Published on in Vol 18, No 11 (2016): November
Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability
Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability
@RaeofSunshine79 @GlobalGenes @EveryLifeOrg Thanks @RaeofSunshine79. This is one of the slides in my presentation.… https://t.co/qNg2NWRv4P
3:13 PM · Jul 21, 2018
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@cross_acc @DevPeds @Dr_Gorter @FieryFrancine @RTeplicky PPR is on the road! ❤️ https://t.co/Lf1Ym4gLKN
3:32 PM · Jul 21, 2018
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RT @colleen_young: @RaeofSunshine79 @GlobalGenes @EveryLifeOrg Thanks @RaeofSunshine79. This is one of the slides in my presentation. Your…
4:12 PM · Jul 21, 2018
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RT @RaeofSunshine79: @cross_acc @DevPeds @Dr_Gorter @FieryFrancine @RTeplicky PPR is on the road! ❤️ https://t.co/Lf1Ym4gLKN
4:26 PM · Jul 21, 2018
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@ShonaDav @notanautismmom This is something that’s changing in a large scale way here in Canada but it’s still a ve… https://t.co/CLIQJWfzi4
3:19 PM · Sep 26, 2018
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@MS_JanetP See this study “Knowledge Exchange and Discovery in the Age of Social Media: ... Parent-Led Web-Based Re… https://t.co/XVmVYU8Nh7
6:49 PM · Nov 14, 2018
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RT @colleen_young: @MS_JanetP See this study “Knowledge Exchange and Discovery in the Age of Social Media: ... Parent-Led Web-Based Researc…
1:34 PM · Nov 15, 2018
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RT @colleen_young: @MS_JanetP See this study “Knowledge Exchange and Discovery in the Age of Social Media: ... Parent-Led Web-Based Researc…
8:34 PM · Nov 30, 2018
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@geneticmaize @KShikakothomas @drjonlai This explains a little more about my role in projects.… https://t.co/46RYeSxpNp
11:52 PM · Dec 07, 2018
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Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnersh… https://t.co/QQknVRbiQL
8:11 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
8:16 PM · Dec 12, 2018
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KBHN-@BrainCanada Fellows and KBHN Trainees, want to gain experience with patient-facing research? Connect with… https://t.co/YXXSgqj4Qy
8:32 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
8:33 PM · Dec 12, 2018
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RT @KidsBrainHealth: KBHN-@BrainCanada Fellows and KBHN Trainees, want to gain experience with patient-facing research? Connect with @Raeof…
8:36 PM · Dec 12, 2018
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RT @KidsBrainHealth: KBHN-@BrainCanada Fellows and KBHN Trainees, want to gain experience with patient-facing research? Connect with @Raeof…
8:54 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
9:01 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
10:19 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
10:19 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
10:31 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
10:40 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
11:40 PM · Dec 12, 2018
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RT @KidsBrainHealth: KBHN-@BrainCanada Fellows and KBHN Trainees, want to gain experience with patient-facing research? Connect with @Raeof…
11:41 PM · Dec 12, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
2:43 PM · Dec 13, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
3:06 PM · Dec 13, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
10:55 PM · Dec 13, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
1:29 AM · Dec 14, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
2:49 PM · Dec 14, 2018
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RT @KidsBrainHealth: KBHN-@BrainCanada Fellows and KBHN Trainees, want to gain experience with patient-facing research? Connect with @Raeof…
3:47 PM · Dec 15, 2018
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@SMicsinszki @KidsBrainHealth @autismspeaks @AutismONT @autismspeaksCAN @AutismCanada @betternightsday If you’d lik… https://t.co/mbJ7rBHQy3
3:19 PM · Dec 21, 2018
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RT @RaeofSunshine79: Are u a grad or PhD student studying in the area of childhood disability? Care to share your work or seek partnerships…
2:08 PM · Jan 04, 2019
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Thankful to work in a collaborative environment that does this well and has been inspiring/mentoring families acros… https://t.co/Ef0w5qpKz1
10:53 PM · Feb 22, 2019
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@janoldenburg An excellent question! In my little corner of the world this is a subject that’s still very new. What… https://t.co/13a0sKSQ9N
