Published on in Vol 17, No 3 (2015): March

Wikipedia and Medicine: Quantifying Readership, Editors, and the Significance of Natural Language

Wikipedia and Medicine: Quantifying Readership, Editors, and the Significance of Natural Language

Wikipedia and Medicine: Quantifying Readership, Editors, and the Significance of Natural Language

Authors of this article:

James M Heilman1 Author Orcid Image ;   Andrew G West2 Author Orcid Image


  1. Turki H, Hadj Taieb M, Ben Aouicha M. MeSH qualifiers, publication types and relation occurrence frequency are also useful for a better sentence-level extraction of biomedical relations. Journal of Biomedical Informatics 2018;83:217 View
  2. Hinnosaar M. Gender inequality in new media: Evidence from Wikipedia. Journal of Economic Behavior & Organization 2019;163:262 View
  3. Smith D, Triberti S. Situating Wikipedia as a health information resource in various contexts: A scoping review. PLOS ONE 2020;15(2):e0228786 View
  4. Yu L, Yu S. Developing an automated mechanism to identify medical articles from wikipedia for knowledge extraction. International Journal of Medical Informatics 2020;141:104234 View
  5. Schmidt L, Friedel J, Adams C. SEED: a tool for disseminating systematic review data into Wikipedia. Systematic Reviews 2017;6(1) View
  6. Evenstein Sigalov S, Nachmias R. Wikipedia as a platform for impactful learning: A new course model in higher education. Education and Information Technologies 2017;22(6):2959 View
  7. Cordoş A, Bolboacă S, Drugan C. Social Media Usage for Patients and Healthcare Consumers: A Literature Review. Publications 2017;5(2):9 View
  8. Holtz P, Fetahu B, Kimmerle J. Effects of Contributor Experience on the Quality of Health-Related Wikipedia Articles. Journal of Medical Internet Research 2018;20(5):e171 View
  9. Lagunes-García G, Rodríguez-González A, Prieto-Santamaría L, García del Valle E, Zanin M, Menasalvas-Ruiz E. DISNET: a framework for extracting phenotypic disease information from public sources. PeerJ 2020;8:e8580 View
  10. Joorabchi A, Doherty C, Dawson J. ‘WP2Cochrane’, a tool linking Wikipedia to the Cochrane Library: Results of a bibliometric analysis evaluating article quality and importance. Health Informatics Journal 2020;26(3):1881 View
  11. Jemielniak D, Masukume G, Wilamowski M. The Most Influential Medical Journals According to Wikipedia: Quantitative Analysis. Journal of Medical Internet Research 2019;21(1):e11429 View
  12. Weiner S, Horbacewicz J, Rasberry L, Bensinger-Brody Y. Improving the Quality of Consumer Health Information on Wikipedia: Case Series. Journal of Medical Internet Research 2019;21(3):e12450 View
  13. Jabaley C, Groff R, Barnes T, Caridi-Scheible M, Blum J, O’Reilly-Shah V, Luo F. Sepsis information-seeking behaviors via Wikipedia between 2015 and 2018: A mixed methods retrospective observational study. PLOS ONE 2019;14(8):e0221596 View
  14. Murray H, Walker M, Dawson J, Simper N, Maggio L. Teaching Evidence-Based Medicine to Medical Students Using Wikipedia as a Platform. Academic Medicine 2020;95(3):382 View
  15. Pfundner A, Schönberg T, Horn J, Boyce R, Samwald M. Utilizing the Wikidata System to Improve the Quality of Medical Content in Wikipedia in Diverse Languages: A Pilot Study. Journal of Medical Internet Research 2015;17(5):e110 View
  16. Teplitskiy M, Lu G, Duede E. Amplifying the impact of open access: Wikipedia and the diffusion of science. Journal of the Association for Information Science and Technology 2017;68(9):2116 View
