Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability

Dianne J Russell   ^{1, 2 *} , PhD ;   Jennifer Sprung   ^{1 *} ;   Dayle McCauley   ^{1 *} , MSc ;   Olaf Kraus de Camargo   ^{1, 3 *} , MD, PhD, FRCP(C) ;   Francine Buchanan   ^{4 *} , MLIS ;   Roman Gulko   ^{1 *} , BHSc (Hons) ;   Rachel Martens   ^{1 *} ;   Jan Willem Gorter   ^{1, 3 *} , MD, PhD, FRCP(C)

¹ CanChild Center for Childhood Disability Research, McMaster University, Hamilton, ON, Canada

² School of Rehabilitation Science, McMaster University, Hamilton, ON, Canada

³ Department of Pediatrics, McMaster University, Hamilton, ON, Canada

⁴ Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, ON, Canada

*all authors contributed equally