1:22 PM · Mar 20, 2019
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RT @RaeofSunshine79: @janoldenburg An excellent question! In my little corner of the world this is a subject that’s still very new. What I…
1:33 PM · Mar 20, 2019
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RT @RaeofSunshine79: @janoldenburg An excellent question! In my little corner of the world this is a subject that’s still very new. What I…
4:22 PM · Mar 20, 2019
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If any #researchers are interested in the preliminary study developed from this project, here is a link to our 2016… https://t.co/kHugVdF5qL
8:03 PM · May 28, 2019
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RT @RaeofSunshine79: If any #researchers are interested in the preliminary study developed from this project, here is a link to our 2016 pa…
8:09 PM · May 28, 2019
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@patientrev Q3 This paper has been a long running group effort to make collaboration/engagement/knowledge translati… https://t.co/PzIeI7niN1
1:46 AM · Jul 09, 2019
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RT @RaeofSunshine79: @patientrev Q3 This paper has been a long running group effort to make collaboration/engagement/knowledge translation…
1:47 AM · Jul 09, 2019
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RT @RaeofSunshine79: @patientrev Q3 This paper has been a long running group effort to make collaboration/engagement/knowledge translation…
2:32 AM · Jul 09, 2019
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@hcldr T3: currently working on an integrated KT project with Canadian and australian families. The involvement is… https://t.co/PFr2US5qJ3
1:12 AM · Jul 17, 2019
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RT @RaeofSunshine79: @hcldr T3: currently working on an integrated KT project with Canadian and australian families. The involvement is vas…
1:13 AM · Jul 17, 2019
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RT @RaeofSunshine79: @hcldr T3: currently working on an integrated KT project with Canadian and australian families. The involvement is vas…
1:14 AM · Jul 17, 2019
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RT @RaeofSunshine79: @hcldr T3: currently working on an integrated KT project with Canadian and australian families. The involvement is vas…
1:43 AM · Jul 17, 2019
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RT @RaeofSunshine79: @hcldr T3: currently working on an integrated KT project with Canadian and australian families. The involvement is vas…
2:04 AM · Jul 17, 2019
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@GailZahtz @anetto How that balances out depends on context really and accessible methodologies for engagement. Thi… https://t.co/mYHzL6hfjn
2:35 AM · Nov 06, 2019
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RT @RaeofSunshine79: @GailZahtz @anetto How that balances out depends on context really and accessible methodologies for engagement. This i…
2:36 AM · Nov 06, 2019
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Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a… https://t.co/AUcQnf6jCQ
2:28 PM · Nov 11, 2016
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Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Pare… https://t.co/3DT6UFckh6
2:31 PM · Nov 11, 2016
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#socmed as means of engaging families in research to ensure research & outcomes R meaningful to them https://t.co/Vm3KGRUUid
4:15 PM · Nov 11, 2016
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#KnowledgeExchange in the Age of #SocialMedia: #ParentLed Web Research Advisory Community for #Childhood… https://t.co/5VvJaEmBNp
4:30 PM · Nov 11, 2016
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JMedInternetRes: "#KnowledgeExchange in the Age of #SocialMedia: #ParentLed Web Research Advisory Community for #C… https://t.co/Ty0EJG67iW
4:31 PM · Nov 11, 2016
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So proud to be part of this great endeavour that is Parents Participating in Research with @canchild_ca! https://t.co/PMIbCheVGh
6:27 PM · Nov 11, 2016
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Me too! An awesome community.@DevPeds @mindthecompany @Dr_Gorter https://t.co/1VZa3V2HvT
8:21 PM · Nov 11, 2016
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Thanks to all parents, researchers @canchild_ca and funders for building this community! @mindthecompany… https://t.co/9EwzQbvHGc
9:39 PM · Nov 11, 2016
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RT @DevPeds: So proud to be part of this great endeavour that is Parents Participating in Research with @canchild_ca! https://t.co/PMIbCheV…
9:55 PM · Nov 11, 2016
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RT @Dr_Gorter: Thanks to all parents, researchers @canchild_ca and funders for building this community! @mindthecompany @russelldianne @Neu…
