume of Responses to Posts in Physician Online Community. Healthcare 2023;11(9):1275 View
  24. Neely S, Hao F. Diagnosis Disclosure and Peer-to-Peer Information Seeking Among COVID-19–Infected Social Media Users: Survey of US-Based Adults. JMIR Formative Research 2023;7:e48581 View
  25. HOSGÖREN Y, TÖRENLİ KAYA Z, ÖZÇÜRÜMEZ G. Genç Erişkinlerle Yapılan Çevrim İçi Destek Gruplarında Anksiyete Kaynaklarına Yönelik Temalar. AYNA Klinik Psikoloji Dergisi 2023;10(1):101 View
  26. Gandamihardja T, Liyanage S, Coutee T, Peled A, Masannat Y. The Role of Social Media and Breast Cancer: How Does It Impact Patients?. Breast Care 2023;18(3):203 View
  27. Nickel P, Loosman I, Frank L, Vinnikova A. Justice and Empowerment Through Digital Health: Ethical Challenges and Opportunities. Digital Society 2023;2(3) View
  28. Sultan M, Kramberger T, Barakat M, Ali A. Barriers to Applying Last-Mile Logistics in the Egyptian Market: An Extension of the Technology Acceptance Model. Sustainability 2023;15(17):12748 View
  29. Wang Y, Bao S, Chen Y. How does social media use influence the mental health of pancreatic cancer patients: a chain mediating effect of online social support and psychological resilience. Frontiers in Public Health 2023;11 View
  30. Nguyen L, Ngwenyama O, Bandyopadhyay A, Nallaperuma K. Realising the potential of digital health communities: a study of the role of social factors in community engagement. European Journal of Information Systems 2024;33(6):1033 View
  31. August T, Wang L, Bragg J, Hearst M, Head A, Lo K. Paper Plain : Making Medical Research Papers Approachable to Healthcare Consumers with Natural Language Processing. ACM Transactions on Computer-Human Interaction 2023;30(5):1 View
  32. Barkin J, Harb D, Kort J, Barkin J. Real-World Patient Experience With Pancreatic Enzyme Replacement Therapy in the Treatment of Exocrine Pancreatic Insufficiency. Pancreas 2024;53(1):e16 View
  33. Zhai J, Nie J. Is more patient empowerment always better? Examining the moderating role of perceived physician’s argument quality. Human Communication Research 2024;50(3):365 View
  34. Anawade P, Sharma D, Gahane S. Connecting Health and Technology: A Comprehensive Review of Social Media and Online Communities in Healthcare. Cureus 2024 View
  35. Park M, Bui L, Kim J, Kim J, Jung J, Shin O, Na J, Guk H, Jang J, Oh S, Kim D. Developing an Online Health Community Platform for Facilitating Empowerment in Chronic Disease Prevention and Health Promotion. CIN: Computers, Informatics, Nursing 2024 View
  36. Dietrich D, Bornet dit Vorgeat H, Perrin Franck C, Ligier Q. A Mobile App (Concerto) to Empower Hospitalized Patients in a Swiss University Hospital: Development, Design, and Implementation Report. JMIR Medical Informatics 2024;12:e47914 View
  37. Olsson M, Eliasson I, Kautsky S, Hård af Segerstad Y, Nilsson S. Co-creation of a digital platform for peer support in a community of adolescent and young adult patients during and after cancer. European Journal of Oncology Nursing 2024;70:102589 View
  38. Xue J, Deng Z. How patients with chronic disease create value in online health communities? A mixed methods study from social technical perspective. Information Technology and Management 2024 View
  39. Bhugra D, Liebrenz M, Ventriglio A, Ng R, Javed A, Kar A, Chumakov E, Moura H, Tolentino E, Gupta S, Ruiz R, Okasha T, Chisolm M, Castaldelli-Maia J, Torales J, Smith A. World Psychiatric Association-Asian Journal of Psychiatry Commission on Public Mental Health. Asian Journal of Psychiatry 2024;98:104105 View
  40. Di Mattei V, Taranto P, Perego G, Caneva M, Parma M, Fontana E, Candiani M, Montali L. Illness experience and (unmet) needs of women with Mayer-Rokitansky-Küster-Hauser Syndrome (MRKH): a qualitative analysis of an online forum. Psychology & Health 2024:1 View
  41. AbouWarda H, Dolata M, Schwabe G. How Does an Online Mental Health Community on Twitter Empower Diverse Population Levels and Groups? A Qualitative Analysis of #BipolarClub. Journal of Medical Internet Research 2024;26:e55965 View
  42. Tewari S, Misra R, Nagdev K, Sharma H. Role of online health communities in patient compliance: a social support perspective. Journal of Systems and Information Technology 2024;26(4):562 View
  43. Su J, Shen K, Guo X. Impact of Reverse Empowerment and Proactive Motivations on Physicians’ Online Knowledge Sharing in Digital Platforms: Survey Study. Journal of Medical Internet Research 2024;26:e59904 View
  44. Szeto M, Alhanshali L, Rundle C, Adelman M, Hook Sobotka M, Woolhiser E, Wu J, Presley C, Maghfour J, Meisenheimer J, Anderson J, Dellavalle R. Dermatologic Data From the Global Burden of Disease Study 2019 and the PatientsLikeMe Online Support Community: Comparative Analysis. JMIR Dermatology 2024;7:e50449 View
  45. Cano-Ibáñez N, Khan K, Bueno-Cavanillas A. Las voces ignoradas: integración de los pacientes en la toma de decisiones. Medicina de Familia. SEMERGEN 2025;51(3):102416 View

Books/Policy Documents

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