Published on in Vol 15, No 10 (2013): October
Journals
- Sztankay M, Neppl L, Wintner L, Loth F, Willenbacher W, Weger R, Weyrer W, Steurer M, Rumpold G, Holzner B. Complementing clinical cancer registry data with patient reported outcomes: A feasibility study on routine electronic patient‐reported outcome assessment for the Austrian Myelome Registry. European Journal of Cancer Care 2019;28(6) View
- Hall P, Hamilton P, Hulme C, Meads D, Jones H, Newsham A, Marti J, Smith A, Mason H, Velikova G, Ashley L, Wright P. Costs of cancer care for use in economic evaluation: a UK analysis of patient-level routine health system data. British Journal of Cancer 2015;112(5):948 View
- Khoury A, Jernigan E, Chowdhury M, Loehr L, Nelson J. Feasibility of a healthcare system-based tetralogy of Fallot patient registry. Cardiology in the Young 2018;28(2):269 View
- Moloczij N, Gough K, Solomon B, Ball D, Mileshkin L, Duffy M, Krishnasamy M. Development of a hospital-based patient-reported outcome framework for lung cancer patients: a study protocol. Health and Quality of Life Outcomes 2018;16(1) View
- Holch P, Warrington L, Bamforth L, Keding A, Ziegler L, Absolom K, Hector C, Harley C, Johnson O, Hall G, Morris C, Velikova G. Development of an integrated electronic platform for patient self-report and management of adverse events during cancer treatment. Annals of Oncology 2017;28(9):2305 View
- Gilbert A, Sebag-Montefiore D, Davidson S, Velikova G. Use of patient-reported outcomes to measure symptoms and health related quality of life in the clinic. Gynecologic Oncology 2015;136(3):429 View
- Warrington L, Absolom K, Velikova G. Integrated care pathways for cancer survivors – a role for patient-reported outcome measures and health informatics. Acta Oncologica 2015;54(5):600 View
- Absolom K, Holch P, Woroncow B, Wright E, Velikova G. Beyond lip service and box ticking: how effective patient engagement is integral to the development and delivery of patient-reported outcomes. Quality of Life Research 2015;24(5):1077 View
- Maramba I, Davey A, Elliott M, Roberts M, Roland M, Brown F, Burt J, Boiko O, Campbell J. Web-Based Textual Analysis of Free-Text Patient Experience Comments From a Survey in Primary Care. JMIR Medical Informatics 2015;3(2):e20 View
- Groeneveld I, Goossens P, van Meijeren-Pont W, Arwert H, Meesters J, Rambaran Mishre A, Van Vree F, Vliet Vlieland T. Value-Based Stroke Rehabilitation: Feasibility and Results of Patient-Reported Outcome Measures in the First Year After Stroke. Journal of Stroke and Cerebrovascular Diseases 2019;28(2):499 View
- Ashley L, Velikova G, Downing A, Morris E, Wright P. Health‐related quality of life in cancer survivorship: Predictive power of the Social Difficulties Inventory. Psycho-Oncology 2017;26(11):1994 View
- Flott K, Graham C, Darzi A, Mayer E. Can we use patient-reported feedback to drive change? The challenges of using patient-reported feedback and how they might be addressed. BMJ Quality & Safety 2017;26(6):502 View
- Fleming J, Wood G, Seiler C, Cook A, Lent M, Still C, Benotti P, Irving B. Electronically captured, patient‐reported physical function: an important vital sign in obesity medicine. Obesity Science & Practice 2016;2(4):399 View
- Maharaj A, Holland J, Scarborough R, Evans S, Ioannou L, Brown W, Croagh D, Pilgrim C, Kench J, Lipton L, Leong T, McNeil J, Nikfarjam M, Aly A, Burton P, Cashin P, Chu J, Duong C, Evans P, Goldstein D, Haydon A, Hii M, Knowles B, Merrett N, Michael M, Neale R, Philip J, Porter I, Smith M, Spillane J, Tagkalidis P, Zalcberg J. The Upper Gastrointestinal Cancer Registry (UGICR): a clinical quality registry to monitor and improve care in upper gastrointestinal cancers. BMJ Open 2019;9(9):e031434 View
