This paper is in the following e-collection/theme issue:

E-Health Policy and Health Systems Innovation (230) Ethics, Privacy, and Legal Issues (479) Policy Paper (16) Natural Language Processing (692) Health Information Governance (19)

Published on in Vol 22, No 6 (2020): June

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/16760, first published .
Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper

Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper

Toward the Development of Data Governance Standards for Using Clinical Free-Text Data in Health Research: Position Paper

Authors of this article:

Kerina H Jones1 Author Orcid Image ;   Elizabeth M Ford2 Author Orcid Image ;   Nathan Lea3 Author Orcid Image ;   Lucy J Griffiths1 Author Orcid Image ;   Lamiece Hassan4 Author Orcid Image ;   Sharon Heys1 Author Orcid Image ;   Emma Squires1 Author Orcid Image ;   Goran Nenadic5 Author Orcid Image
Article Authors Cited by (12) Tweetations (7) Metrics

Journals

  1. Ford E, Sheppard J, Oliver S, Rooney P, Banerjee S, Cassell J. Automated detection of patients with dementia whose symptoms have been identified in primary care but have no formal diagnosis: a retrospective case–control study using electronic primary care records. BMJ Open 2021;11(1):e039248 View
  2. Ford E, Curlewis K, Squires E, Griffiths L, Stewart R, Jones K. The Potential of Research Drawing on Clinical Free Text to Bring Benefits to Patients in the United Kingdom: A Systematic Review of the Literature. Frontiers in Digital Health 2021;3 View
  3. Kirkham E, Crompton C, Iveson M, Beange I, McIntosh A, Fletcher-Watson S. Co-development of a Best Practice Checklist for Mental Health Data Science: A Delphi Study. Frontiers in Psychiatry 2021;12 View
  4. Wu H, Wang M, Wu J, Francis F, Chang Y, Shavick A, Dong H, Poon M, Fitzpatrick N, Levine A, Slater L, Handy A, Karwath A, Gkoutos G, Chelala C, Shah A, Stewart R, Collier N, Alex B, Whiteley W, Sudlow C, Roberts A, Dobson R. A survey on clinical natural language processing in the United Kingdom from 2007 to 2022. npj Digital Medicine 2022;5(1) View
  5. Jalili F, Doroudi F, Famil rouhani A. A Survey of Data Governance Strategies to Provide Effective Information Services in Academic Libraries. Iranian Journal of Information Processing and Management 2021;36(4):1031 View
  6. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002 View
  7. Mercorelli L, Nguyen H, Gartell N, Brookes M, Morris J, Tam C. A framework for de-identification of free-text data in electronic medical records enabling secondary use. Australian Health Review 2022;46(3):289 View
  8. Fitzpatrick N, Dobson R, Roberts A, Jones K, Shah A, Nenadic G, Ford E. Understanding Views Around the Creation of a Consented, Donated Databank of Clinical Free Text to Develop and Train Natural Language Processing Models for Research: Focus Group Interviews With Stakeholders. JMIR Medical Informatics 2023;11:e45534 View
  9. Sedlakova J, Daniore P, Horn Wintsch A, Wolf M, Stanikic M, Haag C, Sieber C, Schneider G, Staub K, Alois Ettlin D, Grübner O, Rinaldi F, von Wyl V, Sarmiento R. Challenges and best practices for digital unstructured data enrichment in health research: A systematic narrative review. PLOS Digital Health 2023;2(10):e0000347 View
  10. Zhao W, Gu D, Yang X, Jia M, Liang C, Wang X, Zolotarev O. MedT2T: An adaptive pointer constrain generating method for a new medical text-to-table task. Future Generation Computer Systems 2024;161:586 View
  11. Bilodeau E, Cumyn A, Ménard J, Barton A, Dault R, Ethier J. Utilisations secondaires des données de santé : impacts de la transparence. Canadian Journal of Bioethics 2024;7(2-3):118 View

Books/Policy Documents

  1. Marwala T. Mechanism Design, Behavioral Science and Artificial Intelligence in International Relations. View