Published on in Vol 20, No 7 (2018): July

Privacy, Trust, and Data Sharing in Web-Based and Mobile Research: Participant Perspectives in a Large Nationwide Sample of Men Who Have Sex With Men in the United States

Privacy, Trust, and Data Sharing in Web-Based and Mobile Research: Participant Perspectives in a Large Nationwide Sample of Men Who Have Sex With Men in the United States

Privacy, Trust, and Data Sharing in Web-Based and Mobile Research: Participant Perspectives in a Large Nationwide Sample of Men Who Have Sex With Men in the United States

Authors of this article:

H. Jonathon Rendina1, 2 Author Orcid Image ;   Brian Mustanski3 Author Orcid Image

Journals

  1. Pasipanodya E, Kohli M, Fisher C, Moore D, Curtis B. Perceived risks and amelioration of harm in research using mobile technology to support antiretroviral therapy adherence in the context of methamphetamine use: a focus group study among minorities living with HIV. Harm Reduction Journal 2020;17(1) View
  2. Bragard E, Fisher C, Curtis B. “They know what they are getting into:” Researchers confront the benefits and challenges of online recruitment for HIV research. Ethics & Behavior 2020;30(7):481 View
  3. Antebi-Gruszka N, Talan A, Reisner S, Rendina H. Sociodemographic and behavioural factors associated with testing for HIV and STIs in a US nationwide sample of transgender men who have sex with men. Sexually Transmitted Infections 2020;96(6):422 View
  4. Grov C, Westmoreland D, Rendina H, Nash D. Seeing Is Believing? Unique Capabilities of Internet-Only Studies as a Tool for Implementation Research on HIV Prevention for Men Who Have Sex With Men: A Review of Studies and Methodological Considerations. JAIDS Journal of Acquired Immune Deficiency Syndromes 2019;82(3):S253 View
  5. Hubach R, O’Neil A, Stowe M, Giano Z, Curtis B, Fisher C. Perceived Confidentiality Risks of Mobile Technology-Based Ecologic Momentary Assessment to Assess High-Risk Behaviors Among Rural Men Who Have Sex with Men. Archives of Sexual Behavior 2021;50(4):1641 View
  6. Nash D, Stief M, MacCrate C, Mirzayi C, Patel V, Hoover D, Pantalone D, Golub S, Millett G, D’Angelo A, Westmoreland D, Grov C. A Web-Based Study of HIV Prevention in the Era of Pre-Exposure Prophylaxis Among Vulnerable HIV-Negative Gay and Bisexual Men, Transmen, and Transwomen Who Have Sex With Men: Protocol for an Observational Cohort Study. JMIR Research Protocols 2019;8(9):e13715 View
  7. Macapagal K, Li D, Clifford A, Madkins K, Mustanski B. The CAN-DO-IT Model: a Process for Developing and Refining Online Recruitment in HIV/AIDS and Sexual Health Research. Current HIV/AIDS Reports 2020;17(3):190 View
  8. Hochheiser H, Valdez R. Human-Computer Interaction, Ethics, and Biomedical Informatics. Yearbook of Medical Informatics 2020;29(01):093 View
  9. John S, Robles G, Starks T, Rendina H. Differences Between Groups of Pre-exposure Prophylaxis (PrEP) Using Couples in HIV-Negative/Unknown Relationships. JAIDS Journal of Acquired Immune Deficiency Syndromes 2019;81(4):419 View
  10. Fisher C, Bragard E, Bloom R. Ethical Considerations in HIV eHealth Intervention Research: Implications for Informational Risk in Recruitment, Data Maintenance, and Consent Procedures. Current HIV/AIDS Reports 2020;17(3):180 View
  11. Rendina H, Talan A, Sizemore K, Tavella N, Salfas B, Shalhav O, Westmoreland D, Mustanski B, Rodríguez-Díaz C. Examining inequities in rates of undiagnosed HIV and rectal STIs in a large nationwide cohort study of sexual minority men. Sexually Transmitted Infections 2021:sextrans-2021-055047 View