- Bernstein D, McIntyre A, Baumhauer J. Effect of assessment administration method and timing on patient‐reported outcome measures completion and scores: Overview and recommendations. Musculoskeletal Care 2020;18(4):535 View
- Althaus A, Chang P, Mao J, Olugbade K, Taylor K, Dewey L, Percy A, Crociani C, McNally K, Wagner A. Patient-Reported Quality of Life and Convalescence After Minimally Invasive Kidney Cancer Surgery. Urology 2020;144:123 View
- Thomas D, Fox S, Lorgelly P, Ashley D, Richardson G, Lipton L, Parisot J, Lucas M, McNeil J. Cancer 2015: a longitudinal whole-of-system study of genomic cancer medicine. Drug Discovery Today 2015;20(12):1429 View
- Absolom K, Gibson A, Velikova G. Engaging Patients and Clinicians in Online Reporting of Adverse Effects During Chemotherapy for Cancer. Medical Care 2019;57(Suppl 1):S59 View
- Wang K, Eftang C, Jakobsen R, Årøen A. Review of response rates over time in registry-based studies using patient-reported outcome measures. BMJ Open 2020;10(8):e030808 View
- Mlikotic R, Parker B, Rajapakshe R. Assessing the Effects of Participant Preference and Demographics in the Usage of Web-based Survey Questionnaires by Women Attending Screening Mammography in British Columbia. Journal of Medical Internet Research 2016;18(3):e70 View
- Martin N, Massey L, Stowell C, Bangma C, Briganti A, Bill-Axelson A, Blute M, Catto J, Chen R, D’Amico A, Feick G, Fitzpatrick J, Frank S, Froehner M, Frydenberg M, Glaser A, Graefen M, Hamstra D, Kibel A, Mendenhall N, Moretti K, Ramon J, Roos I, Sandler H, Sullivan F, Swanson D, Tewari A, Vickers A, Wiegel T, Huland H. Defining a Standard Set of Patient-centered Outcomes for Men with Localized Prostate Cancer. European Urology 2015;67(3):460 View
- Schick-Makaroff K, Molzahn A. Strategies to use tablet computers for collection of electronic patient-reported outcomes. Health and Quality of Life Outcomes 2015;13(1):2 View
- Allsop M, Johnson O, Taylor S, Hackett J, Allen P, Bennett M, Bewick B. Multidisciplinary Software Design for the Routine Monitoring and Assessment of Pain in Palliative Care Services: The Development of PainCheck. JCO Clinical Cancer Informatics 2019;(3):1 View
- Mak K, van Bommel A, Stowell C, Abrahm J, Baker M, Baldotto C, Baldwin D, Borthwick D, Carbone D, Chen A, Fox J, Haswell T, Koczywas M, Kozower B, Mehran R, Schramel F, Senan S, Stirling R, van Meerbeeck J, Wouters M, Peake M. Defining a standard set of patient-centred outcomes for lung cancer. European Respiratory Journal 2016;48(3):852 View
- Xue L, Williamson A, Gaines S, Andolfi C, Paul-Olson T, Neerukonda A, Steinhagen E, Smith R, Cannon L, Polite B, Umanskiy K, Hyman N. An Update on Colorectal Cancer. Current Problems in Surgery 2018;55(3):76 View
- Ala-Aldeen K, Stones N, Woolf D, Bayman N, Coote J, Harris M, Pemberton L, Sheikh H, Chan C, Hodgson C, Yorke J, Faivre-Finn C. The use of volunteers to implement electronic patient reported outcomes in lung cancer outpatient clinics. Technical Innovations & Patient Support in Radiation Oncology 2018;7:11 View
- Martin N, D'Amico A. Progress and controversies: Radiation therapy for prostate cancer. CA: A Cancer Journal for Clinicians 2014;64(6):389 View
- Marti J, Hall P, Hamilton P, Hulme C, Jones H, Velikova G, Ashley L, Wright P. The economic burden of cancer in the UK: a study of survivors treated with curative intent. Psycho-Oncology 2016;25(1):77 View
- Mamiya H, Lix L, Gardner W, Bartlett S, Ahmed S, Buckeridge D. Montreal Accord on Patient-Reported Outcomes (PROs) use series – Paper 5: patient-reported outcomes can be linked to epidemiologic measures to monitor populations and inform public health decisions. Journal of Clinical Epidemiology 2017;89:142 View
- van Velthoven M, Lam C, de Cock C, Stenfors T, Chaudhury H, Meinert E. Development of an Innovative Real-World Evidence Registry for the Herpes Simplex Virus: Case Study. JMIR Dermatology 2020;3(1):e16933 View