9:55 PM · Nov 11, 2016
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RT @Dr_Gorter: Thanks to all parents, researchers @canchild_ca and funders for building this community! @mindthecompany @russelldianne @Neu…
10:02 PM · Nov 11, 2016
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A great parent engagement and knowledge exchange story from the KT folks @canchild_ca https://t.co/7QqhpVu0WD
10:13 PM · Nov 11, 2016
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RT @JMedInternetRes: #KnowledgeExchange in the Age of #SocialMedia: #ParentLed Web Research Advisory Community for #Childhood #Disability h…
10:23 PM · Nov 11, 2016
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RT @SteveGentles: A great parent engagement and knowledge exchange story from the KT folks @canchild_ca https://t.co/7QqhpVu0WD
10:39 PM · Nov 11, 2016
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RT @Dr_Gorter: Thanks to all parents, researchers @canchild_ca and funders for building this community! @mindthecompany @russelldianne @Neu…
10:39 PM · Nov 11, 2016
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RT @russelldianne: Me too! An awesome community.@DevPeds @mindthecompany @Dr_Gorter https://t.co/1VZa3V2HvT
10:39 PM · Nov 11, 2016
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RT @DevPeds: So proud to be part of this great endeavour that is Parents Participating in Research with @canchild_ca! https://t.co/PMIbCheV…
10:43 PM · Nov 11, 2016
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RT @DevPeds: So proud to be part of this great endeavour that is Parents Participating in Research with @canchild_ca! https://t.co/PMIbCheV…
10:44 PM · Nov 11, 2016
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Congrats @mindthecompany @russelldianne on your paper https://t.co/oR37DWErga Parent-led online community for parents & researchers #hcsmca
11:43 PM · Nov 11, 2016
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RT @Dr_Gorter: Thanks to all parents, researchers @canchild_ca and funders for building this community! @mindthecompany @russelldianne @Neu…
11:45 PM · Nov 11, 2016
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RT @DevPeds: So proud to be part of this great endeavour that is Parents Participating in Research with @canchild_ca! https://t.co/PMIbCheV…
12:08 AM · Nov 12, 2016
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RT @JMedInternetRes: #KnowledgeExchange in the Age of #SocialMedia: #ParentLed Web Research Advisory Community for #Childhood #Disability h…
12:17 AM · Nov 12, 2016
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RT @SteveGentles: A great parent engagement and knowledge exchange story from the KT folks @canchild_ca https://t.co/7QqhpVu0WD
12:50 AM · Nov 12, 2016
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RT @russelldianne: Me too! An awesome community.@DevPeds @mindthecompany @Dr_Gorter https://t.co/1VZa3V2HvT
12:50 AM · Nov 12, 2016
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@hope4hivep2 @WendyKChung @rddysum @WSJ Have you seen this community of parents & researchers? https://t.co/oR37DWErga @mindthecompany
1:00 AM · Nov 12, 2016
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RT @colleen_young: @hope4hivep2 @WendyKChung @rddysum @WSJ Have you seen this community of parents & researchers? https://t.co/oR37DWErga @…
1:15 AM · Nov 12, 2016
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RT @colleen_young: Congrats @mindthecompany @russelldianne on your paper https://t.co/oR37DWErga Parent-led online community for parents &…
1:16 AM · Nov 12, 2016
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This is so great! Congrats to @mindthecompany & @russelldianne https://t.co/n97ksXXjym
5:22 AM · Nov 12, 2016
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RT @DevPeds: So proud to be part of this great endeavour that is Parents Participating in Research with @canchild_ca! https://t.co/PMIbCheV…
8:43 AM · Nov 12, 2016
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RT @JMedInternetRes: #KnowledgeExchange in the Age of #SocialMedia: #ParentLed Web Research Advisory Community for #Childhood #Disability h…
11:14 AM · Nov 12, 2016
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Terrific example of working together for research & detail of how you went about it... @NIHR_PRAI @SDenegri… https://t.co/iVsaxEdhjF
11:18 AM · Nov 12, 2016
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RT @sally_crowe: Terrific example of working together for research & detail of how you went about it... @NIHR_PRAI @SDenegri @KaleidoscopeP…
11:20 AM · Nov 12, 2016
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Happy to have our parents participating in research paper avail and open access. Thanks to a great community & tea… https://t.co/0Pt7QwAMyF
5:18 PM · Nov 12, 2016
