Published on in Vol 16, No 2 (2014): February

The 1% Rule in Four Digital Health Social Networks: An Observational Study

The 1% Rule in Four Digital Health Social Networks: An Observational Study

The 1% Rule in Four Digital Health Social Networks: An Observational Study

Authors of this article:

Trevor van Mierlo 1, 2 Author Orcid Image


  1. Huber J, Maatz P, Muck T, Keck B, Friederich H, Herzog W, Ihrig A. The effect of an online support group on patients׳ treatment decisions for localized prostate cancer: An online survey. Urologic Oncology: Seminars and Original Investigations 2017;35(2):37.e19 View
  2. Healey B, Hoek J, Edwards R, Shahab L. Posting Behaviour Patterns in an Online Smoking Cessation Social Network: Implications for Intervention Design and Development. PLoS ONE 2014;9(9):e106603 View
  3. Gidwani R, Zulman D. Association Between Acute Medical Exacerbations and Consuming or Producing Web-Based Health Information: Analysis From Pew Survey Data. Journal of Medical Internet Research 2015;17(6):e145 View
  4. O'Leary S, Narwaney K, Wagner N, Kraus C, Omer S, Glanz J. Efficacy of a Web-Based Intervention to Increase Uptake of Maternal Vaccines: An RCT. American Journal of Preventive Medicine 2019;57(4):e125 View
  5. Han P, Nicholson W, Norton A, Graffeo K, Singerman R, King S, Sundaresan A, Bennett W. DiabetesSistersVoices: Virtual Patient Community to Identify Research Priorities for Women Living With Diabetes. Journal of Medical Internet Research 2019;21(5):e13312 View
  6. Carron-Arthur B, Reynolds J, Bennett K, Bennett A, Cunningham J, Griffiths K. Community Structure of a Mental Health Internet Support Group: Modularity in User Thread Participation. JMIR Mental Health 2016;3(2):e20 View
  7. De Simoni A, Shah A, Fulton O, Parkinson J, Sheikh A, Panzarasa P, Pagliari C, Coulson N, Griffiths C. Superusers’ Engagement in Asthma Online Communities: Asynchronous Web-Based Interview Study. Journal of Medical Internet Research 2020;22(6):e18185 View
  8. Hayat T, Samuel-Azran T. “You too, Second Screeners?” Second Screeners’ Echo Chambers During the 2016 U.S. Elections Primaries. Journal of Broadcasting & Electronic Media 2017;61(2):291 View
  9. Yan L. Good Intentions, Bad Outcomes: The Effects of Mismatches between Social Support and Health Outcomes in an Online Weight Loss Community. Production and Operations Management 2018;27(1):9 View
  10. Weeks B, Ardèvol-Abreu A, Gil de Zúñiga H. Online Influence? Social Media Use, Opinion Leadership, and Political Persuasion. International Journal of Public Opinion Research 2015:edv050 View
  11. Lundgren L, Crippen K, Bex R. Social Media Interaction as Informal Science Learning: a Comparison of Message Design in Two Niches. Research in Science Education 2022;52(1):1 View
  12. Song M, Duan Y, Huang T, Zhan L. Inter-Edge and Cloud conversion accelerated user-generated content for virtual brand community. EURASIP Journal on Wireless Communications and Networking 2020;2020(1) View
  13. Bientzle M, Lechner C, Cress U, Kimmerle J. Online peer consulting for health professionals. The Clinical Teacher 2019;16(5):463 View
  14. van Mierlo T, Hyatt D, Ching A. Employing the Gini coefficient to measure participation inequality in treatment-focused Digital Health Social Networks. Network Modeling Analysis in Health Informatics and Bioinformatics 2016;5(1) View
  15. Choi Y, Jeon B, Kim H. Identification of key cyberbullies: A text mining and social network analysis approach. Telematics and Informatics 2021;56:101504 View
  16. Gazit T, Aharony N. Factors explaining participation in WhatsApp groups: an exploratory study. Aslib Journal of Information Management 2018;70(4):390 View
  17. Perez O, Bar-Ilan J, Gazit T, Aharony N, Amichai-Hamburger Y, Bronstein J. The prospects of E-democracy: an experimental study of collaborative E-rulemaking. Journal of Information Technology & Politics 2018;15(3):278 View
  18. Ahola Kohut S, LeBlanc C, O'Leary K, McPherson A, McCarthy E, Nguyen C, Stinson J. The internet as a source of support for youth with chronic conditions: A qualitative study. Child: Care, Health and Development 2018;44(2):212 View
  19. Glenski M, Pennycuff C, Weninger T. Consumers and Curators: Browsing and Voting Patterns on Reddit. IEEE Transactions on Computational Social Systems 2017;4(4):196 View
  20. Kumar J, Nayak J. Understanding the participation of passive members in online brand communities through the lens of psychological ownership theory. Electronic Commerce Research and Applications 2019;36:100859 View
  21. Glenski M, Weninger T. Rating Effects on Social News Posts and Comments. ACM Transactions on Intelligent Systems and Technology 2017;8(6):1 View
  22. Ertiö T, Kukkonen I, Räsänen P. Social media activities in Finland: A population-level comparison. Convergence: The International Journal of Research into New Media Technologies 2020;26(1):193 View
