This paper is in the following e-collection/theme issue:

Recruitment of Research Participants (336) Neurology and Neurosciences (212) Chronic Conditions (321) Research Infrastructures and Registries (68) Clinical Informatics (1120) New Methods (1012) Research Instruments, Questionnaires, and Tools (645) eHealth Infrastructures (380)

Published on in Vol 23, No 12 (2021): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/28021, first published .
Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

Authors of this article:

Paul Mehta1 Author Orcid Image ;   Jaime Raymond1 Author Orcid Image ;   Moon Kwon Han1 Author Orcid Image ;   Theodore Larson1 Author Orcid Image ;   James D Berry2 Author Orcid Image ;   Sabrina Paganoni2, 3 Author Orcid Image ;   Hiroshi Mitsumoto4 Author Orcid Image ;   Richard Stanley Bedlack5 Author Orcid Image ;   D Kevin Horton1 Author Orcid Image
Article Authors Cited by (8) Tweetations (3) Metrics

Journals

  1. Rechtman L, Brenner S, Wright M, Ritsick M, Rahman F, Han M, Raymond J, Larson T, Horton D, Mehta P. Impact of the National Amyotrophic Lateral Sclerosis Registry: Analysis of Registry‐funded Research. Annals of Clinical and Translational Neurology 2022;9(11):1692 View
  2. Aderinto N, Muili AbdulBasit O, Afolayan O, Jolayemi M. Current status and future directions of amyotrophic lateral sclerosis research in Africa: a perspective. Annals of Medicine & Surgery 2023;85(6):3204 View
  3. Benussi A, Cantoni V, Grassi M, Libri I, Cotelli M, Tarantino B, Datta A, Thomas C, Huber N, Kärkkäinen S, Herukka S, Haapasalo A, Filosto M, Padovani A, Borroni B. Cortico-spinal tDCS in amyotrophic lateral sclerosis: A randomized, double-blind, sham-controlled trial followed by an open-label phase. Brain Stimulation 2023;16(6):1666 View
  4. Foucher J, Azizi L, Öijerstedt L, Kläppe U, Ingre C. The usage of population and disease registries as pre-screening tools for clinical trials, a systematic review. Systematic Reviews 2024;13(1) View
  5. Han M, Raymond J, Larson T, Mehta P, Horton D. Comparison of Demographics: National Amyotrophic Lateral Sclerosis Registry and Clinical Trials Data. Journal of Racial and Ethnic Health Disparities 2024 View
  6. Ansari U, Wen J, Karabala M, Syed B, Abed I, Razick D, Lui F. Analysis of Respiratory Muscle Strength Training in Amyotrophic Lateral Sclerosis (ALS) Patients: A Systematic Review. Cureus 2025 View
  7. Madhavan S, Deshmukh S, Cummings M, Doshi A, Rezania K, Freels S, Sawa G. Home‐Based Tele‐tDCS in Amyotrophic Lateral Sclerosis: Feasibility, Safety, and Preliminary Efficacy. Annals of Clinical and Translational Neurology 2025 View