This paper is in the following e-collection/theme issue:

Public (e)Health, Digital Epidemiology and Public Health Informatics (725) Ethics, Privacy, and Legal Issues (479) Secondary Use of Clinical Data for Research and Surveillance (367) Surveillance Systems (462)

Published on in Vol 22, No 6 (2020): June

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/16757, first published .
Privacy-Preserving Record Linkage of Deidentified Records Within a Public Health Surveillance System: Evaluation Study

Privacy-Preserving Record Linkage of Deidentified Records Within a Public Health Surveillance System: Evaluation Study

Privacy-Preserving Record Linkage of Deidentified Records Within a Public Health Surveillance System: Evaluation Study

Authors of this article:

Long Nguyen1 Author Orcid Image ;   Mark Stoové1, 2 Author Orcid Image ;   Douglas Boyle3 Author Orcid Image ;   Denton Callander4, 5 Author Orcid Image ;   Hamish McManus4 Author Orcid Image ;   Jason Asselin1 Author Orcid Image ;   Rebecca Guy4 Author Orcid Image ;   Basil Donovan4, 6 Author Orcid Image ;   Margaret Hellard1, 2, 7, 8 Author Orcid Image ;   Carol El-Hayek1, 2 Author Orcid Image
Article Authors Cited by (27) Tweetations (6) Metrics