  23. Pailler M, Beaupin L, Brewer-Spritzer E, Grant P, Depner R, Levy K, Tenzek K. Reaching Adolescent and Young Adult Cancer Patients Through Social Media: Impact of the Photographs of Meaning Program. Journal of Adolescent and Young Adult Oncology 2020;9(4):508 View
  24. Irvine L, Melson A, Williams B, Sniehotta F, McKenzie A, Jones C, Crombie I. Real Time Monitoring of Engagement with a Text Message Intervention to Reduce Binge Drinking Among Men Living in Socially Disadvantaged Areas of Scotland. International Journal of Behavioral Medicine 2017;24(5):713 View
  25. Spennemann D, Pike M, Watson M. Bird impacts on heritage buildings. Journal of Cultural Heritage Management and Sustainable Development 2018;8(1):62 View
  26. Schiavo G, Villafiorita A, Zancanaro M. (Non‐)Participation in deliberation at work: a case study of online participative decision‐making. New Technology, Work and Employment 2019;34(1):37 View
  27. Anderson L, Bell H, Gilbert M, Davidson J, Winter C, Barratt M, Win B, Painter J, Menone C, Sayegh J, Dasgupta N. Using Social Listening Data to Monitor Misuse and Nonmedical Use of Bupropion: A Content Analysis. JMIR Public Health and Surveillance 2017;3(1):e6 View
  28. Moore D, Ayers S, Drey N. A Thematic Analysis of Stigma and Disclosure for Perinatal Depression on an Online Forum. JMIR Mental Health 2016;3(2):e18 View
  29. Sormunen T, Karlgren K, Aanesen A, Fossum B, Westerbotn M. The role of social media for persons affected by infertility. BMC Women's Health 2020;20(1) View
  30. Harrison V, Moore D, Lazard L. Supporting perinatal anxiety in the digital age; a qualitative exploration of stressors and support strategies. BMC Pregnancy and Childbirth 2020;20(1) View
  31. van Mierlo T, Hyatt D, Ching A. Mapping Power Law Distributions in Digital Health Social Networks: Methods, Interpretations, and Practical Implications. Journal of Medical Internet Research 2015;17(6):e160 View
  32. Gummerus J, Liljander V, Sihlman R. Do Ethical Social Media Communities Pay Off? An Exploratory Study of the Ability of Facebook Ethical Communities to Strengthen Consumers’ Ethical Consumption Behavior. Journal of Business Ethics 2017;144(3):449 View
  33. van Mierlo T, Li X, Hyatt D, Ching A. Demographic and Indication-Specific Characteristics Have Limited Association With Social Network Engagement: Evidence From 24,954 Members of Four Health Care Support Groups. Journal of Medical Internet Research 2017;19(2):e40 View
  34. Gopalsamy R, Semenov A, Pasiliao E, McIntosh S, Nikolaev A. Engagement as a Driver of Growth of Online Health Forums: Observational Study. Journal of Medical Internet Research 2017;19(8):e304 View
  35. Huang N, Gu B, Hong Y, Liang C, Wang K, Yang B. Motivating User-Generated Content with Performance Feedback: Evidence from Randomized Field Experiments. SSRN Electronic Journal 2017 View
  36. Robinson L, Griffiths M, Wray J, Ure C, Shires G, Stein-Hodgins J, Hill C, Hilton B. Preparing women for breast screening mammography: A feasibility study to determine the potential value of an on-line social network and information hub. Radiography 2015;21(4):308 View
  37. Dessart L, Aldás-Manzano J, Veloutsou C. Unveiling heterogeneous engagement-based loyalty in brand communities. European Journal of Marketing 2019;53(9):1854 View
  38. Cantin A, Lahaie A, Odobasic B, Tremblay M, Wazzan D, Caron S, Leblanc C, Martineau J, Lalonde L. Evaluation of a continuous quality improvement program in anticoagulant therapy. Canadian Pharmacists Journal / Revue des Pharmaciens du Canada 2016;149(6):352 View
  39. May A, Parker C, Taylor N, Ross T. Evaluating a concept design of a crowd-sourced ‘mashup’ providing ease-of-access information for people with limited mobility. Transportation Research Part C: Emerging Technologies 2014;49:103 View
  40. Brusilovsky P, Oh J, López C, Parra D, Jeng W. Linking information and people in a social system for academic conferences. New Review of Hypermedia and Multimedia 2017;23(2):81 View
  41. Borentain S, Nash A, Dayal R, DiBernardo A. Patient-reported outcomes in major depressive disorder with suicidal ideation: a real-world data analysis using PatientsLikeMe platform. BMC Psychiatry 2020;20(1) View
  42. Sunar A, Abbasi R, Davis H, White S, Aljohani N. Modelling MOOC learners' social behaviours. Computers in Human Behavior 2020;107:105835 View
  43. Geramita E, Herbeck Belnap B, Abebe K, Rothenberger S, Rotondi A, Rollman B. The Association Between Increased Levels of Patient Engagement With an Internet Support Group and Improved Mental Health Outcomes at 6-Month Follow-Up: Post-Hoc Analyses From a Randomized Controlled Trial. Journal of Medical Internet Research 2018;20(7):e10402 View
  44. Allen C, Vassilev I, Kennedy A, Rogers A. Long-Term Condition Self-Management Support in Online Communities: A Meta-Synthesis of Qualitative Papers. Journal of Medical Internet Research 2016;18(3):e61 View
  45. Lewis Z, Swartz M, Martinez E, Lyons E. Social Support Patterns of Middle-Aged and Older Adults Within a Physical Activity App: Secondary Mixed Method Analysis. JMIR Aging 2019;2(2):e12496 View
