Published on in Vol 20, No 12 (2018): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/9701, first published .
Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review

Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review

Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review

Journals

  1. Dai Y, Zheng H, Liang H, Li R, Lan M, Zeng J. Parental Self-efficacy and Health-related Outcomes Among Children with Hirschsprung Disease: A Cross-sectional Study. Journal of Pediatric Nursing 2020;53:e164 View
  2. Elliott S, Dyson M, Wilkes G, Zimmermann G, Chambers C, Wittmeier K, Russell D, Scott S, Thomson D, Hartling L. Considerations for Health Researchers Using Social Media for Knowledge Translation: Multiple Case Study. Journal of Medical Internet Research 2020;22(7):e15121 View
  3. Paz-Pascual C, Artieta-Pinedo I, Grandes G. Consensus on priorities in maternal education: results of Delphi and nominal group technique approaches. BMC Pregnancy and Childbirth 2019;19(1) View
  4. Kyrklund K, Sloots C, de Blaauw I, Bjørnland K, Rolle U, Cavalieri D, Francalanci P, Fusaro F, Lemli A, Schwarzer N, Fascetti-Leon F, Thapar N, Johansen L, Berrebi D, Hugot J, Crétolle C, Brooks A, Hofstra R, Wester T, Pakarinen M. ERNICA guidelines for the management of rectosigmoid Hirschsprung’s disease. Orphanet Journal of Rare Diseases 2020;15(1) View
  5. Telborn L, Tofft L, Kristensson Hallström I, Waldenvik F, Axelsson I, Stenström P. Diet plays a central role in parental self‐treatment of children with Hirschsprung’s disease—a qualitative study. Acta Paediatrica 2021;110(9):2610 View
  6. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View
  7. Aguayo G, Goetzinger C, Scibilia R, Fischer A, Seuring T, Tran V, Ravaud P, Bereczky T, Huiart L, Fagherazzi G. Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study. Journal of Medical Internet Research 2021;23(12):e25743 View
  8. Wang D, Zhu T, Zhu L, Ji C, Zhou B, Zhang G, Yin Q, Yang H, Feng J. Screening of undernutrition in children with Hirschsprung disease using preoperative anthropometric parameters: A multicenter cross‐sectional study. Journal of Parenteral and Enteral Nutrition 2023;47(1):151 View
  9. Glegg S, Costello C, Barnaby S, Cassidy C, Sibley K, Russell K, Kingsnorth S, Pritchard L, de Camargo O, Andersen J, Bellefeuille S, Cross A, Curran J, Hesketh K, Layco J, Reynolds J, Robeson P, Straus S, Wittmeier K. Connecting for Care: a protocol for a mixed-method social network analysis to advance knowledge translation in the field of child development and rehabilitation. Implementation Science Communications 2022;3(1) View
  10. Berrios C, Bollinger J, Yan J, Biesecker B, Chakravarti A. Identifying Needs, Challenges, and Benefits Among Adults and Parents of Children With Hirschsprung Disease. Journal of Pediatric Gastroenterology and Nutrition 2022;74(5) View
  11. Violani C, Grano C, Fernandes M, Prato A, Feitz W, Wijnen R, Battye M, Schwarzer N, Lemli A, Cavalieri D, Aminoff D. The Transition of Care for Patients with Anorectal Malformations and Hirschsprung Disease: A European Survey. European Journal of Pediatric Surgery 2023;33(03):191 View
  12. Telborn L, Granéli C, Axelsson I, Stenström P. Children with Hirschsprung’s Disease Report Dietary Effects on Gastrointestinal Complaints More Frequently than Controls. Children 2023;10(9):1543 View
  13. Godbole N, Paliwoda E, Gajjar A, Gupta N, Nguyen A, Nguyen A, Alexander R. Patient and Caregiver Perception of Adenoidectomies: A Non‐Real‐World Social Media Analysis. OTO Open 2024;8(1) View
  14. Lindert J, Schulze F, Märzheuser S. Bowel Management in Hirschsprung Disease—Pre-, Peri- and Postoperative Care for Primary Pull-Through. Children 2024;11(5):588 View