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Siehe positives Beispiel https://t.co/W4NNhaSBQv https://t.co/vvObiVD8p7
12:16 AM · Nov 14, 2016
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@sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #MayoInOz
3:04 AM · Nov 14, 2016
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RT @colleen_young: @sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #Ma…
3:04 AM · Nov 14, 2016
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RT @colleen_young: @sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #Ma…
3:04 AM · Nov 14, 2016
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RT @colleen_young: @sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #Ma…
3:07 AM · Nov 14, 2016
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RT @colleen_young: @sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #Ma…
3:33 AM · Nov 14, 2016
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RT @colleen_young: @sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #Ma…
3:57 AM · Nov 14, 2016
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Good article @HeadNeckNZ online communities via @colleen_young #MayoInOz https://t.co/8tIWijJHag
4:00 AM · Nov 14, 2016
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RT @colleen_young: @sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #Ma…
4:26 AM · Nov 14, 2016
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Really cool idea: A Parent-Led Web-Based Research Advisory Community for Childhood Disability. https://t.co/DYdupzhHAf
2:27 PM · Nov 14, 2016
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How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://t.co/z3typCkjiQ
2:29 PM · Nov 14, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
2:31 PM · Nov 14, 2016
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Exciting work! So important to have patient, parent, and family perspectives included in research. https://t.co/Py6FzyJe5Y
2:38 PM · Nov 14, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
2:39 PM · Nov 14, 2016
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RT @kgapo: #socmed as means of engaging families in research to ensure research & outcomes R meaningful to them https://t.co/Vm3KGRUUid
2:55 PM · Nov 14, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
4:21 PM · Nov 14, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
4:42 PM · Nov 14, 2016
611
RT @kgapo: #socmed as means of engaging families in research to ensure research & outcomes R meaningful to them https://t.co/Vm3KGRUUid
4:46 PM · Nov 14, 2016
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RT @Dr_Gorter: Thanks to all parents, researchers @canchild_ca and funders for building this community! @mindthecompany @russelldianne @Neu…
4:53 PM · Nov 14, 2016
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RT @Dr_Gorter: Thanks to all parents, researchers @canchild_ca and funders for building this community! @mindthecompany @russelldianne @Neu…
5:13 PM · Nov 14, 2016
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RT @colleen_young: @sasanof Here is JMIR paper https://t.co/BJ3PQLUJg6 Parent-led online community for parents & researchers/physicians #Ma…
7:12 PM · Nov 14, 2016
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RT @Mac_Autism: Exciting work! So important to have patient, parent, and family perspectives included in research. https://t.co/Py6FzyJe5Y
12:32 AM · Nov 15, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
1:18 AM · Nov 15, 2016
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Great publication by @CanChild with wonderful insight on the use of social media in #KT. Thanks for sharing! https://t.co/ki0P8pKi5B
1:30 AM · Nov 15, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
1:31 AM · Nov 15, 2016
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RT @ChildBrightNet: Great publication by @CanChild with wonderful insight on the use of social media in #KT. Thanks for sharing! https://t.…
1:34 AM · Nov 15, 2016
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RT @ChildBrightNet: Great publication by @CanChild with wonderful insight on the use of social media in #KT. Thanks for sharing! https://t.…
3:11 AM · Nov 15, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
11:27 AM · Nov 15, 2016
611
RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
2:01 PM · Nov 15, 2016
611
RT @ChildBrightNet: Great publication by @CanChild with wonderful insight on the use of social media in #KT. Thanks for sharing! https://t.…
2:17 PM · Nov 15, 2016
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RT @ChildBrightNet: Great publication by @CanChild with wonderful insight on the use of social media in #KT. Thanks for sharing! https://t.…
3:45 PM · Nov 15, 2016
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Grateful for the community of parents, #CanChild researchers & funders who made this work possible! @NeuroDevNet… https://t.co/StpYGPhi79
