This paper is in the following e-collection/theme issue:

Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1643) New Methods (946) Methods and Feasibility Studies (380) Recruitment of Research Participants (297)

Published on in Vol 20, No 1 (2018): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/7683, first published .
Leveraging Social Networking Sites for an Autoimmune Hepatitis Genetic Repository: Pilot Study to Evaluate Feasibility

Leveraging Social Networking Sites for an Autoimmune Hepatitis Genetic Repository: Pilot Study to Evaluate Feasibility

Leveraging Social Networking Sites for an Autoimmune Hepatitis Genetic Repository: Pilot Study to Evaluate Feasibility

Authors of this article:

Megan Comerford1 Author Orcid Image ;   Rachel Fogel1 Author Orcid Image ;   James Robert Bailey2 Author Orcid Image ;   Prianka Chilukuri2 Author Orcid Image ;   Naga Chalasani1 Author Orcid Image ;   Craig Steven Lammert1 Author Orcid Image
Article Authors Cited by (17) Tweetations (16) Metrics

Journals

  1. Mathur K, Vuppalanchi V, Gelow K, Vuppalanchi R, Lammert C. Cannabidiol (CBD) Consumption and Perceived Impact on Extrahepatic Symptoms in Patients with Autoimmune Hepatitis. Digestive Diseases and Sciences 2020;65(1):322 View
  2. Lammert C, McKinnon E, Chalasani N, Phillips E. Novel HLA Class I Alleles Outside the Extended DR3 Haplotype Are Protective against Autoimmune Hepatitis. Clinical and Translational Gastroenterology 2019;10(6):e00032 View
  3. Glavind J, Boie S, Glavind E, Fuglsang J. Risk of recurrent acute fatty liver of pregnancy: survey from a social media group. American Journal of Obstetrics & Gynecology MFM 2020;2(2):100085 View
  4. Fogel R, Comerford M, Chilukuri P, Orman E, Chalasani N, Lammert C. Extrahepatic Autoimmune Diseases are Prevalent in Autoimmune Hepatitis Patients and Their First-Degree Relatives: Survey Study. Interactive Journal of Medical Research 2018;7(2):e18 View
  5. Nørfeldt L, Bøtker J, Edinger M, Genina N, Rantanen J. Cryptopharmaceuticals: Increasing the Safety of Medication by a Blockchain of Pharmaceutical Products. Journal of Pharmaceutical Sciences 2019;108(9):2838 View
  6. Liu X, Jiang S, Sun M, Chi X. Examining Patterns of Information Exchange and Social Support in a Web-Based Health Community: Exponential Random Graph Models. Journal of Medical Internet Research 2020;22(9):e18062 View
  7. Riley W, Oh A, Aklin W, Wolff-Hughes D. National Institutes of Health Support of Digital Health Behavior Research. Health Education & Behavior 2019;46(2_suppl):12S View
  8. Chalasani S, Mathur K, Shammas N, Orman E, Vuppalanchi R, Lammert C. Hepatic steatosis is highly prevalent but is not correlated with stiffness in autoimmune hepatitis. Medicine 2020;99(42):e22805 View
  9. Carlock G, Manning K, Leslie E. Feasibility of Social Media Recruitment for Orofacial Cleft Genetic Research. The Cleft Palate Craniofacial Journal 2022;59(6):701 View
  10. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View
  11. Vuppalanchi V, Gelow K, Green K, Vuppalanchi R, Lammert C. Behaviors, symptoms, and outcomes of North American patients with autoimmune hepatitis during the COVID-19 pandemic. Journal of Investigative Medicine 2021;69(8):1426 View
  12. Lee B, Tana M, Kahn J, Dara L. We Are Not Immune: Racial and Ethnic Disparities in Autoimmune Liver Diseases. Hepatology 2021 View
  13. Jones E, Watkins M, Anderson E, Gelow K, Green K, Draucker C, Lammert C. Overlooked Symptoms in Autoimmune Hepatitis Negatively Impact Many Facets of Life. Digestive Diseases and Sciences 2023;68(1):77 View
  14. Francisco R, Brasil S, Pascoal C, Jaeken J, Liddle M, Videira P, dos Reis Ferreira V. The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ). Orphanet Journal of Rare Diseases 2022;17(1) View
  15. Tana M, Klepper A, Lyden A, Pisco A, Phelps M, McGee B, Green K, Feng S, DeRisi J, Crawford E, Lammert C, Colombo G. Transcriptomic profiling of blood from autoimmune hepatitis patients reveals potential mechanisms with implications for management. PLOS ONE 2022;17(3):e0264307 View
  16. White V, Alexiadis M, Eroh K, Ackermann M, Rodgers S, Langdale L, Armour N, Jobling T, Fuller P, Chu S. How social media can help to understand treatment experiences of survivors of rare cancers: Findings from the Granulosa Cell Tumor Survivor Sisters Facebook group member survey. Cancer 2023;129(14):2224 View
  17. Naftaly J, Feldman E, Greenley R. Perceived Stigma in Patients with Autoimmune Hepatitis. Journal of Clinical Psychology in Medical Settings 2024;31(2):455 View