Journals

  1. Asher J, Resnick D, Brite J, Brackbill R, Cone J. An Introduction to Probabilistic Record Linkage with a Focus on Linkage Processing for WTC Registries. International Journal of Environmental Research and Public Health 2020;17(18):6937 View
  2. Traeger M, Patel P, Guy R, Hellard M, Stoové M. Changes in HIV preexposure prophylaxis prescribing in Australian clinical services following COVID-19 restrictions. AIDS 2021;35(1):155 View
  3. Thuraisingam S, Dowsey M, Manski-Nankervis J, Spelman T, Choong P, Gunn J, Chondros P. Developing prediction models for total knee replacement surgery in patients with osteoarthritis: Statistical analysis plan. Osteoarthritis and Cartilage Open 2020;2(4):100126 View
  4. Wilkinson A, van Santen D, Traeger M, Sacks-Davis R, Asselin J, Scott N, Harney B, Doyle J, El-Hayek C, Howell J, Bramwell F, McManus H, Donovan B, Stoové M, Hellard M, Pedrana A. Hepatitis C incidence among patients attending primary care health services that specialise in the care of people who inject drugs, Victoria, Australia, 2009 to 2020. International Journal of Drug Policy 2022;103:103655 View
  5. Mirel L, Resnick D, Aram J, Cox C. A methodological assessment of privacy preserving record linkage using survey and administrative data. Statistical Journal of the IAOS 2022;38(2):413 View
  6. Dawe J, Wilkinson A, Asselin J, Carter A, Pedrana A, Traeger M, Thomas A, Curtis M, Cooper M, Howell J, Doyle J, Hellard M, Stoové M. Hepatitis C antibody testing among opioid agonist therapy recipients, Victoria, Australia, 2012 to 2020. International Journal of Drug Policy 2022;104:103696 View
  7. Heron J, McManus H, Vickers T, Ryan K, Wright E, Carter A, Stoove M, Asselin J, Grulich A, Donovan B, Guy R, Varma R, Chen M, Ryder N, Lewis D, Templeton D, O’Connor C, Gracey D, Kim H. Renal impairment associated with tenofovir disoproxil fumarate for antiretroviral therapy and HIV pre-exposure prophylaxis: An observational cohort study. PLOS ONE 2023;18(2):e0280339 View
  8. Bernstam E, Applegate R, Yu A, Chaudhari D, Liu T, Coda A, Leshin J. Real-World Matching Performance of Deidentified Record-Linking Tokens. Applied Clinical Informatics 2022;13(04):865 View
  9. Gkoulalas-Divanis A, Vatsalan D, Karapiperis D, Kantarcioglu M. Modern Privacy-Preserving Record Linkage Techniques: An Overview. IEEE Transactions on Information Forensics and Security 2021;16:4966 View
  10. Traeger M, van Santen D, Sacks‐Davis R, Asselin J, Carter A, Doyle J, Pedrana A, Wilkinson A, Howell J, Thatcher R, Didlick J, Donovan B, Guy R, Hellard M, Stoové M. Impact of COVID‐19 lockdown restrictions on hepatitis C testing in Australian primary care services providing care for people who inject drugs. Journal of Viral Hepatitis 2022;29(10):908 View
  11. Harney B, Sacks-Davis R, van Santen D, Traeger M, Wilkinson A, Asselin J, El-Hayek C, Fairley C, Roth N, Bloch M, Matthews G, Donovan B, Guy R, Stoové M, Hellard M, Doyle J, Bastian L, Bateson D, Bowden S, Boyd M, Callander D, Carter A, Cogle A, Costello J, Dimech W, Dittmer J, Ellard J, Franklin L, Kim J, McGill S, Nolan D, Patel P, Pendle S, Polkinghorne V, Nguyen L, Nguyen T, O’Connor C, Reed P, Ryder N, Selvey C, Vickers T, Walker M, Watchirs-Smith L, West M. The Incidence of Hepatitis C Among Gay, Bisexual, and Other Men Who Have Sex With Men in Australia, 2009–2019. Clinical Infectious Diseases 2022;74(10):1804 View
  12. van Santen D, Asselin J, Haber N, Traeger M, Callander D, Donovan B, El-Hayek C, McMahon J, Petoumenos K, McManus H, Hoy J, Hellard M, Guy R, Stoové M, Carr A, Elliot J, Templeton D, Liaw T, Wilson D. Improvements in transition times through the HIV cascade of care among gay and bisexual men with a new HIV diagnosis in New South Wales and Victoria, Australia (2012–19): a longitudinal cohort study. The Lancet HIV 2021;8(10):e623 View
  13. Hu Y, Fedyukova A, Wang J, Said J, Thomas N, Noble E, Cheong J, Karanatsios B, Goldfeld S, Wake M. Improving Cohort-Hospital Matching Accuracy through Standardization and Validation of Participant Identifiable Information. Children 2022;9(12):1916 View