  17. ElBahrawy A, Alessandretti L, Baronchelli A. Wikipedia and Cryptocurrencies: Interplay Between Collective Attention and Market Performance. Frontiers in Blockchain 2019;2 View
  18. Hutton M, Dawson J, Lee K, Shumaker P, Doney E, Dellavalle R. Improving Wikipedia skin disease content. Journal of the American Academy of Dermatology 2019;81(5):1193 View
  19. Melman A, Elkins M, Kamper S, Moseley A. Tackling the language barrier to implementing research into practice: A survey of usage of the Physiotherapy Evidence Database. Brazilian Journal of Physical Therapy 2020;24(6):524 View
  20. Kessler S, Mede N, Schäfer M. Eyeing CRISPR on Wikipedia: Using Eye Tracking to Assess What Lay Audiences Look for to Learn about CRISPR and Genetic Engineering. Environmental Communication 2020;14(7):886 View
  21. Hammer M, Kohlberg G. Get the Diagnosis: an evidence-based medicine collaborative Wiki for diagnostic test accuracy. Postgraduate Medical Journal 2017;93(1098):179 View
  22. Martin-Carreras T, Kahn C. Integrating Wikipedia Articles and Images into an Information Resource for Radiology Patients. Journal of Digital Imaging 2019;32(3):349 View
  23. Eschler J, Menking A, Fox S, Backonja U. Defining Menstrual Literacy With the Aim of Evaluating Mobile Menstrual Tracking Applications. CIN: Computers, Informatics, Nursing 2019;37(12):638 View
  24. Bruyneel A. La francophonie dans la recherche scientifique en kinésithérapie/physiothérapie. Kinésithérapie, la Revue 2019;19(212-213):9 View
  25. Al-Madi E, Al-Bahrani L, Al-Shenaiber R, Al-Saleh S, Al-Obaida M. Creation and Evaluation of an Endodontic Diagnosis Training Software. International Journal of Dentistry 2020;2020:1 View
  26. Hinnosaar M. Gender Inequality in New Media: Evidence from Wikipedia. SSRN Electronic Journal 2015 View
  27. Taveira-Gomes T, Ferreira P, Taveira-Gomes I, Severo M, Ferreira M. What Are We Looking for in Computer-Based Learning Interventions in Medical Education? A Systematic Review. Journal of Medical Internet Research 2016;18(8):e204 View
  28. Maggio L, Steinberg R, Piccardi T, Willinsky J. Reader engagement with medical content on Wikipedia. eLife 2020;9 View
  29. Dawe L, Robinson A. Wikipedia editing and information literacy: a case study. Information and Learning Science 2017;118(1/2):5 View
  30. Masukume G, Kipersztok L, Das D, Shafee T, Laurent M, Heilman J. Medical journals and Wikipedia: a global health matter. The Lancet Global Health 2016;4(11):e791 View
  31. Reilly T, Jackson W, Berger V, Candelario D. Accuracy and completeness of drug information in Wikipedia medication monographs. Journal of the American Pharmacists Association 2017;57(2):193 View
  32. Suwannakhan A, Casanova‐Martínez D, Yurasakpong L, Montriwat P, Meemon K, Limpanuparb T. The Quality and Readability of English Wikipedia Anatomy Articles. Anatomical Sciences Education 2020;13(4):475 View
  33. Aljawarneh S. Reviewing and exploring innovative ubiquitous learning tools in higher education. Journal of Computing in Higher Education 2020;32(1):57 View
  34. Azzam A, Bresler D, Leon A, Maggio L, Whitaker E, Heilman J, Orlowitz J, Swisher V, Rasberry L, Otoide K, Trotter F, Ross W, McCue J. Why Medical Schools Should Embrace Wikipedia: Final-Year Medical Student Contributions to Wikipedia Articles for Academic Credit at One School. Academic Medicine 2017;92(2):194 View
