Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study

Gloria A Aguayo   ¹ , MD, PhD ;   Catherine Goetzinger   ¹ , MSc ;   Renza Scibilia   ^{2, 3} ;   Aurélie Fischer   ¹ , MSc ;   Till Seuring   ⁴ , PhD ;   Viet-Thi Tran   ^{5, 6} , MD, PhD ;   Philippe Ravaud   ^{5, 6} , MD, PhD ;   Tamás Bereczky   ⁷ , PhD ;   Laetitia Huiart   ¹ , MD, PhD ;   Guy Fagherazzi   ¹ , PhD

¹ Deep Digital Phenotyping Research Unit, Department of Population Health, Luxembourg Institute of Health, Strassen, Luxembourg

² Diabetes Australia, Melbourne, Australia

³ Diabetogenic, Melbourne, Australia

⁴ Luxembourg Institute of Socio-Economic Research, Esch/Alzette, Luxembourg

⁵ Centre of Research in Epidemiology and Statistic Sorbonne Paris Cité, National Institute of Health and Medical Research (INSERM), French National Institute for Agricultural Research (INRA), Université de Paris, Paris, France

⁶ Centre d’Epidémiologie Clinique, Hôpital Hôtel-Dieu, Assistance Publique-Hôpitaux de Paris, Paris, France

⁷ European Patients’ Academy on Therapeutic Innovation, Brussels, Belgium