This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (481) Big Data (241) Secondary Use of Clinical Data for Research and Surveillance (368)

Published on in Vol 22, No 12 (2020): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/20783, first published .
Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

Authors of this article:

Cason Schmit1 Author Orcid Image ;   Kobi V Ajayi1 Author Orcid Image ;   Alva O Ferdinand2 Author Orcid Image ;   Theodoros Giannouchos1, 3 Author Orcid Image ;   Gurudev Ilangovan1 Author Orcid Image ;   W Benjamin Nowell4 Author Orcid Image ;   Hye-Chung Kum1 Author Orcid Image
Article Authors Cited by (8) Tweetations (6) Metrics

Journals

  1. Giannouchos T, Ferdinand A, Ilangovan G, Ragan E, Nowell W, Kum H, Schmit C. Identifying and prioritizing benefits and risks of using privacy-enhancing software through participatory design: a nominal group technique study with patients living with chronic conditions. Journal of the American Medical Informatics Association 2021;28(8):1746 View
  2. Laurijssen S, van der Graaf R, van Dijk W, Schuit E, Groenwold R, Grobbee D, de Vries M. When is it impractical to ask informed consent? A systematic review. Clinical Trials 2022;19(5):545 View
  3. Weng L, Liu M, Lin W, Han S, Yang J, Lin X, Yang J. Design of Cancer Pain Management App Modules: Using a Modified Delphi Process (Preprint). JMIR Formative Research 2021 View
  4. Cumyn A, Ménard J, Barton A, Dault R, Lévesque F, Ethier J. Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 2023;25:e45002 View
  5. Smit J, Mostert M, van der Graaf R, Grobbee D, van Delden J. Specific measures for data-intensive health research without consent: a systematic review of soft law instruments and academic literature. European Journal of Human Genetics 2024;32(1):21 View
  6. Medina Aguerrebere P, Medina E, González Pacanowski T. Building smart brands through online and artificial intelligence tools: A quantitative analysis about the best hospitals in Spain. Online Journal of Communication and Media Technologies 2024;14(1):e202407 View
  7. Weng L, Lin W, Lin X, Liu M, Yang J. Randomized controlled trial of an app for cancer pain management. Supportive Care in Cancer 2024;32(4) View
  8. Bilodeau E, Cumyn A, Ménard J, Barton A, Dault R, Ethier J. Utilisations secondaires des données de santé : impacts de la transparence. Canadian Journal of Bioethics 2024;7(2-3):118 View