This paper is in the following e-collection/theme issue:

Editorial (50) Ethics, Privacy, and Legal Issues (553)

Published on in Vol 21, No 2 (2019): February

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/11985, first published .
Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community

Authors of this article:

Emil Chiauzzi1 Author Orcid Image ;   Paul Wicks1 Author Orcid Image
Article Authors Cited by (49) Tweetations (5) Metrics
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Sven Awege Sven Awege @SVENNIECO

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community https://t.co/Yb4Bl6s1oy

2:51 PM · Feb 21, 2019

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JMIR Publications JMIR Publications @jmirpub

New in JMIR: #Digital Trespass: Ethical and Terms-of-Use Violations by #Researchers Accessing Data From an #Online… https://t.co/4B84SSFPsh

3:02 PM · Feb 21, 2019

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Salud Mental digital Salud Mental digital @eSaludMental

RT @jmirpub: New in JMIR: #Digital Trespass: Ethical and Terms-of-Use Violations by #Researchers Accessing Data From an #Online ##Patient C…

3:51 PM · Feb 21, 2019

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Eric Swirsky Eric Swirsky @HI_EthicsGuy

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community https://t.co/NW3OpBfOMB

4:55 PM · Feb 21, 2019

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Wanda Pratt Wanda Pratt @ProfWanda

This Awesome paper should be required reading for anyone using any kind of social media data, particularly in healt… https://t.co/VxG53m34VQ

7:55 PM · Feb 21, 2019

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Dr. Stevie Chancellor Dr. Stevie Chancellor @snchancellor

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

8:27 PM · Feb 21, 2019

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robert furberg robert furberg @medicfurby

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

10:01 PM · Feb 21, 2019

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UW iSchool UW iSchool @UW_iSchool

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

10:11 PM · Feb 21, 2019

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SBMDigitalHealth SBMDigitalHealth @SBMDigitalHlth

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

10:19 PM · Feb 21, 2019

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John Torous, MD MBI John Torous, MD MBI @JohnTorousMD

Not all research is done right. @PaulLikeMe + @emilchiauzzi explore "4 cases involving ethical/terms-of-use violat… https://t.co/2QAu0VYoEp

12:03 AM · Feb 22, 2019

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Dr. Jessica Breland Dr. Jessica Breland @JessicaYBreland

RT @JohnTorousMD: Not all research is done right. @PaulLikeMe + @emilchiauzzi explore "4 cases involving ethical/terms-of-use violations b…

12:35 AM · Feb 22, 2019

7
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Shefali Haldar ???? Shefali Haldar ???? @shefali_h

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

12:55 AM · Feb 22, 2019

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MedGizmo MedGizmo @MedGizmo

#Ethical & Terms-of-Use Violations by #Researchers Accessing Data From an Online #PatientCommunity… https://t.co/NU34Aex7bN

1:00 AM · Feb 22, 2019

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Dr. Laurie Novak Dr. Laurie Novak @laurielovett

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

2:51 AM · Feb 22, 2019

40
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Dr. Gillian Hayes Dr. Gillian Hayes @gillianrhayes

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

3:48 AM · Feb 22, 2019

40
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Dr. Brian Keegan Dr. Brian Keegan @bkeegan

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

3:52 AM · Feb 22, 2019

40
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syawal™ シ syawal™ シ @syawal

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

3:54 AM · Feb 22, 2019

40
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Dr. Kate Ringland Dr. Kate Ringland @liltove

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

3:59 AM · Feb 22, 2019

40
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Shion Guha Shion Guha @shionguha

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

5:13 AM · Feb 22, 2019

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Gary Gray McKendrick Gary Gray McKendrick @BipolarRunner

RT @JohnTorousMD: Not all research is done right. @PaulLikeMe + @emilchiauzzi explore "4 cases involving ethical/terms-of-use violations b…

8:13 AM · Feb 22, 2019

7
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Ann Blandford Ann Blandford @annblandford

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

9:53 AM · Feb 22, 2019

40
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alison murphy alison murphy @AlisonPSU

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

10:19 AM · Feb 22, 2019

40
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Aviv Shachak ???????????????? Aviv Shachak ???????????????? @AvivShachak

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

12:54 PM · Feb 22, 2019

40
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S. Trent Rosenbloom S. Trent Rosenbloom @trentrosenbloom

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

12:58 PM · Feb 22, 2019

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Mark Dimor Mark Dimor @MarksPhone

JMIR-Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Com… https://t.co/c028FJCWOR

1:16 PM · Feb 22, 2019

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Lisa Gualtieri Lisa Gualtieri @lisagualtieri

RT @JohnTorousMD: Not all research is done right. @PaulLikeMe + @emilchiauzzi explore "4 cases involving ethical/terms-of-use violations b…

1:35 PM · Feb 22, 2019

7
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Kristin Schneider Kristin Schneider @DrKrisSchneider

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

2:03 PM · Feb 22, 2019

40
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Duke Forge Duke Forge @DukeForge

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

2:26 PM · Feb 22, 2019

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Social Media Buzz Social Media Buzz @Go2WebMarketing

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community https://t.co/FshtC1EqW5

3:23 PM · Feb 22, 2019

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Keris Jän Myrick Keris Jän Myrick @KerisWithaK