  46. Wilkerson D, Gregory V, Kim H. Online psychoeducation with parent management training: Examining the contribution of peer support. Child & Family Social Work 2020;25(2):448 View
  47. Lumba-Brown A, Tat S, Auerbach M, Kessler D, Alletag M, Grover P, Schnadower D, Macias C, Chang T. PEMNetwork. Pediatric Emergency Care 2016;32(8):565 View
  48. Jiang L, Mirkovski K, D. Wall J, Wagner C, Benjamin Lowry P. Proposing the core contributor withdrawal theory (CCWT) to understand core contributor withdrawal from online peer-production communities. Internet Research 2018;28(4):988 View
  49. Yan L, Tan Y. Good Intentions, Bad Outcomes: The Effects of Mismatches in Social Support and Health Outcomes in an Online Weight Loss Community. SSRN Electronic Journal 2015 View
  50. Shoup J, Narwaney K, Wagner N, Kraus C, Gleason K, Albright K, Glanz J. Social Media Vaccine Websites: A Comparative Analysis of Public and Moderated Websites. Health Education & Behavior 2019;46(3):454 View
  51. Ruthotto I, Kreth Q, Stevens J, Trively C, Melkers J. Lurking and participation in the virtual classroom: The effects of gender, race, and age among graduate students in computer science. Computers & Education 2020;151:103854 View
  52. Rains S. Big Data, Computational Social Science, and Health Communication: A Review and Agenda for Advancing Theory. Health Communication 2020;35(1):26 View
  53. van Mierlo T, Hyatt D, Ching A, Fournier R, Dembo R. Behavioral Economics, Wearable Devices, and Cooperative Games: Results From a Population-Based Intervention to Increase Physical Activity. JMIR Serious Games 2016;4(1):e1 View
  54. PERDAHÇI Z, AYDIN M. Using the Network-Based Theory for Monitoring Sustainable Interconnectedness on e-Business. Bilişim Teknolojileri Dergisi 2020;13(2):145 View
  55. Kaligotla C, Yücesan E, Chick S. Diffusion of competing rumours on social media. Journal of Simulation 2022;16(3):230 View
  56. Joglekar S, Sastry N, Coulson N, Taylor S, Patel A, Duschinsky R, Anand A, Jameson Evans M, Griffiths C, Sheikh A, Panzarasa P, De Simoni A. How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities. Journal of Medical Internet Research 2018;20(7):e238 View
  57. Wallace R, Costello L, Devine A. Netnographic Slog. International Journal of Qualitative Methods 2018;17(1):160940691879779 View
  58. Stearns M, Nambiar S, Nikolaev A, Semenov A, McIntosh S. Towards evaluating and enhancing the reach of online health forums for smoking cessation. Network Modeling Analysis in Health Informatics and Bioinformatics 2014;3(1) View
  59. Zhang S, Bantum E, Owen J, Bakken S, Elhadad N. Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact. Journal of the American Medical Informatics Association 2017;24(2):451 View
  60. Rykov Y, Meylakhs P. Network Structure of an AIDS-Denialists Online Community: Identifying Core Members and the Risk Group. SSRN Electronic Journal 2016 View
  61. Monteith S, Glenn T. Automated Decision-Making and Big Data: Concerns for People With Mental Illness. Current Psychiatry Reports 2016;18(12) View
  62. van Eenbergen M, Vromans R, Boll D, Kil P, Vos C, Krahmer E, Mols F, van de Poll‐Franse L. Changes in internet use and wishes of cancer survivors: A comparison between 2005 and 2017. Cancer 2020;126(2):408 View
  63. Urbanoski K, van Mierlo T, Cunningham J. Investigating Patterns of Participation in an Online Support Group for Problem Drinking: a Social Network Analysis. International Journal of Behavioral Medicine 2017;24(5):703 View
  64. Gegenhuber T, Dobusch L. Making an Impression Through Openness: How Open Strategy-Making Practices Change in the Evolution of New Ventures. Long Range Planning 2017;50(3):337 View
  65. Rykov Y, Meylakhs P, Sinyavskaya Y. Network Structure of an AIDS-Denialist Online Community: Identifying Core Members and the Risk Group. American Behavioral Scientist 2017;61(7):688 View
  66. White B, Giglia R, Scott J, Burns S. How New and Expecting Fathers Engage With an App-Based Online Forum: Qualitative Analysis. JMIR mHealth and uHealth 2018;6(6):e144 View
  67. O'Neill B, Ziebland S, Valderas J, Lupiáñez-Villanueva F. User-Generated Online Health Content: A Survey of Internet Users in the United Kingdom. Journal of Medical Internet Research 2014;16(4):e118 View
  68. Short C, DeSmet A, Woods C, Williams S, Maher C, Middelweerd A, Müller A, Wark P, Vandelanotte C, Poppe L, Hingle M, Crutzen R. Measuring Engagement in eHealth and mHealth Behavior Change Interventions: Viewpoint of Methodologies. Journal of Medical Internet Research 2018;20(11):e292 View
  69. Choi S, Dukic Z, Hill A. Professional networking withYahoo! Groups: A case of school librarians from international schools in Hong Kong. Journal of Librarianship and Information Science 2019;51(4):1077 View
  70. Yan L, Tan Y. Moment or Momentum? An Empirical Study on Userss Continuous Participation in Online Weight-Loss Communities. SSRN Electronic Journal 2018 View