4:30 PM · Nov 15, 2016
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RT @canchild_ca: Grateful for the community of parents, #CanChild researchers & funders who made this work possible! @NeuroDevNet #KT #rese…
7:02 PM · Nov 15, 2016
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RT @canchild_ca: Grateful for the community of parents, #CanChild researchers & funders who made this work possible! @NeuroDevNet #KT #rese…
7:25 PM · Nov 15, 2016
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RT @ChildBrightNet: Great publication by @CanChild with wonderful insight on the use of social media in #KT. Thanks for sharing! https://t.…
7:26 PM · Nov 15, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
8:30 PM · Nov 15, 2016
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More about Jenn @Mindthecompany & community she mobilized for parents of kids w/ special needs & research https://t.co/bZMhA44fbS #MayoinOz
10:13 PM · Nov 15, 2016
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RT @colleen_young: More about Jenn @Mindthecompany & community she mobilized for parents of kids w/ special needs & research https://t.co/b…
10:13 PM · Nov 15, 2016
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RT @colleen_young: More about Jenn @Mindthecompany & community she mobilized for parents of kids w/ special needs & research https://t.co/b…
10:30 PM · Nov 15, 2016
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RT @canchild_ca: Grateful for the community of parents, #CanChild researchers & funders who made this work possible! @NeuroDevNet #KT #rese…
3:42 AM · Nov 17, 2016
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Knowledge Exchange and Discovery in the Age of Social Media https://t.co/zBu44X7DNK
4:15 PM · Nov 17, 2016
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RT @ChildBrightNet: Great publication by @CanChild with wonderful insight on the use of social media in #KT. Thanks for sharing! https://t.…
12:11 AM · Nov 20, 2016
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Thankful for the wild ride @mindthecompany brought me on to help publish this! #Disability#patientengagement https://t.co/jvaGSEKEjQ
12:31 AM · Nov 25, 2016
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RT @RaeofSunshine79: Thankful for the wild ride @mindthecompany brought me on to help publish this! #Disability#patientengagement https://t…
12:44 AM · Nov 25, 2016
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RT @RaeofSunshine79: Thankful for the wild ride @mindthecompany brought me on to help publish this! #Disability#patientengagement https://t…
12:48 AM · Nov 25, 2016
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A top URL from #MayoInOz tweets earlier this month Use of #HCSM in parent engagement for childhood #disability wor… https://t.co/Ury4pBkYt3
11:51 AM · Nov 25, 2016
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RT @gmacscotland: A top URL from #MayoInOz tweets earlier this month Use of #HCSM in parent engagement for childhood #disability work http…
12:09 PM · Nov 25, 2016
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The Journey From Inception to Est'mt of Parent-Led Web-Based Research Adv Community for Childhood Disability https://t.co/3WS1BSiEfU
1:13 AM · Nov 26, 2016
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RT @JMedInternetRes: #KnowledgeExchange in the Age of #SocialMedia: #ParentLed Web Research Advisory Community for #Childhood #Disability h…
11:36 AM · Nov 26, 2016
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RT @canchild_ca: How can #SocialMedia enhance #research partnerships? Rd about our #KT journey w/ a #parent-led online community: https://…
12:01 AM · Nov 27, 2016
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Great example of technology for integrated knowledge transfer #goesbothways #iKT https://t.co/2znrRohM3F
2:05 PM · Nov 29, 2016
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RT @ASDMentalHealth: Great example of technology for integrated knowledge transfer #goesbothways #iKT https://t.co/2znrRohM3F
12:47 PM · Dec 05, 2016
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Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child… https://t.co/p2a3yzvjdn
7:23 AM · Jan 25, 2017
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RT @Pen_CRU: Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child #disability #res…
10:40 AM · Jan 25, 2017
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RT @Pen_CRU: Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child #disability #res…
1:34 PM · Jan 25, 2017
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RT @Pen_CRU: Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child #disability #res…
1:50 PM · Jan 25, 2017
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RT @Pen_CRU: Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child #disability #res…
