This paper is in the following e-collection/theme issue:

Policy and Policy Proposals (115) Ethics, Privacy, and Legal Issues (457) Secondary Use of Clinical Data for Research and Surveillance (320) Health Information Governance (16)

Published on in Vol 22, No 5 (2020): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/16346, first published .
Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review

Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review

Toward a Risk-Utility Data Governance Framework for Research Using Genomic and Phenotypic Data in Safe Havens: Multifaceted Review

Authors of this article:

Kerina Jones1 Author Orcid Image ;   Helen Daniels1 Author Orcid Image ;   Sharon Heys1 Author Orcid Image ;   Arron Lacey1 Author Orcid Image ;   David V Ford1 Author Orcid Image
Article Authors Cited by (6) Tweetations (7) Metrics

Kerina Jones   1 , BSc, PhD ;   Helen Daniels   1 , BSc, PhD ;   Sharon Heys   1 , BSc ;   Arron Lacey   1 , BSc, PhD ;   David V Ford   1 , MBA

1 Population Data Science, Medical School, Swansea University, Swansea, United Kingdom

Corresponding Author:

  • Kerina Jones, BSc, PhD
  • Population Data Science
  • Medical School
  • Swansea University
  • Data Science Building
  • Singleton Park
  • Swansea, SA28PP
  • United Kingdom
  • Phone: 44 01792602764
  • Email: k.h.jones@swansea.ac.uk