This paper is in the following e-collection/theme issue:

Human Factors and Usability Case Studies (739) User-centred Design Case Studies (563) Design and Formative Evaluation of Mobile Apps (661) Disabilities (111) Caregiving and Parenting for Chronic Pediatric Diseases (73) Children and Youth with Disabilities (48)

Published on in Vol 22, No 9 (2020): September

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17947, first published .
Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI

Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI

Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI

Authors of this article:

Maia Siedlikowski1 Author Orcid Image ;   Frank Rauch2 Author Orcid Image ;   Argerie Tsimicalis1, 2 Author Orcid Image
Article Authors Cited by (5) Tweetations (8) Metrics

Journals

  1. Siedlikowski M, Curiale L, Rauch F, Tsimicalis A. Experiences of Children With Osteogenesis Imperfecta in the Co-design of the Interactive Assessment and Communication Tool Sisom OI: Secondary Analysis of Qualitative Design Sessions. JMIR Pediatrics and Parenting 2021;4(3):e22784 View
  2. Wang Y, Carnevale F, Chougui K, Tsimicalis A. How Children's participation ought to be practiced: A preliminary ethical framework to optimise the participation of children with osteogenesis imperfecta in health care. Journal of Clinical Nursing 2023;32(11-12):2773 View
  3. Wang Y, Carnevale F, Ezcurra M, Chougui K, Bilodeau C, Siedlikowski S, Tsimicalis A. The moral experiences of children with osteogenesis imperfecta. Nursing Ethics 2022;29(7-8):1773 View
  4. Tsimicalis A, Stinson J, Thorstad K, Rauch F, Hamdy R, Chougui K, Addab S, Palomo T, Bernstein M, Dahan-Oliel N, Veilleux L, Massochin Nunes Pinto L, Passos dos Santos R. The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study. JMIR Research Protocols 2023;12:e47524 View
  5. Flanagan J, Tosi L, Carter E, Hart T, Franzone J, Wallace M. “Osteogenesis Imperfecta Patients Wish Orthopedic Surgeons Had Better Strategies to Help with…”—Results of a Patient and Parent-Oriented Survey. Children 2023;10(8):1345 View