  35. MacAvaney S, Yates A, Cohan A, Soldaini L, Hui K, Goharian N, Frieder O. Overcoming low-utility facets for complex answer retrieval. Information Retrieval Journal 2019;22(3-4):395 View
  36. Apollonio D, Broyde K, Azzam A, De Guia M, Heilman J, Brock T. Pharmacy students can improve access to quality medicines information by editing Wikipedia articles. BMC Medical Education 2018;18(1) View
  37. Gasparyan A, Yessirkepov M, Voronov A, Gerasimov A, Kostyukova E, Kitas G. Preserving the Integrity of Citations and References by All Stakeholders of Science Communication. Journal of Korean Medical Science 2015;30(11):1545 View
  38. Soldaini L, Yates A, Yom-Tov E, Frieder O, Goharian N. Enhancing web search in the medical domain via query clarification. Information Retrieval Journal 2016;19(1-2):149 View
  39. Matheson D, Matheson-Monnet C. Wikipedia as Informal Self-Education for Clinical Decision-Making in Medical Practice. Open Medicine Journal 2017;4(1):15 View
  40. Shafee T, Masukume G, Kipersztok L, Das D, Häggström M, Heilman J. Evolution of Wikipedia’s medical content: past, present and future. Journal of Epidemiology and Community Health 2017:jech-2016-208601 View
  41. Adams C, Montgomery A, Aburrow T, Bloomfield S, Briley P, Carew E, Chatterjee-Woolman S, Feddah G, Friedel J, Gibbard J, Haynes E, Hussein M, Jayaram M, Naylor S, Perry L, Schmidt L, Siddique U, Tabaksert A, Taylor D, Velani A, White D, Xia J. Adding evidence of the effects of treatments into relevant Wikipedia pages: a randomised trial. BMJ Open 2020;10(2):e033655 View
  42. Conell J, Bauer R, Glenn T, Alda M, Ardau R, Baune B, Berk M, Bersudsky Y, Bilderbeck A, Bocchetta A, Bossini L, Paredes Castro A, Cheung E, Chillotti C, Choppin S, Del Zompo M, Dias R, Dodd S, Duffy A, Etain B, Fagiolini A, Garnham J, Geddes J, Gildebro J, Gonzalez-Pinto A, Goodwin G, Grof P, Harima H, Hassel S, Henry C, Hidalgo-Mazzei D, Kapur V, Kunigiri G, Lafer B, Lam C, Larsen E, Lewitzka U, Licht R, Lund A, Misiak B, Piotrowski P, Monteith S, Munoz R, Nakanotani T, Nielsen R, O’Donovan C, Okamura Y, Osher Y, Reif A, Ritter P, Rybakowski J, Sagduyu K, Sawchuk B, Schwartz E, Scippa Â, Slaney C, Sulaiman A, Suominen K, Suwalska A, Tam P, Tatebayashi Y, Tondo L, Vieta E, Vinberg M, Viswanath B, Volkert J, Zetin M, Zorrilla I, Whybrow P, Bauer M. Online information seeking by patients with bipolar disorder: results from an international multisite survey. International Journal of Bipolar Disorders 2016;4(1) View
  43. Kousha K, Thelwall M. Are wikipedia citations important evidence of the impact of scholarly articles and books?. Journal of the Association for Information Science and Technology 2017;68(3):762 View
  44. Tomaszewski R, MacDonald K. A Study of Citations to Wikipedia in Scholarly Publications. Science & Technology Libraries 2016;35(3):246 View
  45. Calabrese C, Anderton B, Barnett G. Online Representations of “Genome Editing” Uncover Opportunities for Encouraging Engagement: A Semantic Network Analysis. Science Communication 2019;41(2):222 View
  46. Stankova M, Mihova P, Andonov F, Datchev T. Health Information and CAM Online Search. Procedia Computer Science 2020;176:2794 View
  47. Kincaid D, Beck W, Brandt J, Mars Brisbin M, Farrell K, Hondula K, Larson E, Shogren A. Wikipedia can help resolve information inequality in the aquatic sciences. Limnology and Oceanography Letters 2021;6(1):18 View
