This paper is in the following e-collection/theme issue:

Patient-Reported Outcome Measures (PROMs) (288) Research Instruments, Questionnaires, and Tools (576) Development of Instruments and Surveys (86) Questionnaires and Research Instruments for Cancer Patients (17)

Published on in Vol 21, No 1 (2019): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/11302, first published .
Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Authors of this article:

Stacey McCaffrey1 Author Orcid Image ;   Ryan A Black2 Author Orcid Image ;   Mitchell Nagao3 Author Orcid Image ;   Marjan Sepassi3 Author Orcid Image ;   Gaurav Sharma3 Author Orcid Image ;   Susan Thornton4 Author Orcid Image ;   Youn H Kim5 Author Orcid Image ;   Julia Braverman1 Author Orcid Image
Article Authors Cited by (16) Tweetations (3) Metrics

Journals

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  2. Gabes M. Are existing quality‐of‐life instruments in cutaneous T‐cell lymphoma of sufficient quality?. British Journal of Dermatology 2021;184(2):195 View
  3. Bhat T, Herbosa C, Rosenberg A, Sogade O, Jeffe D, Mehta‐Shah N, Semenov Y, Musiek A. Current measures are not sufficient: an interview‐based qualitative assessment of quality of life in cutaneous T‐cell lymphoma*. British Journal of Dermatology 2021;184(2):310 View
  4. Rosenthal J, Kim E. Health‐related quality of life in cutaneous T‐cell lymphoma: examining all sides of the issue. British Journal of Dermatology 2019 View
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  6. Scarisbrick J, Bagot M, Ortiz‐Romero P. The changing therapeutic landscape, burden of disease, and unmet needs in patients with cutaneous T‐cell lymphoma. British Journal of Haematology 2021;192(4):683 View
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  8. Colin-Chevalier R, Dutheil F, Cambier S, Dewavrin S, Cornet T, Baker J, Pereira B. Methodological Issues in Analyzing Real-World Longitudinal Occupational Health Data: A Useful Guide to Approaching the Topic. International Journal of Environmental Research and Public Health 2022;19(12):7023 View
  9. Farabi B, Seminario‐Vidal L, Jamgochian M, Akay B, Atak M, Rao B, Karagaiah P, Grabbe S, Goldust M. Updated review on prognostic factors in mycosis fungoides and new skin lymphoma trials. Journal of Cosmetic Dermatology 2022;21(7):2742 View
  10. Meregaglia M, Tarricone R. Feasibility of Deriving Health State Utilities in Mycosis Fungoides Cutaneous T-Cell Lymphoma Using Mapping Algorithms. PharmacoEconomics - Open 2022;6(4):595 View
  11. Schirren A, Albrecht J, Melchers S, Weiß C, Büttner S, Dippel E, Gosmann J, Jonak C, Klemke C, Laturnus‐Chang M, Livingstone E, Mitteldorf C, Schummer P, Stadler R, Stranzenbach R, Weyer‐Fahlbusch S, Wobser M, Ziemer M, Nicolay J. Health‐related quality of life and its influencing factors in patients with primary cutaneous B‐cell lymphomas: A multicentric study in 100 patients. Journal of the European Academy of Dermatology and Venereology 2024;38(5):954 View
  12. Ivert L, Winther A, Jonsson P, Brauner H. Exploring the educational needs of patients with cutaneous lymphoma using an educational needs assessment tool. Frontiers in Oncology 2024;14 View
  13. Brazel D, Larocca C, Shinohara M. Assessing Health-Related Quality of Life in Mycosis Fungoides and Sézary Syndrome: Unmet Needs. Cancers 2024;16(15):2757 View
  14. Sarkar R, Adhikary K, Banerjee A, Ganguly K, Sarkar R, Mohanty S, Dhua R, Bhattacharya K, Ahuja D, Pal S, Maiti R. Novel targets and improved immunotherapeutic techniques with an emphasis on antimycosal drug resistance for the treatment and management of mycosis. Heliyon 2024;10(16):e35835 View
  15. Raymundo C, Cella D, Wagner L, Hippe D, Di M, Guitart J, Rosen S, Querfeld C, Shinohara M. Development and psychometric properties of the Functional Assessment of Cancer Therapy–Cutaneous T-Cell Lymphoma (FACT-CTCL) instrument. British Journal of Dermatology 2024 View
  16. Ortiz Romero P, Kim Y, Molloy K, Quaglino P, Scarisbrick J, Thornton S, Sandilands K, Dent J, Nixon A, Williams A, Shinohara M. Health‐related quality of life in cutaneous T‐cell lymphoma: A post hoc analysis of a phase 3 trial in mycosis fungoides and Sézary syndrome. Journal of the European Academy of Dermatology and Venereology 2024 View