  71. Conrad P, Bandini J, Vasquez A. Illness and the Internet: From Private to Public Experience. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 2016;20(1):22 View
  72. Mailey E, Irwin B, Joyce J, Hsu W. InDependent but not Alone: A Web‐Based Intervention to Promote Physical and Mental Health among Military Spouses. Applied Psychology: Health and Well-Being 2019;11(3):562 View
  73. de la Loge C, Dimova S, Mueller K, Phillips G, Durgin T, Wicks P, Borghs S. PatientsLikeMe® Online Epilepsy Community: Patient characteristics and predictors of poor health-related quality of life. Epilepsy & Behavior 2016;63:20 View
  74. Carron-Arthur B, Cunningham J, Griffiths K. Describing the distribution of engagement in an Internet support group by post frequency: A comparison of the 90-9-1 Principle and Zipf's Law. Internet Interventions 2014;1(4):165 View
  75. Meng J. Your Health Buddies Matter: Preferential Selection and Social Influence on Weight Management in an Online Health Social Network. Health Communication 2016;31(12):1460 View
  76. Love S, Sanders M, Turner K, Maurange M, Knott T, Prinz R, Metzler C, Ainsworth A. Social media and gamification: Engaging vulnerable parents in an online evidence-based parenting program. Child Abuse & Neglect 2016;53:95 View
  77. Nicholls S, Quach P, von Elm E, Guttmann A, Moher D, Petersen I, Sørensen H, Smeeth L, Langan S, Benchimol E, Tu Y. The REporting of Studies Conducted Using Observational Routinely-Collected Health Data (RECORD) Statement: Methods for Arriving at Consensus and Developing Reporting Guidelines. PLOS ONE 2015;10(5):e0125620 View
  78. Verberne S, Batenburg A, Sanders R, van Eenbergen M, Das E, Lambooij M. Analyzing Empowerment Processes Among Cancer Patients in an Online Community: A Text Mining Approach. JMIR Cancer 2019;5(1):e9887 View
  79. Mikum S, Suksakulchai S, Chaisanit S, Murphy E. Students’ participation in peer-to-peer communication supported by social media. Education and Information Technologies 2018;23(2):659 View
  80. Smith R, Merchant R. Harnessing the crowd to accelerate molecular medicine research. Trends in Molecular Medicine 2015;21(7):403 View
  81. Bahrehdar A, Adams B, Purves R. Streets of London: Using Flickr and OpenStreetMap to build an interactive image of the city. Computers, Environment and Urban Systems 2020;84:101524 View
  82. Krommyda M, Rigos A, Bolierakis S, Theodoropoulos T, Tamascelli S, Simeone L, Sdongos E, Amditis A. An Integrated Toolbox for the Engagement of Citizens in the Monitoring of Water Ecosystems. Electronics 2020;9(4):671 View
  83. Wilkerson D. Lurking Behavior in Online Psychosocial Discussion Forums: Theoretical Perspectives and Implications for Practice. Journal of Technology in Human Services 2016;34(3):256 View
  84. Bateman D, Brady E, Wilkerson D, Yi E, Karanam Y, Callahan C. Comparing Crowdsourcing and Friendsourcing: A Social Media-Based Feasibility Study to Support Alzheimer Disease Caregivers. JMIR Research Protocols 2017;6(4):e56 View
  85. Amichai-Hamburger Y, Gazit T, Bar-Ilan J, Perez O, Aharony N, Bronstein J, Sarah Dyne T. Psychological factors behind the lack of participation in online discussions. Computers in Human Behavior 2016;55:268 View
  86. Deng S, Jiang Y, Li H, Liu Y. Who contributes what? Scrutinizing the activity data of 4.2 million Zhihu users via immersion scores. Information Processing & Management 2020;57(5):102274 View
  87. Hauffman A, Alfonsson S, Igelström H, Johansson B. Experiences of Internet-Based Stepped Care in Individuals With Cancer and Concurrent Symptoms of Anxiety and Depression: Qualitative Exploration Conducted Alongside the U-CARE AdultCan Randomized Controlled Trial. Journal of Medical Internet Research 2020;22(3):e16547 View
  88. Sun N, Rau P, Ma L. Understanding lurkers in online communities: A literature review. Computers in Human Behavior 2014;38:110 View
  89. Aydin M, Perdahci N. Dynamic network analysis of online interactive platform. Information Systems Frontiers 2019;21(2):229 View
  90. Sunar A, White S, Abdullah N, Davis H. How Learners’ Interactions Sustain Engagement: A MOOC Case Study. IEEE Transactions on Learning Technologies 2017;10(4):475 View
  91. Radovic A, Gmelin T, Hua J, Long C, Stein B, Miller E. Supporting Our Valued Adolescents (SOVA), a Social Media Website for Adolescents with Depression and/or Anxiety: Technological Feasibility, Usability, and Acceptability Study. JMIR Mental Health 2018;5(1):e17 View
  92. Wicks P, Mack Thorley E, Simacek K, Curran C, Emmas C. Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising. Journal of Medical Internet Research 2018;20(5):e175 View
  93. Zhou R, Wang D, Siddiquei A, Anwar M, Hammad A, Asmi F, Ye Q, Nawaz M. GMO/GMF on Social Media in China: Jagged Landscape of Information Seeking and Sharing Behavior through a Valence View. International Journal of Environmental Research and Public Health 2019;16(23):4838 View
