Identifying Information Needs for Hirschsprung Disease Through Caregiver Involvement via Social Media: A Prioritization Study and Literature Review

Kristy DM Wittmeier   ^{1, 2} , BMRPT, MSc, PhD ;   Kendall Hobbs-Murison   ² , RN, BN ;   Cindy Holland   ^{1, 2, 3} , RN, MN, NP ;   Elizabeth Crawford   ⁴ ;   Hal Loewen   ⁵ , MLIS ;   Melanie Morris   ^{1, 2, 3} , MD, FRCSC ;   Suyin Lum Min   ^{1, 2, 3} , MD, FRCSC ;   Ahmed Abou-Setta   ⁶ , MD, PhD ;   Richard Keijzer   ^{1, 2, 3} , MD, MSc, PhD

¹ Department of Pediatrics and Child Health, Max Rady College of Medicine, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB, Canada

² Children's Hospital Research Institute of Manitoba, Winnipeg, MB, Canada

³ Department of Surgery, Max Rady College of Medicine, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB, Canada

⁴ Swish Productions Ltd, Winnipeg, MB, Canada

⁵ Neil John McLean Library, University of Manitoba, Winnipeg, MB, Canada

⁶ George and Fay Yee Centre for Healthcare Innovation, Winnipeg, MB, Canada