Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument
Measurement of Quality of Life in Patients with Mycosis Fungoides/Sézary Syndrome Cutaneous T-Cell Lymphoma: Development of an Electronic Instrument
Stacey McCaffrey
1
, PhD ;
Ryan A Black
2
, PhD ;
Mitchell Nagao
3
, PharmD ;
Marjan Sepassi
3
, PharmD ;
Gaurav Sharma
3
, PharmD ;
Susan Thornton
4
, BBA ;
Youn H Kim
5
, MD ;
Julia Braverman
1
, PhD
1
PatientsLikeMe, Inc, Cambridge, MA, United States
2
Nova Southeastern University, Fort Lauderdale, FL, United States
3
Actelion (US), Inc., South San Francisco, CA, United States
4
Cutaneous Lymphoma Foundation, Birmingham, MI, United States
5
Stanford University, Stanford, CA, United States