Published on in Vol 19, No 9 (2017): September

Putting the Focus Back on the Patient: How Privacy Concerns Affect Personal Health Information Sharing Intentions

Putting the Focus Back on the Patient: How Privacy Concerns Affect Personal Health Information Sharing Intentions

Putting the Focus Back on the Patient: How Privacy Concerns Affect Personal Health Information Sharing Intentions

Journals

  1. Alaqra A, Fischer-Hübner S, Framner E. Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients. Journal of Medical Internet Research 2018;20(12):e10954 View
  2. Ivanova J, Grando A, Murcko A, Saks M, Whitfield M, Dye C, Chern D. Mental health professionals’ perceptions on patients control of data sharing. Health Informatics Journal 2020;26(3):2011 View
  3. Nielsen A, Kidholm K, Kayser L. Patients’ reasons for non-use of digital patient-reported outcome concepts: A scoping review. Health Informatics Journal 2020;26(4):2811 View
  4. Poss-Doering R, Kunz A, Pohlmann S, Hofmann H, Kiel M, Winkler E, Ose D, Szecsenyi J. Utilizing a Prototype Patient-Controlled Electronic Health Record in Germany: Qualitative Analysis of User-Reported Perceptions and Perspectives. JMIR Formative Research 2018;2(2):e10411 View
  5. Mayer G, Gronewold N, Alvarez S, Bruns B, Hilbel T, Schultz J. Acceptance and Expectations of Medical Experts, Students, and Patients Toward Electronic Mental Health Apps: Cross-Sectional Quantitative and Qualitative Survey Study. JMIR Mental Health 2019;6(11):e14018 View
  6. Shen N, Sequeira L, Silver M, Carter-Langford A, Strauss J, Wiljer D. Patient Privacy Perspectives on Health Information Exchange in a Mental Health Context: Qualitative Study. JMIR Mental Health 2019;6(11):e13306 View
  7. Magsamen-Conrad K, Wang F, Tetteh D, Lee Y. Using Technology Adoption Theory and a Lifespan Approach to Develop a Theoretical Framework for eHealth Literacy: Extending UTAUT. Health Communication 2020;35(12):1435 View
  8. Zhu P, Shen J, Xu M. Patients’ Willingness to Share Information in Online Patient Communities: Questionnaire Study. Journal of Medical Internet Research 2020;22(4):e16546 View
  9. Grundstrom C, Korhonen O, Väyrynen K, Isomursu M. Insurance Customers’ Expectations for Sharing Health Data: Qualitative Survey Study. JMIR Medical Informatics 2020;8(3):e16102 View
  10. De Marchis E, Hessler D, Fichtenberg C, Adler N, Byhoff E, Cohen A, Doran K, Ettinger de Cuba S, Fleegler E, Lewis C, Lindau S, Tung E, Huebschmann A, Prather A, Raven M, Gavin N, Jepson S, Johnson W, Ochoa E, Olson A, Sandel M, Sheward R, Gottlieb L. Part I: A Quantitative Study of Social Risk Screening Acceptability in Patients and Caregivers. American Journal of Preventive Medicine 2019;57(6):S25 View
  11. Esmaeilzadeh P, Mirzaei T, Dharanikota S. The impact of data entry structures on perceptions of individuals with chronic mental disorders and physical diseases towards health information sharing. International Journal of Medical Informatics 2020;141:104157 View
  12. Park H, Kim K, Soh J, Hyun Y, Jang S, Lee S, Hwang G, Kim H. Factors Influencing Acceptance of Personal Health Record Apps for Workplace Health Promotion: Cross-Sectional Questionnaire Study. JMIR mHealth and uHealth 2020;8(6):e16723 View
  13. Abdelhamid M. The Role of Health Concerns in Phishing Susceptibility: Survey Design Study. Journal of Medical Internet Research 2020;22(5):e18394 View
  14. DePuccio M, Di Tosto G, Walker D, McAlearney A. Patients’ Perceptions About Medical Record Privacy and Security: Implications for Withholding of Information During the COVID-19 Pandemic. Journal of General Internal Medicine 2020;35(10):3122 View
