Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment
Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment
Jacqueline Lorene Bender
1, 2
, PhD ;
Alaina B Cyr
3
, BSc ;
Luk Arbuckle
4
, BSc ;
Lorraine E Ferris
2
, LLM, PhD
1
Electronic Living Laboratory for Interdisciplinary Cancer Survivorship Research (ELLICSR) Health, Wellness, and Cancer Survivorship Centre, Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada
2
Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada
3
Cancer Education, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada
4
Electronic Health Information Lab, Children's Hospital of Eastern Ontario (CHEO) Research Institute, Ottawa, ON, Canada
Corresponding Author:
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Jacqueline Lorene Bender, PhD
-
Electronic Living Laboratory for Interdisciplinary Cancer Survivorship Research (ELLICSR) Health, Wellness, and Cancer Survivorship Centre
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Department of Supportive Care
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Princess Margaret Cancer Centre, University Health Network
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B PMB 130 Toronto General Hospital
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585 University Ave
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Toronto, ON, M5G 2C4
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Canada
-
Phone:
1 416-581-8606
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Email: jackie.bender@uhnresearch.ca