  94. Kokkodis M, Lappas T, Ransbotham S. From Lurkers to Workers: Predicting Voluntary Contribution and Community Welfare. Information Systems Research 2020;31(2):607 View
  95. Badreddine B, Blount Y. Understanding influential factors behind lurking behaviour in online cancer communities. Behaviour & Information Technology 2021;40(6):542 View
  96. Merchant R, Griffis H, Ha Y, Kilaru A, Sellers A, Hershey J, Hill S, Kramer-Golinkoff E, Nadkarni L, Debski M, Padrez K, Becker L, Asch D. Hidden in Plain Sight: A Crowdsourced Public Art Contest to Make Automated External Defibrillators More Visible. American Journal of Public Health 2014;104(12):2306 View
  97. Howe D, Thorpe J, Dunn R, White C, Cunnah K, Platt R, Paulson K, Wolverson E. The CAREGIVERSPRO-MMD Platform as an Online Informational and Social Support Tool for People Living With Memory Problems and Their Carers: An Evaluation of User Engagement, Usability and Usefulness. Journal of Applied Gerontology 2020;39(12):1303 View
  98. Ünlü Ince B, Cuijpers P, van 't Hof E, Riper H. Reaching and recruiting Turkish migrants for a clinical trial through Facebook: A process evaluation. Internet Interventions 2014;1(2):74 View
  99. Smith R, Crutchley P, Schwartz H, Ungar L, Shofer F, Padrez K, Merchant R. Variations in Facebook Posting Patterns Across Validated Patient Health Conditions: A Prospective Cohort Study. Journal of Medical Internet Research 2017;19(1):e7 View
  100. Ferrante J, Friedman A, Shaw E, Howard J, Cohen D, Shahidi L. Lessons Learned Designing and Using an Online Discussion Forum for Care Coordinators in Primary Care. Qualitative Health Research 2016;26(13):1851 View
  101. Courtenay T, Baraitser P. Online contraceptive discussion forums: a qualitative study to explore information provision. BMJ Sexual & Reproductive Health 2021;47(3):e5 View
  102. Carron-Arthur B, Ali K, Cunningham J, Griffiths K. From Help-Seekers to Influential Users: A Systematic Review of Participation Styles in Online Health Communities. Journal of Medical Internet Research 2015;17(12):e271 View
  103. Sawyer A, Kaim A, Le H, McDonald D, Mittinty M, Lynch J, Sawyer M. The Effectiveness of an App-Based Nurse-Moderated Program for New Mothers With Depression and Parenting Problems (eMums Plus): Pragmatic Randomized Controlled Trial. Journal of Medical Internet Research 2019;21(6):e13689 View
  104. Fang Y, Li C, Arain G, Bhatti Z. How does participation and browsing affect continuance intention in virtual communities? An integration of curiosity theory and subjective well-being. Behaviour & Information Technology 2021;40(3):221 View
  105. Carron-Arthur B, Reynolds J, Bennett K, Bennett A, Griffiths K. What’s all the talk about? Topic modelling in a mental health Internet support group. BMC Psychiatry 2016;16(1) View
  106. Maloney S, Soule E, Palafox S, McFadden K, Guy M, Eissenberg T, Fagan P. A longitudinal analysis of electronic cigarette forum participation. Addictive Behaviors 2019;91:75 View
  107. Malloch Y, Zhang J. Seeing Others Receive Support Online: Effects of Self-Disclosure and Similarity on Perceived Similarity and Health Behavior Intention. Journal of Health Communication 2019;24(3):217 View
  108. Huang N, Burtch G, Gu B, Hong Y, Liang C, Wang K, Fu D, Yang B. Motivating User-Generated Content with Performance Feedback: Evidence from Randomized Field Experiments. Management Science 2019;65(1):327 View
  109. Bauer R, Conell J, Glenn T, Alda M, Ardau R, Baune B, Berk M, Bersudsky Y, Bilderbeck A, Bocchetta A, Bossini L, Castro A, Cheung E, Chillotti C, Choppin S, Zompo M, Dias R, Dodd S, Duffy A, Etain B, Fagiolini A, Hernandez M, Garnham J, Geddes J, Gildebro J, Gonzalez-Pinto A, Goodwin G, Grof P, Harima H, Hassel S, Henry C, Hidalgo-Mazzei D, Kapur V, Kunigiri G, Lafer B, Larsen E, Lewitzka U, Licht R, Hvenegaard Lund A, Misiak B, Piotrowski P, Monteith S, Munoz R, Nakanotani T, Nielsen R, O’donovan C, Okamura Y, Osher Y, Reif A, Ritter P, Rybakowski J, Sagduyu K, Sawchuk B, Schwartz E, Scippa Â, Slaney C, Sulaiman A, Suominen K, Suwalska A, Tam P, Tatebayashi Y, Tondo L, Vieta E, Vinberg M, Viswanath B, Volkert J, Zetin M, Whybrow P, Bauer M. International multi-site survey on the use of online support groups in bipolar disorder. Nordic Journal of Psychiatry 2017;71(6):473 View
  110. Moore-Russo D, Radosta M, Martin K, Hamilton S. Content in context: analyzing interactions in a graduate-level academic Facebook group. International Journal of Educational Technology in Higher Education 2017;14(1) View
  111. Wilkerson D, Brady E, Yi E, Bateman D. Friendsourcing Peer Support for Alzheimer’s Caregivers Using Facebook Social Media. Journal of Technology in Human Services 2018;36(2-3):105 View
  112. Saukko P. Digital health – a new medical cosmology? The case of 23andMe online genetic testing platform. Sociology of Health & Illness 2018;40(8):1312 View
