This paper is in the following e-collection/theme issue:

Patient-Reported Outcome Measures (PROMs) (274) Research Instruments, Questionnaires, and Tools (540) Development of Instruments and Surveys (79) Questionnaires and Research Instruments for Cancer Patients (16)

Published on in Vol 21, No 1 (2019): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/11302, first published .
Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument

Authors of this article:

Stacey McCaffrey1 Author Orcid Image ;   Ryan A Black2 Author Orcid Image ;   Mitchell Nagao3 Author Orcid Image ;   Marjan Sepassi3 Author Orcid Image ;   Gaurav Sharma3 Author Orcid Image ;   Susan Thornton4 Author Orcid Image ;   Youn H Kim5 Author Orcid Image ;   Julia Braverman1 Author Orcid Image
Article Authors Cited by (11) Tweetations (3) Metrics

Journals

  1. Engin B, Keçici A, Uzun A, Yalçın M. Psychiatric comorbidity, depression, and anxiety levels and quality of life of the patients with mycosis fungoides. Dermatologic Therapy 2020;33(6) View
  2. Gabes M. Are existing quality‐of‐life instruments in cutaneous T‐cell lymphoma of sufficient quality?. British Journal of Dermatology 2021;184(2):195 View
  3. Bhat T, Herbosa C, Rosenberg A, Sogade O, Jeffe D, Mehta‐Shah N, Semenov Y, Musiek A. Current measures are not sufficient: an interview‐based qualitative assessment of quality of life in cutaneous T‐cell lymphoma*. British Journal of Dermatology 2021;184(2):310 View
  4. Rosenthal J, Kim E. Health‐related quality of life in cutaneous T‐cell lymphoma: examining all sides of the issue. British Journal of Dermatology 2019 View
  5. Molloy K, Jonak C, Woei‐A‐Jin F, Guenova E, Busschots A, Bervoets A, Hauben E, Knobler R, Porkert S, Fassnacht C, Cowan R, Papadavid E, Beylot‐Barry M, Berti E, Alberti Violetti S, Estrach T, Matin R, Akilov O, Vakeva L, Prince M, Bates A, Bayne M, Wachsmuch R, Wehkamp U, Marschalko M, Servitje O, Turner D, Weatherhead S, Wobser M, Sanches J, McKay P, Klemke D, Peng C, Howles A, Yoo J, Evison F, Scarisbrick J. Characteristics associated with significantly worse quality of life in mycosis fungoides/Sézary syndrome from the Prospective Cutaneous Lymphoma International Prognostic Index ( PROCLIPI ) study. British Journal of Dermatology 2020;182(3):770 View
  6. Scarisbrick J, Bagot M, Ortiz‐Romero P. The changing therapeutic landscape, burden of disease, and unmet needs in patients with cutaneous T‐cell lymphoma. British Journal of Haematology 2021;192(4):683 View
  7. Navarro Matilla B, Onteniente Gomis M, Pujol Vallverdú R, Combalia Escudero A, Zapata Paz I, Muniesa Montserrat C, González Barca E, Morillo Andújar M, Pérez Ferriols A, Román Curto M, Fernández de Misa Cabrera R, Hospital Gil M, Marín Niebla A, Rios Rull P, de la Cruz Vicente F, Izu Belloso R, Martín García‐Sancho A, Parera Amer M, Córdoba Mascuñano R, Ramón Quiles M, Saus Carreres A, del Campo García R, Machan S, Viguera Ester P, Blanco Garnelo J, Soler López B, Ortiz Romero P. EORTC‐QLQ‐C30 and SKINDEX‐29 measurement of health‐related quality of life in patients with mycosis fungoides and Sézary syndrome: Real‐world data in Spanish patients (MICADOS Study). JEADV Clinical Practice 2022;1(4):438 View
  8. Colin-Chevalier R, Dutheil F, Cambier S, Dewavrin S, Cornet T, Baker J, Pereira B. Methodological Issues in Analyzing Real-World Longitudinal Occupational Health Data: A Useful Guide to Approaching the Topic. International Journal of Environmental Research and Public Health 2022;19(12):7023 View
  9. Farabi B, Seminario‐Vidal L, Jamgochian M, Akay B, Atak M, Rao B, Karagaiah P, Grabbe S, Goldust M. Updated review on prognostic factors in mycosis fungoides and new skin lymphoma trials. Journal of Cosmetic Dermatology 2022;21(7):2742 View
  10. Meregaglia M, Tarricone R. Feasibility of Deriving Health State Utilities in Mycosis Fungoides Cutaneous T-Cell Lymphoma Using Mapping Algorithms. PharmacoEconomics - Open 2022;6(4):595 View
  11. Schirren A, Albrecht J, Melchers S, Weiß C, Büttner S, Dippel E, Gosmann J, Jonak C, Klemke C, Laturnus‐Chang M, Livingstone E, Mitteldorf C, Schummer P, Stadler R, Stranzenbach R, Weyer‐Fahlbusch S, Wobser M, Ziemer M, Nicolay J. Health‐related quality of life and its influencing factors in patients with primary cutaneous B‐cell lymphomas: A multicentric study in 100 patients. Journal of the European Academy of Dermatology and Venereology 2024;38(5):954 View