- Meyer L, Nick A, Shi Q, Wang X, Williams L, Brock T, Iniesta M, Rangel K, Lu K, Ramirez P. Perioperative trajectory of patient reported symptoms: A pilot study in gynecologic oncology patients. Gynecologic Oncology 2015;136(3):440 View
- Corsini N, Fish J, Ramsey I, Sharplin G, Flight I, Damarell R, Wiggins B, Wilson C, Roder D, Eckert M. Cancer survivorship monitoring systems for the collection of patient-reported outcomes: a systematic narrative review of international approaches. Journal of Cancer Survivorship 2017;11(4):486 View
- Ashley L, Smith A, Jones H, Velikova G, Wright P. Traditional and Rasch psychometric analyses of the Quality of Life in Adult Cancer Survivors (QLACS) questionnaire in shorter-term cancer survivors 15months post-diagnosis. Journal of Psychosomatic Research 2014;77(4):322 View
- Baili P, Torresani M, Agresti R, Rosito G, Daidone M, Veneroni S, Cavallo I, Funaro F, Giunco M, Turco A, Amash H, Scavo A, Minicozzi P, Bella F, Meneghini E, Sant M. A Breast Cancer Clinical Registry in An Italian Comprehensive Cancer Center: An Instrument for Descriptive, Clinical, and Experimental Research. Tumori Journal 2015;101(4):440 View
- Adogwa O, Elsamadicy A, Cheng J, Bagley C. Assessing Patient Reported Outcomes Measures via Phone Interviews Versus Patient Self-Survey in the Clinic: Are We Measuring the Same Thing?. World Neurosurgery 2016;87:230 View
- Ashley L, Marti J, Jones H, Velikova G, Wright P. Illness perceptions within 6 months of cancer diagnosis are an independent prospective predictor of health-related quality of life 15 months post-diagnosis. Psycho-Oncology 2015;24(11):1463 View
- Morton R, Lioufas N, Dansie K, Palmer S, Jose M, Raj R, Salmon A, Sypek M, Tong A, Ludlow M, Boudville N, McDonald S. Use of patient‐reported outcome measures and patient‐reported experience measures in renal units in Australia and New Zealand: A cross‐sectional survey study. Nephrology 2020;25(1):14 View
- Duschinsky R, Paddison C. “The final arbiter of everything”: a genealogy of concern with patient experience in Britain. Social Theory & Health 2018;16(1):94 View
- Gordon B, Chen R. Patient-reported outcomes in cancer survivorship. Acta Oncologica 2017;56(2):166 View
- Gupta A, Jain R, Wahi D, Goyal S, Jamal S, Grover A. Abrogation of AuroraA-TPX2 by novel natural inhibitors: molecular dynamics-based mechanistic analysis. Journal of Receptors and Signal Transduction 2015;35(6):626 View
- Smith T, Castro K, Troeschel A, Arora N, Lipscomb J, Jones S, Treiman K, Hobbs C, McCabe R, Clauser S. The rationale for patient‐reported outcomes surveillance in cancer and a reproducible method for achieving it. Cancer 2016;122(3):344 View
- Parker B, Rajapakshe R, Moldovan A, Araujo C, Crook J. An Internet-Based Means of Monitoring Quality of Life in Post-Prostate Radiation Treatment: A Prospective Cohort Study. JMIR Research Protocols 2015;4(3):e115 View
- Agarwal V, Corsini N, Eckert M, Sharplin G, Ramsey I, Gunn K, Fitzgerald M, Koczwara B. A pilot study of population-based, patient-reported outcome collection in cancer survivors. Supportive Care in Cancer 2021;29(8):4239 View
- Wintner L, Sztankay M, Riedl D, Rumpold G, Nickels A, Licht T, Holzner B. How to implement routine electronic patient‐reported outcome monitoring in oncology rehabilitation. International Journal of Clinical Practice 2021;75(4) View
- Kennedy F, Shearsmith L, Ayres M, Lindner O, Marston L, Pass A, Danson S, Velikova G. Online monitoring of patient self-reported adverse events in early phase clinical trials: Views from patients, clinicians, and trial staff. Clinical Trials 2021;18(2):168 View
- Franklin P, Lewallen D, Bozic K, Hallstrom B, Jiranek W, Ayers D. Implementation of Patient-Reported Outcome Measures in U.S. Total Joint Replacement Registries: Rationale, Status, and Plans. Journal of Bone and Joint Surgery 2014;96(Supplement_1):104 View