  14. Traeger M, Guy R, Asselin J, Patel P, Carter A, Wright E, Grulich A, McManus H, Fairley C, Chow E, McNulty A, Finlayson R, Bell C, Owen L, Marshall L, Russell D, O'Donnell D, Donovan B, Hellard M, Stoové M, Bastian L, Bateson D, Bowden S, Boyd M, Callander D, Cogle A, Costello J, Dimech W, Dittmer J, El-Hayek C, Ellard J, Fairley C, Franklin L, Hellard M, Hocking J, Kim J, McGill S, Nolan D, Pendle S, Polkinghorne V, Nguyen L, Nguyen T, O'Connor C, Reed P, Roth N, Ryder N, Selvey C, Stoové M, Traeger M, Vickers T, Walker M, Watchirs-Smith L, West M. Real-world trends in incidence of bacterial sexually transmissible infections among gay and bisexual men using HIV pre-exposure prophylaxis (PrEP) in Australia following nationwide PrEP implementation: an analysis of sentinel surveillance data. The Lancet Infectious Diseases 2022;22(8):1231 View
  15. Traeger M, Murphy D, Ryan K, Asselin J, Cornelisse V, Wilkinson A, Hellard M, Wright E, Stoové M. Latent Class Analysis of Sexual Behaviours and Attitudes to Sexually Transmitted Infections Among Gay and Bisexual Men Using PrEP. AIDS and Behavior 2022;26(6):1808 View
  16. Wilkinson A, Pedrana A, Traeger M, Asselin J, El-Hayek C, Nguyen L, Polkinghorne V, Doyle J, Thompson A, Howell J, Scott N, Dimech W, Guy R, Hellard M, Stoové M. Real-world monitoring progress towards the elimination of hepatitis C virus in Australia using sentinel surveillance of primary care clinics; an ecological study of hepatitis C virus antibody tests from 2009 to 2019. Epidemiology and Infection 2022;150 View
  17. Kompaniyets L, Wiegand R, Oyalowo A, Bull-Otterson L, Egwuogu H, Thompson T, Kahihikolo K, Moore L, Jones-Jack N, El Kalach R, Srinivasan A, Messer A, Pilishvili T, Harris A, Gundlapalli A, Link-Gelles R, Boehmer T. Relative Effectiveness of Coronavirus Disease 2019 Vaccination and Booster Dose Combinations Among 18.9 Million Vaccinated Adults During the Early Severe Acute Respiratory Syndrome Coronavirus 2 Omicron Period—United States, 1 January 2022 to 31 March 2022. Clinical Infectious Diseases 2023;76(10):1753 View
  18. Callander D, McManus H, Gray R, Grulich A, Carr A, Hoy J, Donovan B, Fairley C, Holt M, Templeton D, Liaw S, McMahon J, Asselin J, Petoumenos K, Hellard M, Pedrana A, Elliott J, Keen P, Costello J, Keane R, Kaldor J, Stoové M, Guy R. HIV treatment-as-prevention and its effect on incidence of HIV among cisgender gay, bisexual, and other men who have sex with men in Australia: a 10-year longitudinal cohort study. The Lancet HIV 2023;10(6):e385 View
  19. Harney B, Sacks‐Davis R, van Santen D, Traeger M, Wilkinson A, Asselin J, Fairley C, Roth N, Bloch M, Matthews G, Donovan B, Guy R, Stoové M, Hellard M, Doyle J. Hepatitis C virus reinfection incidence among gay and bisexual men with HIV in Australia from 2016 to 2020. Liver International 2024;44(4):1024 View
  20. Harney B, Sacks-Davis R, Agius P, van Santen D, Traeger M, Wilkinson A, Asselin J, Fairley C, Roth N, Bloch M, Matthews G, Donovan B, Guy R, Stoové M, Hellard M, Doyle J. Risk of Primary Incident Hepatitis C Infection Following Bacterial Sexually Transmissible Infections Among Gay and Bisexual Men in Australia From 2016 to 2020. Open Forum Infectious Diseases 2024;11(4) View
  21. Han S, Wang Y, Shen D, Wang C. A Multi-Party Privacy-Preserving Record Linkage Method Based on Secondary Encoding. Mathematics 2024;12(12):1800 View
  22. Pathak A, Serrer L, Zapata D, King R, Mirel L, Sukalac T, Srinivasan A, Baier P, Bhalla M, David-Ferdon C, Luxenberg S, Gundlapalli A. Privacy preserving record linkage for public health action: opportunities and challenges. Journal of the American Medical Informatics Association 2024;31(11):2605 View
  23. Randall S, Brown A, Ferrante A, Boyd J, Robinson S. Implementing privacy preserving record linkage: Insights from Australian use cases. International Journal of Medical Informatics 2024;191:105582 View
  24. Jugl M, Kirsten T. Gecko: A Python library for the generation and mutation of realistic personal identification data at scale. SoftwareX 2024;27:101846 View
  25. Traeger M, Guy R, Taunton C, Chow E, Asselin J, Carter A, Aung H, Bloch M, Fairley C, McNulty A, Cornelisse V, Read P, Owen L, Ryder N, Templeton D, O'Donnell D, Donovan B, Hellard M, Stoové M. Syphilis testing, incidence, and reinfection among gay and bisexual men in Australia over a decade spanning HIV PrEP implementation: an analysis of surveillance data from 2012 to 2022. The Lancet Regional Health - Western Pacific 2024;51:101175 View
  26. Pathak A, Serrer L, Bhalla M, King R, Mirel L, Srinivasan A, Baier P, Zapata D, David-Ferdon C, Luxenberg S, Gundlapalli A. Proposed Framework for Adopting Privacy-Preserving Record Linkage for Public Health Action. Journal of Public Health Management & Practice 2025;31(1):E26 View

Books/Policy Documents

  1. Jain A, Srivastava N. Cyber Security, Privacy and Networking. View