Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment

Jacqueline Lorene Bender   ^{1, 2} , PhD ;   Alaina B Cyr   ³ , BSc ;   Luk Arbuckle   ⁴ , BSc ;   Lorraine E Ferris   ² , LLM, PhD

¹ Electronic Living Laboratory for Interdisciplinary Cancer Survivorship Research (ELLICSR) Health, Wellness, and Cancer Survivorship Centre, Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada

² Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada

³ Cancer Education, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada

⁴ Electronic Health Information Lab, Children's Hospital of Eastern Ontario (CHEO) Research Institute, Ottawa, ON, Canada