Connected Health User Willingness to Share Personal Health Data: Questionnaire Study

Journals

1. Cicchini C, Mazzeo M, Livoli D, Simone A, Valeriano V, Pugliese F. The right to be protected, the right to be forgotten: the European General Data Protection Regulation 679/2016 in Emergency Medicine. Italian Journal of Emergency Medicine 2020;9(1) View
2. FitzGerald R. Perspective on Health Effects of Endocrine Disruptors with a Focus on Data Gaps. Chemical Research in Toxicology 2020;33(6):1284 View
3. Hager A, Lindblad S, Brommels M, Salomonsson S, Wannheden C. Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study. Journal of Medical Internet Research 2021;23(1):e16842 View
4. Al-Ebbini L, Khabour O, Alzoubi K, Alkaraki A. <p>Biomedical Data Sharing Among Researchers: A Study from Jordan</p>. Journal of Multidisciplinary Healthcare 2020;Volume 13:1669 View
5. Viberg Johansson J, Bentzen H, Shah N, Haraldsdóttir E, Jónsdóttir G, Kaye J, Mascalzoni D, Veldwijk J. Preferences of the Public for Sharing Health Data: Discrete Choice Experiment. JMIR Medical Informatics 2021;9(7):e29614 View
6. Silber H, Gerdon F, Bach R, Kern C, Keusch F, Kreuter F. A preregistered vignette experiment on determinants of health data sharing behavior. Politics and the Life Sciences 2022;41(2):161 View
7. Le L, Hoang P, Pham H. Sharing health information across online platforms: A systematic review. Health Communication 2023;38(8):1550 View
8. Sandnes F, Haldorai A. CANDIDATE: A tool for generating anonymous participant-linking IDs in multi-session studies. PLOS ONE 2021;16(12):e0260569 View
9. Seifert A, Vandelanotte C. The use of wearables and health apps and the willingness to share self-collected data among older adults. Aging and Health Research 2021;1(3):100032 View
10. Nunes Vilaza G, Coyle D, Bardram J. Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey. Journal of Medical Internet Research 2021;23(10):e31294 View
11. Wei G, Turner K, Hennessy K, Seminario-Vidal L. Preferences Towards Electronically Exchanging Digital Images With Healthcare Providers Among US Adults. Cureus 2021 View
12. Kassam I, Ilkina D, Kemp J, Roble H, Carter-Langford A, Shen N. Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review. Journal of Medical Internet Research 2023;25:e42507 View
13. Richter G, Borzikowsky C, Hoyer B, Laudes M, Krawczak M. Secondary research use of personal medical data: patient attitudes towards data donation. BMC Medical Ethics 2021;22(1) View
14. Delemere E, Gitonga I, Maguire R. Utility, barriers and facilitators to the use of connected health to support families impacted by paediatric cancer: a qualitative analysis. Supportive Care in Cancer 2022;30(8):6755 View
15. Turner K, Bobonis Babilonia M, Naso C, Nguyen O, Gonzalez B, Oswald L, Robinson E, Elston Lafata J, Ferguson R, Alishahi Tabriz A, Patel K, Hallanger-Johnson J, Aldawoodi N, Hong Y, Jim H, Spiess P. Health Care Providers’ and Professionals’ Experiences With Telehealth Oncology Implementation During the COVID-19 Pandemic: A Qualitative Study. Journal of Medical Internet Research 2022;24(1):e29635 View
16. Benevento M, Mandarelli G, Carravetta F, Ferorelli D, Caterino C, Nicolì S, Massari A, Solarino B. Measuring the willingness to share personal health information: a systematic review. Frontiers in Public Health 2023;11 View
17. Kassen M. Covid-19 Pandemic and Digital Public Awareness Platforms: Strategies, Solutions, and Tools of Communication and e-Government Data Management. Preservation, Digital Technology & Culture 2023;52(2):69 View
18. Bartali V, van Velsen L. An experiment on data sharing options designs for eHealth interventions. Internet Interventions 2023;33:100642 View
19. Busch-Casler J, Radic M. Trust and Health Information Exchanges: Qualitative Analysis of the Intent to Share Personal Health Information. Journal of Medical Internet Research 2023;25:e41635 View
20. Biasiotto R, Viberg Johansson J, Alemu M, Romano V, Bentzen H, Kaye J, Ancillotti M, Blom J, Chassang G, Hallinan D, Jónsdóttir G, Monasterio Astobiza A, Rial-Sebbag E, Rodríguez-Arias D, Shah N, Skovgaard L, Staunton C, Tschigg K, Veldwijk J, Mascalzoni D. Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries. Journal of Medical Internet Research 2023;25:e47066 View
21. Godoy Junior C, Miele F, Mäkitie L, Fiorenzato E, Koivu M, Bakker L, Groot C, Redekop W, van Deen W. Attitudes Toward the Adoption of Remote Patient Monitoring and Artificial Intelligence in Parkinson’s Disease Management: Perspectives of Patients and Neurologists. The Patient - Patient-Centered Outcomes Research 2024;17(3):275 View
22. Sermontyte-Baniule R, Helander N, Nieminen H. A Literature Perspective of Stakeholder’s Perceptions of Value and Risks for the Secondary Use of Health Data. SN Computer Science 2024;5(3) View
23. Richter G, Trigui N, Caliebe A, Krawczak M. Attitude towards consent-free research use of personal medical data in the general German population. Heliyon 2024;10(6):e27933 View
24. Cascini F, Pantovic A, Al-Ajlouni Y, Puleo V, De Maio L, Ricciardi W. Health data sharing attitudes towards primary and secondary use of data: a systematic review. eClinicalMedicine 2024;71:102551 View
25. Guardado S, Karampela M, Isomursu M, Grundstrom C. Use of Patient-Generated Health Data From Consumer-Grade Devices by Health Care Professionals in the Clinic: Systematic Review. Journal of Medical Internet Research 2024;26:e49320 View
26. Bach R, Silber H, Gerdon F, Keusch F, Schonlau M, Schröder J. To share or not to share – understanding individuals’ willingness to share biomarkers, sensor data, and medical records. Information, Communication & Society 2024:1 View

Books/Policy Documents

1. Duhm-Harbeck P, Köbler J. GDPR Requirements for Biobanking Activities Across Europe. View