  48. Cowles K, Sheppard M, Waltman E, Kimball Wilson T. Crowdsourcing and collaboration from Coast to Coast: NNLM’s #CiteNLM Wikipedia Edit-a-thons. Journal of Electronic Resources Librarianship 2020;32(4):267 View
  49. KIKKAWA J, TAKAKU M, YOSHIKANE F. Time-series Analyses of the Editors and Their Edits for Adding Bibliographic References on Wikipedia. Joho Chishiki Gakkaishi 2021;31(1):3 View
  50. Sun F, Yang F, Zheng S. Evaluation of the Liver Disease Information in Baidu Encyclopedia and Wikipedia: Longitudinal Study. Journal of Medical Internet Research 2021;23(1):e17680 View
  51. Maggio L, Willinsky J, Costello J, Skinner N, Martin P, Dawson J. Integrating Wikipedia editing into health professions education: a curricular inventory and review of the literature. Perspectives on Medical Education 2020;9(6):333 View
  52. Yeong J, Thomas P, Buller J, Moosajee M. A Newly Developed Web-Based Resource on Genetic Eye Disorders for Users With Visual Impairment (Gene.Vision): Usability Study. Journal of Medical Internet Research 2021;23(1):e19151 View
  53. Para A, Thelmo F, Rynecki N, Zelman B, Gupta R, Coban D, Ayyaswami V, Prabhu A, Ippolito J, Agarwal N, Moore J, Beebe K. Evaluating the Readability of Online Patient Education Materials Related to Orthopedic Oncology. Orthopedics 2021;44(1):38 View
  54. Mietchen D, Rasberry L, Morata T, Sadowski J, Novakovich J, Heilman J. Developing a scalable framework for partnerships between health agencies and the Wikimedia ecosystem. Research Ideas and Outcomes 2021;7 View
  55. Byron M, Hughes J. Wikipedia and Nicotine and Tobacco: Meeting People Where They Are. Nicotine & Tobacco Research 2021;23(11):1977 View
  56. Rasberry L, Mietchen D. Wikipedia for multilingual COVID-19 vaccine education at scale. Research Ideas and Outcomes 2021;7 View
  57. Potapov A, Alexandrova E, Yudina E, Ziganshina L. Improving the Russian-language Wikipedia articles on medicines using new knowledge Cochrane. Kazan medical journal 2021;102(4):459 View
  58. Broussard K, Becker A. Self-removal of long-acting reversible contraception: A content analysis of YouTube videos. Contraception 2021;104(6):654 View
  59. Ceballos D, Herrick R, Carreón T, Nguyen V, Chu M, Sadowski J, Blumenthal H, Morata T. Expanding Reach of Occupational Health Knowledge: Contributing Subject-Matter Expertise to Wikipedia as a Class Assignment. INQUIRY: The Journal of Health Care Organization, Provision, and Financing 2021;58:004695802110357 View
  60. Hirosawa T, Harada Y, Yokose M, Sakamoto T, Kawamura R, Shimizu T. Diagnostic Accuracy of Differential-Diagnosis Lists Generated by Generative Pretrained Transformer 3 Chatbot for Clinical Vignettes with Common Chief Complaints: A Pilot Study. International Journal of Environmental Research and Public Health 2023;20(4):3378 View
  61. Ma M, Yin S, Zhu M, Fan Y, Wen X, Lin T, Song T. Evaluation of Medical Information on Male Sexual Dysfunction on Baidu Encyclopedia and Wikipedia: Comparative Study. Journal of Medical Internet Research 2022;24(8):e37339 View
  62. Döring N, Lehmann S, Schumann-Doermer C. Verhütung in der deutschsprachigen Wikipedia: Eine Inhalts- und Qualitätsanalyse. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2022;65(6):706 View
  63. Benjakob O, Aviram R, Sobel J. Citation needed? Wikipedia bibliometrics during the first wave of the COVID-19 pandemic. GigaScience 2022;11 View