  113. Moore D, Drey N, Ayers S. Use of Online Forums for Perinatal Mental Illness, Stigma, and Disclosure: An Exploratory Model. JMIR Mental Health 2017;4(1):e6 View
  114. Summer R, Nelson G. Making stories significant: Possibilities and challenges at the intersection of digital methods and historic preservation. Area 2020;52(2):282 View
  115. Wu P, Bernardi R. Community attachment and emotional well-being: an empirical study of an online community for people with diabetes. Information Technology & People 2021;34(7):1949 View
  116. Saghafi A, Wand Y, Parsons J. Skipping class: improving human-driven data exploration and querying through instances. European Journal of Information Systems 2022;31(4):463 View
  117. Zuo M, Angelopoulos S, Ou C, Liu H, Liang Z. Identifying Dynamic Competition in Online Marketplaces Through Consumers’ Clickstream Data. SSRN Electronic Journal 2020 View
  118. Lee D, Rothstein R, Dunford A, Berger E, Rhoads J, DeBoer J. “Connecting online”: The structure and content of students' asynchronous online networks in a blended engineering class. Computers & Education 2021;163:104082 View
  119. Mirzaei T, Esmaeilzadeh P. Engagement in online health communities: Channel expansion and social exchanges. Information & Management 2021;58(1):103404 View
  120. Nguyen M, Malik A, Sharma P. How to motivate employees to engage in online knowledge sharing? Differences between posters and lurkers. Journal of Knowledge Management 2021;25(7):1811 View
  121. Kimmons R, Rosenberg J, Allman B. Trends in Educational Technology: What Facebook, Twitter, and Scopus Can Tell us about Current Research and Practice. TechTrends 2021;65(2):125 View
  122. Lavrenova E, Yarmakhov B, Vachkova S, Iskakova A, Koptelov A. Improving the efficiency of developing meta-subject scenarios in the Moscow Electronic School by means of educational analytics. SHS Web of Conferences 2021;98:03002 View
  123. Liu Y, Feng J. Does Money Talk? The Impact of Monetary Incentives on User-Generated Content Contributions. Information Systems Research 2021;32(2):394 View
  124. Scott J, Burns S, Hauck Y, Giglia R, Jorgensen A, White B, Martin A, Robinson S, Dhaliwal S, Binns C, Maycock B. Impact of a Face-To-Face Versus Smartphone App Versus Combined Breastfeeding Intervention Targeting Fathers: Randomized Controlled Trial. JMIR Pediatrics and Parenting 2021;4(2):e24579 View
  125. Bearth A, Siegrist M. The Social Amplification of Risk Framework: A Normative Perspective on Trust?. Risk Analysis 2022;42(7):1381 View
  126. MANAP A, DURMUŞ E. Dijital Ebeveynlik Farkındalığının Aile içi Roller ve Çocukta İnternet Bağımlılığına Göre İncelenmesi. e-International Journal of Educational Research 2021;12(1):141 View
  127. Smit D, Vrijsen J, Groeneweg B, Vellinga-Dings A, Peelen J, Spijker J. A Newly Developed Online Peer Support Community for Depression (Depression Connect): Qualitative Study. Journal of Medical Internet Research 2021;23(7):e25917 View
  128. Al-Kandari A, Frederick E, Alkazemi M, Sharif A. Offline and Online Gender Differences in Opinion Expression about Women Inclusion in the Police Force in the Arab Gulf State of Kuwait. Journal of Intercultural Communication Research 2022;51(1):93 View
  129. Dineva D, Breitsohl J. Managing trolling in online communities: an organizational perspective. Internet Research 2022;32(1):292 View
  130. Mazanderani F, Kirkpatrick S, Ziebland S, Locock L, Powell J. Caring for care: Online feedback in the context of public healthcare services. Social Science & Medicine 2021;285:114280 View
  131. Jones S, Atanasova D, Dodd S, Flowers S, Rosala-Hallas A, Robinson H, Semino E, Lobban F. Use of an Online Forum for Relatives of People With Psychosis and Bipolar Disorder: Mixed Methods Study. JMIR Mental Health 2022;9(10):e35837 View
  132. Li L, Lin C, Pham L, Nguyen D, Le T. Networking community health workers for service integration: role of social media. AIDS Care 2023;35(7):1030 View
  133. Daniore P, Nittas V, von Wyl V. Enrollment and Retention of Participants in Remote Digital Health Studies: Scoping Review and Framework Proposal. Journal of Medical Internet Research 2022;24(9):e39910 View
  134. Glanz J, Wagner N, Narwaney K, Kraus C, Shoup J, Xu S, O’Leary S, Omer S, Gleason K, Daley M. Web-based Social Media Intervention to Increase Vaccine Acceptance: A Randomized Controlled Trial. Pediatrics 2017;140(6) View
  135. O’Sullivan L, Wilkerson D, Deegan K, Timmons F, Bateman D. Balancing dementia family carers’ rights to online supports with the rights of people with dementia to absolute privacy. International Journal of Care and Caring 2020;4(3):435 View
  136. Biester L, Pennebaker J, Mihalcea R, Danforth C. Emotional and cognitive changes surrounding online depression identity claims. PLOS ONE 2022;17(12):e0278179 View
  137. Zhou P, Zhao S, Ma Y, Liang C, Zhu J. What influences user participation in an online health community? The stimulus-organism-response model perspective. Aslib Journal of Information Management 2023;75(2):364 View