  15. Yang X, Parton J, Lewis D, Yang N, Hudnall M. Effects of Patient-Physician Relationship on Withholding Information Behavior and Its Trend: Findings From Health Information National Trends Survey 2011-2018. Journal of Medical Internet Research 2020;22(1):e16713 View
  16. Abdelhamid M. Greater patient health information control to improve the sustainability of health information exchanges. Journal of Biomedical Informatics 2018;83:150 View
  17. Smit E, Bol N. From self-reliers to expert-dependents: identifying classes based on health-related need for autonomy and need for external control among mobile users. Media Psychology 2020;23(3):391 View
  18. Karampela M, Ouhbi S, Isomursu M. Connected Health User Willingness to Share Personal Health Data: Questionnaire Study. Journal of Medical Internet Research 2019;21(11):e14537 View
  19. Dang Y, Guo S, Guo X, Wang M, Xie K. Privacy Concerns About Health Information Disclosure in Mobile Health: Questionnaire Study Investigating the Moderation Effect of Social Support. JMIR mHealth and uHealth 2021;9(2):e19594 View
  20. Li P, Xu L, Tang T, Wu X, Huang C. Users’ Willingness to Share Health Information in a Social Question-and-Answer Community: Cross-sectional Survey in China. JMIR Medical Informatics 2021;9(3):e26265 View
  21. Mindel C, Oppong C, Jacob J. Exploring the experiences of young people completing the YP‐CORE to capture clinical need on a digital counselling platform. Counselling and Psychotherapy Research 2021;21(4):923 View
  22. Yan Y, Yang C, Fang S. Patient‐centred e‐health supports value cocreation and quality of medical care in Taiwan. Health Information & Libraries Journal 2022;39(1):68 View
  23. Nunes Vilaza G, Coyle D, Bardram J. Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey. Journal of Medical Internet Research 2021;23(10):e31294 View
  24. Huang C, Tian S, Wang R, Wang X. High-level talents’ perceive overqualification and withdrawal behavior: A power perspective based on survival needs. Frontiers in Psychology 2022;13 View
  25. Le L, Hoang P, Pham H. Sharing health information across online platforms: A systematic review. Health Communication 2023;38(8):1550 View
  26. Shen N, Kassam I, Zhao H, Chen S, Wang W, Wickham S, Strudwick G, Carter-Langford A. Foundations for Meaningful Consent in Canada’s Digital Health Ecosystem: Retrospective Study. JMIR Medical Informatics 2022;10(3):e30986 View
  27. Henkenjohann R. Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps—A Mixed-Methods Study. International Journal of Environmental Research and Public Health 2021;18(18):9553 View
  28. Sun S, Zhang J, Zhu Y, Jiang M, Chen S. Exploring users' willingness to disclose personal information in online healthcare communities: The role of satisfaction. Technological Forecasting and Social Change 2022;178:121596 View
  29. Raj M, Ryan K, Amara P, Nong P, Calhoun K, Trinidad M, Thiel D, Spector-Bagdady K, De Vries R, Kardia S, Platt J. Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations. JMIR Cancer 2023;9:e39631 View
  30. Horsham C, Janda M, Kerr M, Soyer H, Caffery L. Consumer perceptions on privacy and confidentiality in dermatology for 3D total‐body imaging. Australasian Journal of Dermatology 2023;64(1):118 View
  31. Agrawal L, Ndabu T, Mulgund P, Sharman R. Factors Affecting the Extent of Patients’ Electronic Medical Record Use: An Empirical Study Focusing on System and Patient Characteristics. Journal of Medical Internet Research 2021;23(10):e30637 View
  32. Köngeter A, Schickhardt C, Jungkunz M, Bergbold S, Mehlis K, Winkler E. Patients’ Willingness to Provide Their Clinical Data for Research Purposes and Acceptance of Different Consent Models: Findings From a Representative Survey of Patients With Cancer. Journal of Medical Internet Research 2022;24(8):e37665 View
