This paper is in the following e-collection/theme issue:

Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1641) Artificial Intelligence (1371) Peer-to-Peer Support and Online Communities (636) Machine Learning (1465)

Published on in Vol 22, No 9 (2020): September

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/21849, first published .
Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study

Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study

Development of a Social Network for People Without a Diagnosis (RarePairs): Evaluation Study

Authors of this article:

Lara Kühnle1 Author Orcid Image ;   Urs Mücke1 Author Orcid Image ;   Werner M Lechner2 Author Orcid Image ;   Frank Klawonn3, 4 Author Orcid Image ;   Lorenz Grigull5 Author Orcid Image
Article Authors Cited by (7) Tweetations (3) Metrics

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  1. Ivarsson B, Johansson A, Kjellström B. The Odyssey from Symptom to Diagnosis of Pulmonary Hypertension from the Patients and Spouses Perspective. Journal of Primary Care & Community Health 2021;12 View
  2. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View
  3. Bardon C, Guillemette A, Rioux M, Rivard M. Group intervention programs and their impact on well-being and quality-of-life for adults living with a rare or orphan disease – realist review of literature. Disability and Rehabilitation 2023;45(16):2567 View
  4. Long J, Best S, Nic Giolla Easpaig B, Hatem S, Fehlberg Z, Christodoulou J, Braithwaite J. Needs of people with rare diseases that can be supported by electronic resources: a scoping review. BMJ Open 2022;12(9):e060394 View
  5. Cazzaniga A, Plebani M, Crimi M. Genome access and other web-based IT solutions: Genetic counseling in the digital era. Frontiers in Public Health 2022;10 View

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  1. Nielsen E, Owen T, Roach M, Dix A. Artificial Intelligence in Healthcare. View