  12. Franco D, Gonzalez G, Hines K, Mouchtouris N, Sharan A, Harrop J. Commentary: Developing a Prediction Model for Identification of Distinct Perioperative Clinical Stages in Spine Surgery With Smartphone-Based Mobility Data. Neurosurgery 2022;90(6):e163 View
  13. Nunes Vilaza G, Coyle D, Bardram J. Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey. Journal of Medical Internet Research 2021;23(10):e31294 View
  14. Khati A, Wickersham J, Rosen A, Luces J, Copenhaver N, Jeri-Wahrhaftig A, Ab Halim M, Azwa I, Gautam K, Ooi K, Shrestha R. Ethical Issues in the Use of Smartphone Apps for HIV Prevention in Malaysia: Focus Group Study With Men Who Have Sex With Men. JMIR Formative Research 2022;6(12):e42939 View
  15. Goldberg E, Rosen R, Dizon D, Langdon K, Davoodi N, Wray T, Nugent N, Dunsiger S, Ranney M. Using Social Media for Clinical Research: Recommendations and Examples From the Brown-Lifespan Center for Digital Health. Journal of Medical Internet Research 2022;24(6):e35804 View
  16. Kasianczuk M. Experiences of respondent-driven sampling in online research among men who have sex with men in other countries (literature review). Ukrainian Society 2023;85(2):168 View
  17. Wyant K, Moshontz H, Ward S, Fronk G, Curtin J. Acceptability of Personal Sensing Among People With Alcohol Use Disorder: Observational Study. JMIR mHealth and uHealth 2023;11:e41833 View
  18. Yuan C, Tseng Y, Strong C. Understanding and Designing Multi-level Preventive Medication Support Against HIV for Men who Have Sex with Men in Taiwan. Proceedings of the ACM on Human-Computer Interaction 2023;7(CSCW2):1 View
  19. Cascalheira C, Hong C, Beltran R, Karkkainen K, Beikzadeh M, Sarrafzadeh M, Holloway I. Analysis of Smartphone Text Data Related to mpox from a U.S. Sample of Gay, Bisexual, and Other Men Who Have Sex with Men During the 2022 Outbreak. LGBT Health 2023;10(7):560 View
  20. Taylor M, Kennedy H, Oman S. Challenging assumptions about the relationship between awareness of and attitudes to data uses amongst the UK public. The Information Society 2024;40(1):32 View
  21. Silva-Sánchez C, Pedrero Castillo V. Ethical considerations for research with sexual and gender minorities. Salud, Ciencia y Tecnología 2023;3:647 View
  22. Chai Y, Liu H, Zhu H, Pan Y, Zhou A, Liu H, Liu J, Qian Y. A profile similarity-based personalized federated learning method for wearable sensor-based human activity recognition. Information & Management 2024;61(7):103922 View
  23. Johansson M, Romero D, Jakobson M, Heinemans N, Lindner P. Digital interventions targeting excessive substance use and substance use disorders: a comprehensive and systematic scoping review and bibliometric analysis. Frontiers in Psychiatry 2024;15 View
  24. English D, Carter J, Forbes N, Tilove A, Smith J, Bowleg L, Rendina H. “Straight-acting white for same”: In-person and online/app-based discrimination exposure among sexual minority men. Sexual and Gender Diversity in Social Services 2024;36(4):556 View
  25. Song S, Ashton M, Yoo R, Lkhagvajav Z, Wright R, Mathews D, Taylor C. Participant Contributions to Person-generated Health Data Research Using Mobile Devices: A Scoping Review (Preprint). Journal of Medical Internet Research 2023 View

Books/Policy Documents

  1. Martinez-Martin N. Ethical Dimensions of Commercial and DIY Neurotechnologies. View
  2. Mukul I, Hasan M, Zahid Hassan M. Intelligent Computing and Optimization. View
  3. Martinez-Martin N. Artificial Intelligence in Brain and Mental Health: Philosophical, Ethical & Policy Issues. View