1:50 PM · Jan 25, 2017
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RT @Pen_CRU: Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child #disability #res…
3:18 PM · Jan 25, 2017
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Using social media and parent inclusion to improve parent-researcher partnerships #NothingAboutUsWithoutUs #aac… https://t.co/Mmfh9b2UA9
3:48 PM · Jan 25, 2017
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RT @Pen_CRU: Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child #disability #res…
9:42 PM · Jan 25, 2017
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RT @JMedInternetRes: #KnowledgeExchange in the Age of #SocialMedia: #ParentLed Web Research Advisory Community for #Childhood #Disability h…
10:25 PM · Jan 25, 2017
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RT @Pen_CRU: Great paper from @canchild_ca @mindthecompany @DevPeds online method enables parents to be partners in #child #disability #res…
2:18 AM · Jan 26, 2017
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RT @familyAAC_PhD: Using social media and parent inclusion to improve parent-researcher partnerships #NothingAboutUsWithoutUs #aac #slpeeps…
12:13 PM · Jan 27, 2017
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Enabling parents to be partner in research! Great paper @russelldianne @canchild_ca https://t.co/9fNa8AZ0BL
9:32 PM · Jan 27, 2017
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RT @MarjolijnKetela: Enabling parents to be partner in research! Great paper @russelldianne @canchild_ca https://t.co/9fNa8AZ0BL
5:57 PM · Jan 28, 2017
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RT @MarjolijnKetela: Enabling parents to be partner in research! Great paper @russelldianne @canchild_ca https://t.co/9fNa8AZ0BL
6:51 PM · Jan 28, 2017
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@StartSchoolL8r Began the same way, through concerned #parents #sleep #startschoollater #teens https://t.co/T694xK1qS9
6:57 PM · Jan 28, 2017
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.@mindthecompany great reflections to share with our group! Cristin, what about adding researchers in your FB group… https://t.co/vPhuZeMppZ
4:35 PM · Jan 30, 2017
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#connectedacademic @canchild_ca has used facebook to engage with families and evaluated! https://t.co/CPojfEHdLf @melaniebarwick@ktaustralia
1:55 PM · Mar 30, 2017
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RT @BIMDG_: Social media to support research. https://t.co/fCl6eQRfsi #DMIMD17
5:29 PM · Apr 28, 2017
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@RaeofSunshine79 Very cool! Knowledge Exchange and Discovery in the Age of Social Media https://t.co/sLmGMT8KwH #hcldr
1:15 AM · May 03, 2017
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T3 for anyone curious about its effects on researchers #hcldr https://t.co/jvaGSEKEjQ https://t.co/sKaBURqJ3e
1:16 AM · May 03, 2017
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RT @pfanderson: @RaeofSunshine79 Very cool! Knowledge Exchange and Discovery in the Age of Social Media https://t.co/sLmGMT8KwH #hcldr
1:16 AM · May 03, 2017
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RT @RaeofSunshine79: T3 for anyone curious about its effects on researchers #hcldr https://t.co/jvaGSEKEjQ https://t.co/sKaBURqJ3e
1:17 AM · May 03, 2017
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RT @pfanderson: @RaeofSunshine79 Very cool! Knowledge Exchange and Discovery in the Age of Social Media https://t.co/sLmGMT8KwH #hcldr
1:30 AM · May 03, 2017
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RT @RaeofSunshine79: T3 for anyone curious about its effects on researchers #hcldr https://t.co/jvaGSEKEjQ https://t.co/sKaBURqJ3e
1:35 AM · May 03, 2017
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RT @RaeofSunshine79: T3 for anyone curious about its effects on researchers #hcldr https://t.co/jvaGSEKEjQ https://t.co/sKaBURqJ3e
1:46 AM · May 03, 2017
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Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability https://t.co/hBA5pYa6kU @AbSPORU_PEP
8:43 PM · Jun 01, 2017
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Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a… https://t.co/cpZi1rCGPW
11:02 AM · Sep 07, 2017
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@JBBC @power4patients A rare dx, it's a lifeline. I use social media as a research connection too. I Aided in this… https://t.co/WdHaTkJ4KK
11:48 PM · Sep 19, 2017
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RT @RaeofSunshine79: @JBBC @power4patients A rare dx, it's a lifeline. I use social media as a research connection too. I Aided in this pro…
11:12 AM · Sep 20, 2017
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Excited that our research group will have a poster this year at #CAPHC2017 https://t.co/WID1Nkn4uq #cp #Disability #autism #research #kids