  138. Tang J, Yao X, Yu G. Exploring the Online Behavior of Users of Online Depression-Focused Communities: Comparing Communities with Different Management Types. Psychology Research and Behavior Management 2021;Volume 14:1707 View
  139. Hong Y, Hu J, Zhao Y. Would you go invisible on social media? An empirical study on the antecedents of users' lurking behavior. Technological Forecasting and Social Change 2023;187:122237 View
  140. Badreddine B, Blount Y, Quilter M. The role of personality traits in participation in an Online Cancer Community. Aslib Journal of Information Management 2023;75(2):318 View
  141. Szinay D, Perski O, Jones A, Chadborn T, Brown J, Naughton F. Perceptions of Factors Influencing Engagement With Health and Well-being Apps in the United Kingdom: Qualitative Interview Study. JMIR mHealth and uHealth 2021;9(12):e29098 View
  142. LeBeau K, Collins S, Zori G, Walker D, Marchi E, Pomeranz J, Hart M. Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients. Palliative and Supportive Care 2023:1 View
  143. Sirkis T, Maitland S. Monitoring real-time junior doctor sentiment from comments on a public social media platform: a retrospective observational study. Postgraduate Medical Journal 2023;99(1171):423 View
  144. Cano J, Londoño-Pineda A, Castro M, Paz H, Rodas C, Arias T. A Bibliometric Analysis and Systematic Review on E-Marketplaces, Open Innovation, and Sustainability. Sustainability 2022;14(9):5456 View
  145. Pang L, Li G, Yao X, Lai Y. An Incentive Mechanism Based on a Bayesian Game for Spatial Crowdsourcing. IEEE Access 2019;7:14340 View
  146. Ushijima-Mwesigwa H, Khan Z, Chowdhury M, Safro I. Centralities for networks with consumable resources. Network Science 2019;7(3):376 View
  147. Spennemann D. Persistence and Attrition among Participants in a Multi-Page Online Survey Recruited via Reddit’s Social Media Network. Social Sciences 2022;11(2):31 View
  148. Ma X, Zhang P, Meng F, Lai K. How does physicians' educational knowledge-sharing influence patients' engagement? An empirical examination in online health communities. Frontiers in Public Health 2022;10 View
  149. Flickinger T, Campbell B, Timm A, Baee S, Datta D, Shenoi S, Rozanova J, Dillingham R. Use of a Mobile Health Intervention by Older Versus Younger People with HIV: Analysis of Usage, Social Support, and Network Interactions. Telemedicine Reports 2022;3(1):191 View
  150. Rayland A, Andrews J. From Social Network to Peer Support Network: Opportunities to Explore Mechanisms of Online Peer Support for Mental Health. JMIR Mental Health 2023;10:e41855 View
  151. Wang Y, Majeed A. How do users’ feedback influence creators’ contributions: an empirical study of an online music community. Behaviour & Information Technology 2023;42(9):1357 View
  152. Holm S, Petersen M, Enghoff O, Hesse M. Psychedelic discourses: A qualitative study of discussions in a Danish online forum. International Journal of Drug Policy 2023;112:103945 View
  153. Souza-Neto V, Mondo T, Mundet L, Mendes-Filho L. Service quality determinants in historic centers: analysis of user generated content from the perspective of the TOURQUAL protocol. Journal of Quality Assurance in Hospitality & Tourism 2022:1 View
  154. Smit D, Vrijsen J, Broekman T, Groeneweg B, Spijker J. User Engagement Within an Online Peer Support Community (Depression Connect) and Recovery-Related Changes in Empowerment: Longitudinal User Survey. JMIR Formative Research 2022;6(11):e39912 View
  155. Sohn D, Choi Y. Silence in Social Media: A Multilevel Analysis of the Network Structure Effects on Participation Disparity in Facebook. Social Science Computer Review 2023;41(5):1767 View
  156. Li Vigni F, Blanchard E. « Partis plateforme » versus « partis en réseau ». Réseaux 2023;N° 236(6):57 View
  157. Glenski M, Weninger T, Volkova S. Propagation From Deceptive News Sources Who Shares, How Much, How Evenly, and How Quickly?. IEEE Transactions on Computational Social Systems 2018;5(4):1071 View
  158. Paquet-Clouston M, Paquette S, Garcia S, Erquiaga M. Entanglement: cybercrime connections of a public forum population. Journal of Cybersecurity 2022;8(1) View
  159. Garg S, Taylor J, El Sherief M, Kasson E, Aledavood T, Riordan R, Kaiser N, Cavazos-Rehg P, De Choudhury M. Detecting risk level in individuals misusing fentanyl utilizing posts from an online community on Reddit. Internet Interventions 2021;26:100467 View
  160. Zhang B, Liu T, Corvite S, Andalibi N, Haimson O. Separate Online Networks During Life Transitions. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW2):1 View
  161. Cui J, Chen J, Zhong H, Zhang J, Liu L. Reliable and Efficient Content Sharing for 5G-Enabled Vehicular Networks. IEEE Transactions on Intelligent Transportation Systems 2022;23(2):1247 View
  162. Mancheno C, Asch D, Klinger E, Goldshear J, Mitra N, Buttenheim A, Barg F, Ungar L, Yang L, Merchant R. Effect of Posting on Social Media on Systolic Blood Pressure and Management of Hypertension: A Randomized Controlled Trial. Journal of the American Heart Association 2021;10(19) View