RT @JohnTorousMD: Not all research is done right. @PaulLikeMe + @emilchiauzzi explore "4 cases involving ethical/terms-of-use violations b…

5:16 PM · Feb 22, 2019

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SBMDigitalHealth SBMDigitalHealth @SBMDigitalHlth

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Communit… https://t.co/lSNBXo1Nww

5:36 PM · Feb 22, 2019

3
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Elizabeth Whittaker ????‍???????? Elizabeth Whittaker ????‍???????? @ATuin_Express

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

6:02 PM · Feb 22, 2019

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John Poikonen,PharmD John Poikonen,PharmD @gigapharmd

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Communit… https://t.co/gLp9NqhNA0

6:48 PM · Feb 22, 2019

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JMIR Publications JMIR Publications @jmirpub

RT @SBMDigitalHlth: Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community vi…

10:57 PM · Feb 22, 2019

3
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Michael Zimmer Michael Zimmer @michaelzimmer

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

2:34 AM · Feb 23, 2019

40
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Sarah Sarah @MayDayMayDae

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

3:15 AM · Feb 23, 2019

40
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dr stephanie moore dr stephanie moore @steph_moore

Our field should have this conversation. Heck, we should be *leaders* here if our theories of community mean much.… https://t.co/2LmpnAwGpG

3:44 AM · Feb 23, 2019

2
2
dr stephanie moore dr stephanie moore @steph_moore

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

3:44 AM · Feb 23, 2019

40
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ISBNPA e- & mHealth ISBNPA e- & mHealth @isbnpa_emh

RT @SBMDigitalHlth: Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community vi…

10:30 AM · Feb 23, 2019

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Scalar Humanity Scalar Humanity @ScalarHumanity

RT @steph_moore: Our field should have this conversation. Heck, we should be *leaders* here if our theories of community mean much. #edtech…

3:38 PM · Feb 23, 2019

2
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James Ellsworth PhD James Ellsworth PhD @EINS_Institute

RT @steph_moore: Our field should have this conversation. Heck, we should be *leaders* here if our theories of community mean much. #edtech…

9:00 PM · Feb 23, 2019

2
2
Mary Heston Mary Heston @maryheston

Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Communit… https://t.co/fDCxp9s9YH

2:37 PM · Feb 24, 2019

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Benjamin Heywood Benjamin Heywood @bheywood

RT @ProfWanda: This Awesome paper should be required reading for anyone using any kind of social media data, particularly in health! "Digit…

5:39 PM · Feb 24, 2019

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David Szabo David Szabo @dsszabo

Important issue. https://t.co/8P7zHJIVbY

5:55 PM · Feb 24, 2019

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Tom Heston Tom Heston @tomhestonmd

RT @maryheston: Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community. https…

2:10 AM · Feb 25, 2019

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Sherry Pagoto Sherry Pagoto @DrSherryPagoto

Important piece highlighting cases of unethical research practices using online social network data---and the confu… https://t.co/UtG3IayRO1

2:59 PM · Feb 26, 2019

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Lindsey Kim Lindsey Kim @Lynn_C_Kim

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

3:12 PM · Feb 26, 2019

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Molly Waring Molly Waring @DrMollyWaring

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

3:35 PM · Feb 26, 2019

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Sarah Singer Sarah Singer @__sarahsinger

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

3:38 PM · Feb 26, 2019

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Paul Wicks Paul Wicks @PaulWicks

Sometimes sharing experiences of applied work can be hard - some of these conversations were difficult, embarrassin… https://t.co/fiRzudXOuX

3:54 PM · Feb 26, 2019

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Sally Okun Sally Okun @SallyOkun

RT @PaulLikeMe: Sometimes sharing experiences of applied work can be hard - some of these conversations were difficult, embarrassing, tense…

4:03 PM · Feb 26, 2019

7
2
Benjamin Heywood Benjamin Heywood @bheywood

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

4:06 PM · Feb 26, 2019

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Dr. Gina Merchant Dr. Gina Merchant @DrGMerchant

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

5:23 PM · Feb 26, 2019

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SBMDigitalHealth SBMDigitalHealth @SBMDigitalHlth

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

5:38 PM · Feb 26, 2019

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Pitt Behavioral Health, Media, & Tech Pitt Behavioral Health, Media, & Tech @PittHealthTech

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

5:47 PM · Feb 26, 2019

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Dr. Tamsin Lee Dr. Tamsin Lee @DrTamsinLee

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

9:57 PM · Feb 26, 2019

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Michael Millenson Michael Millenson @MLMillenson

JMIR-Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Com… https://t.co/BNjuEBGuL0

10:27 PM · Feb 26, 2019

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@UCONNmHealth @UCONNmHealth @UCONNmhealth

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

2:26 AM · Feb 27, 2019

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Helen Haskell Helen Haskell @hhask

RT @MLMillenson: JMIR-Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community…

3:14 AM · Feb 27, 2019

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Dr. Camille Nebeker Dr. Camille Nebeker @cnebeker

RT @DrSherryPagoto: Important piece highlighting cases of unethical research practices using online social network data---and the confusion…

4:57 PM · Feb 27, 2019

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Paul Wicks Paul Wicks @PaulWicks

@DrTamsinLee @patientslikeme @sbm Only things that are public not behind the login. If in doubt ping me! ???? https://t.co/ninfDpLaYq

7:37 PM · Mar 12, 2019

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