  33. Abdelhamid M. Fitness Tracker Information and Privacy Management: Empirical Study. Journal of Medical Internet Research 2021;23(11):e23059 View
  34. Ivanova J, Tang T, Idouraine N, Murcko A, Whitfield M, Dye C, Chern D, Grando A. Behavioral Health Professionals’ Perceptions on Patient-Controlled Granular Information Sharing (Part 2): Focus Group Study. JMIR Mental Health 2022;9(4):e18792 View
  35. Berkowitz R, Bui L, Shen Z, Pressman A, Moreno M, Brown S, Nilon A, Miller-Rosales C, Azar K. Evaluation of a social determinants of health screening questionnaire and workflow pilot within an adult ambulatory clinic. BMC Family Practice 2021;22(1) View
  36. Nurgalieva L, Ryan S, Doherty G. Attitudes Towards COVID-19 Contact Tracing Apps: A Cross-National Survey. IEEE Access 2023;11:16509 View
  37. Reuland B, Redman C, Kneifati-Hayek J, Fernandes Y, Kosber R, Ortuno-Garcia C, Crossman D, Salmasian H, Chen A, Barchi D, Applebaum J, Green R, Adelman J. Observation and Patients’ Perceptions of Incorporating Their Photograph Into the Electronic Health Record. Journal of Patient Safety 2022;18(5):377 View
  38. Ahram M, Abdelgawad F, ElHafeez S, Abdelhafiz A, Ibrahim M, Elgamri A, Mohammed Z, El-Rhazi K, Elsebaie E, Gamel E, Shahouri M, Mostafa N, Adarmouch L, Silverman H. Perceptions, attitudes, and willingness of the public in low- and middle-income countries of the Arab region to participate in biobank research. BMC Medical Ethics 2022;23(1) View
  39. Busch-Casler J, Radic M. Trust and Health Information Exchanges: Qualitative Analysis of the Intent to Share Personal Health Information. Journal of Medical Internet Research 2023;25:e41635 View
  40. Krishnan P, Krishnan K. Knowledge and Perception of Telemedicine and Telerehabilitation on patient data sharing during COVID-19. Research Journal of Pharmacy and Technology 2023:3109 View
  41. Li S, Peng K, Zhu B, Li Z, Zhang B, Chen H, Li R. Research on Users’ Privacy-Sharing Intentions in the Health Data Tracking System Providing Personalized Services and Public Services. Sustainability 2023;15(22):15709 View
  42. Janssen A, Keep M, Selvadurai H, Shaw T. Health professionals’ experiences with a patient portal pre and post launch: A qualitative study. Health Policy and Technology 2023;12(3):100761 View
  43. Bartali V, van Velsen L. An experiment on data sharing options designs for eHealth interventions. Internet Interventions 2023;33:100642 View
  44. Haynes L, Casareno C, Fatema S, Augustyn M, Eppes E, Mclean M, Hennessey Z. “What Matters to You?”: A Participant-Centered Approach to Needs Identification and Referral to Community Resources. Maternal and Child Health Journal 2024;28(5):905 View
  45. Baines R, Stevens S, Austin D, Anil K, Bradwell H, Cooper L, Maramba I, Chatterjee A, Leigh S. Patient and Public Willingness to Share Personal Health Data for Third-Party or Secondary Uses: Systematic Review. Journal of Medical Internet Research 2024;26:e50421 View
  46. Dang P, Chavez A, Pham C, Tipton M, Woodard L, Adepoju O. Proxy use of patient portals on behalf of children: Federally Qualified Health Centers as a case study. DIGITAL HEALTH 2024;10 View
  47. Berridge C, Zhou Y, Robillard J, Kaye J. AI Companion Robot Data Sharing: Preferences of an Online Cohort and Policy Implications. Journal of Elder Policy 2023;2(3):19 View
  48. Kuo K, Talley P, Cheng T. Why do in-patients conceal hospitalization information?: an analysis based on association rule mining. Multimedia Tools and Applications 2024 View
  49. Ye B, Chen C, Zhang J. Paths of knowledge sharing of core and periphery users in online health communities: social support perspective. Aslib Journal of Information Management 2024 View

Books/Policy Documents

  1. Roberts C, Palilonis J. HCI International 2021 - Posters. View