  163. Benson R, Hu M, Chen A, Zhu S, Conway M. Examining Cannabis, Tobacco, and Vaping Discourse on Reddit: An Exploratory Approach Using Natural Language Processing. Frontiers in Public Health 2022;9 View
  164. Germone M, Wright C, Kimmons R, Coburn S. Twitter Trends for Celiac Disease and the Gluten-Free Diet: Cross-sectional Descriptive Analysis. JMIR Infodemiology 2022;2(2):e37924 View
  165. McLaughlin C, Haverila K, Haverila M. Gratifications sought versus gratifications achieved in online brand communities: satisfaction and motives of lurkers and posters. Journal of Brand Management 2022;29(2):190 View
  166. Decroisette C, Corre R, Greenwood W, Chartier D, Amsellem N, Lefebvre-Nare F, Guéroult-Accolas L, Schott R. Analyse sémantique de conversations sur le web portant sur le cancer du poumon : étude Web Ethnography-Lung. Bulletin du Cancer 2022;109(7-8):805 View
  167. Hu M, Benson R, Chen A, Zhu S, Conway M. Determining the prevalence of cannabis, tobacco, and vaping device mentions in online communities using natural language processing. Drug and Alcohol Dependence 2021;228:109016 View
  168. Forde K, Costello L, Devine A, Sambell R, Wallace R. A multifaceted approach increased staff confidence to develop outside of school hours care as a health promoting setting. BMC Public Health 2021;21(1) View
  169. Kornfield R, Mohr D, Ranney R, Lattie E, Meyerhoff J, Williams J, Reddy M. Involving Crowdworkers with Lived Experience in Content-Development for Push-Based Digital Mental Health Tools: Lessons Learned from Crowdsourcing Mental Health Messages. Proceedings of the ACM on Human-Computer Interaction 2022;6(CSCW1):1 View
  170. Horn C, Seely E, Levkoff S, Isley B, Nicklas J. Postpartum women’s experiences in a randomized controlled trial of a web-based lifestyle intervention following Gestational Diabetes: a qualitative study. The Journal of Maternal-Fetal & Neonatal Medicine 2023;36(1) View
  171. Nguyen M, Fry M, Arli D. Share or Not Share Knowledge: Posters Versus Lurkers in Organisational Online Knowledge Sharing and Internal Marketing. Australasian Marketing Journal 2023:144135822311670 View
  172. Gerritzen E, McDermott O, Orrell M. Online peer support: views and experiences of people with young onset dementia (YOD). Aging & Mental Health 2023;27(12):2386 View
  173. Laurent-Simpson A. COVID-19 and Masking Disparities: Qualitative Analysis of Trust on the CDC’s Facebook Page. International Journal of Environmental Research and Public Health 2023;20(12):6062 View
  174. Li G, Porter M. Bounded-confidence model of opinion dynamics with heterogeneous node-activity levels. Physical Review Research 2023;5(2) View
  175. Knudsen E, Belik I. The Achilles heel of interconnected user networks: Network firms and the vulnerability of rapid decline. Technological Forecasting and Social Change 2023;195:122754 View
  176. Wang X, Zhao K, Amato M, Stanton C, Shuter J, Graham A. The Role of Seed Users in Nurturing an Online Health Community for Smoking Cessation Among People With HIV/AIDS. Annals of Behavioral Medicine 2023 View
  177. Palmer M, Beckley-Hoelscher N, Shearer J, Kostyrka-Allchorne K, Robertson O, Koch M, Pearson O, Slovak P, Day C, Byford S, Goldsmith K, Waite P, Creswell C, Sonuga-Barke E. The Effectiveness and Cost-Effectiveness of a Universal Digital Parenting Intervention Designed and Implemented During the COVID-19 Pandemic: Evidence From a Rapid-Implementation Randomized Controlled Trial Within a Cohort. Journal of Medical Internet Research 2023;25:e44079 View
  178. Daniore P, Nittas V, Gille F, von Wyl V. Promoting participation in remote digital health studies: An expert interview study. DIGITAL HEALTH 2023;9 View
  179. Sen A, Grad T, Ferreira P, Claussen J. (How) Does User-Generated Content Impact Content Generated by Professionals? Evidence from Local News. Management Science 2023 View
  180. Strasser B, Tancoigne E, Baudry J, Piguet S, Spiers H, Luis-Fernandez Marquez J, Kasparian J, Grey F, Anderson D, Lintott C, Silva D. Quantifying online citizen science: Dynamics and demographics of public participation in science. PLOS ONE 2023;18(11):e0293289 View

Books/Policy Documents

  1. . Altmetrics for Information Professionals. View
  2. Holmberg K. Altmetrics for Information Professionals. View
  3. Buder J. The Psychology of Digital Learning. View
  4. Tagarelli A, Interdonato R. Mining Lurkers in Online Social Networks. View
  5. Sheldon P, Rauschnabel P, Honeycutt J. The Dark Side of Social Media. View
  6. Boubaker B, Dauxert T. ICT for an Inclusive World. View
  7. Tagarelli A, Interdonato R. Mining Lurkers in Online Social Networks. View
  8. Lombi L. Clinical Handbook of Air Pollution-Related Diseases. View
  9. Chamberlain J. Next Generation Biomonitoring: Part 2. View
  10. Colby R. The Ethics of Playing, Researching, and Teaching Games in the Writing Classroom. View