7:41 PM · Oct 12, 2017
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RT @RaeofSunshine79: Excited that our research group will have a poster this year at #CAPHC2017 https://t.co/WID1Nkn4uq #cp #Disability #au…
7:41 PM · Oct 12, 2017
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@kimbomeek T4 a project I was involved in. We’re in our third year of funding. https://t.co/WID1Nkn4uq #MedRadJClub
10:16 PM · Oct 17, 2017
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Wow! thanks for sharing this... will take a closer look! #MedRadJClub https://t.co/HsojdScjxg
10:20 PM · Oct 17, 2017
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@HealthSocMed T2: needs model for responsible sharing. I can attest to its effectiveness when done right. (I’m a Co… https://t.co/46yDAbWNMO
1:31 AM · Oct 30, 2017
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1 year later after publishing. So much showing since how important the social media and research partnership can be! https://t.co/jvaGSEKEjQ
3:51 PM · Nov 11, 2017
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@HealthSocMed #hcsm t3: the environment you create is key. We are in year three of this program. Context ranges wid… https://t.co/Cuvb94BKb5
2:48 AM · Nov 13, 2017
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RT @RaeofSunshine79: @HealthSocMed #hcsm t3: the environment you create is key. We are in year three of this program. Context ranges widely…
2:49 AM · Nov 13, 2017
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@OneMoreThing2Do @Thomsod @McHardyMindy @suerobinsyvr @seastarbatita @yarrowgillis @DonaldLepp We are currently thi… https://t.co/xK72avRhen
11:58 PM · Nov 17, 2017
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When #families of #kids w/ #disabilities partner w/ #researchers #socialmedia can be a great outlet 4 collaboration! https://t.co/WID1Nkn4uq
12:41 AM · Jan 22, 2018
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RT @RaeofSunshine79: When #families of #kids w/ #disabilities partner w/ #researchers #socialmedia can be a great outlet 4 collaboration! h…
12:45 AM · Jan 22, 2018
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RT @RaeofSunshine79: When #families of #kids w/ #disabilities partner w/ #researchers #socialmedia can be a great outlet 4 collaboration! h…
1:15 AM · Jan 22, 2018
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RT @RaeofSunshine79: When #families of #kids w/ #disabilities partner w/ #researchers #socialmedia can be a great outlet 4 collaboration! h…
2:07 AM · Jan 22, 2018
116
RT @RaeofSunshine79: When #families of #kids w/ #disabilities partner w/ #researchers #socialmedia can be a great outlet 4 collaboration! h…
4:18 AM · Jan 22, 2018
116
RT @RaeofSunshine79: When #families of #kids w/ #disabilities partner w/ #researchers #socialmedia can be a great outlet 4 collaboration! h…
6:34 PM · Jan 22, 2018
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RT @RaeofSunshine79: When #families of #kids w/ #disabilities partner w/ #researchers #socialmedia can be a great outlet 4 collaboration! h…
5:23 PM · Jan 23, 2018
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And using social media can be an excellent avenue to build a community of Patient Partners in Research… https://t.co/WeqczjSWYI
5:08 PM · Feb 26, 2018
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We’ve had success via social media but excited to learn other experiences. Check out our paper!… https://t.co/EU6QYWx1AT
6:02 PM · Mar 16, 2018
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RT @RaeofSunshine79: We’ve had success via social media but excited to learn other experiences. Check out our paper! https://t.co/WID1Nkn4u…
6:15 PM · Mar 16, 2018
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RT @RaeofSunshine79: We’ve had success via social media but excited to learn other experiences. Check out our paper! https://t.co/WID1Nkn4u…
7:07 PM · Mar 16, 2018
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@hcldr T4 #hcldr educate stakeholders on benefits in a accessible fashion. Our paper on online knowledge exchange https://t.co/WID1Nkn4uq
1:48 AM · Mar 21, 2018
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RT @RaeofSunshine79: @hcldr T4 #hcldr educate stakeholders on benefits in a accessible fashion. Our paper on online knowledge exchange http…
1:53 AM · Mar 21, 2018
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RT @RaeofSunshine79: @hcldr T4 #hcldr educate stakeholders on benefits in a accessible fashion. Our paper on online knowledge exchange http…
10:55 AM · Mar 21, 2018
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@cchl_sac 3) #impactab professionals has shown me that it can be done and done accessibly. https://t.co/WID1Nkn4uq
1:21 AM · Apr 06, 2018
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