  64. Mendes T, Dawson J, Evenstein Sigalov S, Kleiman N, Hird K, Terenius O, Das D, Geres N, Azzam A. Wikipedia in Health Professional Schools: from an Opponent to an Ally. Medical Science Educator 2021;31(6):2209 View
  65. Smith D. Wikipedia: an unexplored resource for understanding consumer health information behaviour in library and information science scholarship. Journal of Documentation 2022;78(3):696 View
  66. Mercer K, Weaver K. Critical Evaluation of Information as a New Threshold Concept for Navigating STEM Information. Science & Technology Libraries 2023;42(1):68 View
  67. Gasparetti F. Discovering prerequisite relations from educational documents through word embeddings. Future Generation Computer Systems 2022;127:31 View
  68. Martin P, Maggio L, Murray H, Willinsky J. Enculturating a Community of Action: Health Professions Educators’ Perspectives on Teaching With Wikipedia. Academic Medicine 2023;98(3):394 View
  69. Turki H, Hadj Taieb M, Shafee T, Lubiana T, Jemielniak D, Aouicha M, Labra Gayo J, Youngstrom E, Banat M, Das D, Mietchen D, on behalf of WikiProject COVID- , Haller A. Representing COVID-19 information in collaborative knowledge graphs: The case of Wikidata. Semantic Web 2022;13(2):233 View
  70. De Toni G, Consonni C, Montresor A, Rocha L. A general method for estimating the prevalence of influenza-like-symptoms with Wikipedia data. PLOS ONE 2021;16(8):e0256858 View
  71. Maggio L, Willinsky J, Costello J, Skinner N, Martin P, Dawson J. Integrating Wikipedia editing into health professions education: a curricular inventory and review of the literature. Perspectives on Medical Education 2020;9(6):333 View
  72. Pender E, Kostak L, Sutton K, Naccarato C, Tsai A, Chung T, Daughters S. Resources for the Assessment and Treatment of Substance Use Disorder in Adolescents. WikiJournal of Medicine 2023;10(1):1 View
  73. Ju B, Stewart J. Exploring perceived online information quality: a mixed-method approach. Journal of Documentation 2024;80(1):239 View
  74. Alibudbud R. Wikipedia page views for health research: a review. Frontiers in Big Data 2023;6 View
  75. Ren Y, Zhang H, Kraut R. How Did They Build the Free Encyclopedia? A Literature Review of Collaboration and Coordination among Wikipedia Editors. ACM Transactions on Computer-Human Interaction 2024;31(1):1 View
  76. Konieczny P. Where experts and amateurs meet: the ideological hobby of medical volunteering on Wikipedia. WikiJournal of Medicine 2023;10(1):5 View
  77. Smith D. It’s Time to Recognize Wikipedia as a Health Information Resource. Journal of Consumer Health on the Internet 2023;27(2):210 View
  78. Ciechanowski K, Jemielniak D, Silczuk A. Public interests in mental health topics in COVID-19: evidence from Wikipedia searches. Advances in Mental Health 2023:1 View
  79. Montilha A, Morata T, Flor D, Machado M, Menegon F, Zucki F. The Promotion of Hearing Health through Wikipedia Campaigns: Article Quality and Reach Assessment. Healthcare 2023;11(11):1572 View
  80. Pleasure Z, Becker A, Johnson D, Broussard K, Lindberg L. How TikTok is being used to talk about abortion post-Roe: A content analysis of the most liked abortion TikToks. Contraception 2024;133:110384 View
  81. McDowell Z. Wikipedia and AI: Access, representation, and advocacy in the age of large language models. Convergence: The International Journal of Research into New Media Technologies 2024 View

Books/Policy Documents

  1. Leung A, Gough W, Shi Y. Citizen Empowered Mapping. View