Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

Karen Spencer   ^{1 *} , PhD ;   Caroline Sanders   ^{2 *} , PhD ;   Edgar A Whitley   ³ , PhD ;   David Lund   ⁴ , PhD ;   Jane Kaye   ⁵ , PhD ;   William Gregory Dixon   ^{1, 6, 7} , MRCP(UK),PhD

¹ Arthritis Research UK Centre for Epidemiology, Manchester Academic Health Sciences Centre, The University of Manchester, Manchester, United Kingdom

² National Institute for Health Research (NIHR) School for Primary Care Research, Manchester Academic Health Sciences Centre, The University of Manchester, Manchester, United Kingdom

³ Department of Management, London School of Economics and Political Science, London, United Kingdom

⁴ HW Communications Ltd, Lancaster, United Kingdom

⁵ Centre for Health, Law and Emerging Technologies, Nuffield Department of Population Health, University of Oxford, Oxford, United Kingdom

⁶ Health eResearch Centre, Farr Institute, Manchester Academic Health Sciences Centre, The University of Manchester, Manchester, United Kingdom

⁷ Department of Rheumatology, Salford Royal National Health Service (NHS) Foundation Trust, Salford, United Kingdom

*these authors contributed equally