- Godden A, Micha A, Pitches C, Barry P, Krupa K, Rusby J. Development of an online research platform for use in a large-scale multicentre study. BJS Open 2021;5(1) View
- Araujo L, Baldotto C, Monteiro M, Aguiar P, Andrade M, Longo C, Batista M, Lima R, Azevedo D, Carvalho N, Andrade P, Zukin M, Teich N. Patient-Centered Outcomes in Non-Small-Cell Lung Cancer: A Real-World Perspective. Future Oncology 2021;17(14):1721 View
- Cho Y, Zhang H, Harris M, Gong Y, Smith E, Jiang Y. Acceptance and Use of Home-Based Electronic Symptom Self-Reporting Systems in Patients With Cancer: Systematic Review. Journal of Medical Internet Research 2021;23(3):e24638 View
- van der Veer S, Couchoud C, Morton R. The role of kidney registries in expediting large-scale collection of patient-reported outcome measures for people with chronic kidney disease. Clinical Kidney Journal 2021;14(6):1495 View
- TAYLAN S, ÖZKAN İ, EROĞLU N, KOLAÇ N. Kanserden Sağ Kalanlarda Erişkin Yaşam Kalitesi Ölçeğinin Türkçe Geçerlilik ve Güvenirliği. Kahramanmaraş Sütçü İmam Üniversitesi Tıp Fakültesi Dergisi 2022;17(1):84 View
- Suri S, Yoong D, Short D, Tan D, Naccarato M, Crane H, Musten A, Fredericksen R, Lober W, Gough K. Feasibility of implementing a same-day electronic screening tool for clinical assessment to measure patient-reported outcomes for eliciting actionable information on adherence to HIV medication and related factors in a busy Canadian urban HIV clinic. International Journal of STD & AIDS 2022;33(3):247 View
- Sundar S, Cummins C, Kumar S, Long J, Arora V, Balega J, Broadhead T, Duncan T, Edmondson R, Fotopoulou C, Glasspool R, Kolomainen D, Leeson S, Manchanda R, McNally O, Morrison J, Mukhopadhyay A, Paul J, Tidy J, Wood N. Quality of life from cytoreductive surgery in advanced ovarian cancer: Investigating the association between disease burden and surgical complexity in the international, prospective, SOCQER‐2 cohort study. BJOG: An International Journal of Obstetrics & Gynaecology 2022;129(7):1122 View
- Morris A, Ibrahim Z, Heslin M, Moghraby O, Stringaris A, Grant I, Zalewski L, Pritchard M, Stewart R, Hotopf M, Pickles A, Dobson R, Simonoff E, Downs J. Assessing the feasibility of a web‐based outcome measurement system in child and adolescent mental health services – myHealthE a randomised controlled feasibility pilot study. Child and Adolescent Mental Health 2023;28(1):128 View
- Velikova G, Absolom K, Hewison J, Holch P, Warrington L, Avery K, Richards H, Blazeby J, Dawkins B, Hulme C, Carter R, Glidewell L, Henry A, Franks K, Hall G, Davidson S, Henry K, Morris C, Conner M, McParland L, Walker K, Hudson E, Brown J. Electronic self-reporting of adverse events for patients undergoing cancer treatment: the eRAPID research programme including two RCTs. Programme Grants for Applied Research 2022;10(1):1 View
- Chen M, Jones C, Bauer H, Osakwe O, Ketheeswaran P, Baker J, Huang I. Barriers and Opportunities for Patient-Reported Outcome Implementation: A National Pediatrician Survey in the United States. Children 2022;9(2):185 View
- Riedl D, Lehmann J, Rothmund M, Dejaco D, Grote V, Fischer M, Rumpold G, Holzner B, Licht T. Usability of Electronic Patient-Reported Outcome Measures for Older Patients With Cancer: Secondary Analysis of Data from an Observational Single Center Study. Journal of Medical Internet Research 2023;25:e49476 View
- Salm H, Hentschel L, Eichler M, Pink D, Fuhrmann S, Kramer M, Reichardt P, Schuler M. Evaluation of electronic patient–reported outcome assessment in inpatient cancer care: a feasibility study. Supportive Care in Cancer 2023;31(10) View
- Morris A, Ibrahim Z, Moghraby O, Stringaris A, Grant I, Zalewski L, McClellan S, Moriarty G, Simonoff E, Dobson R, Downs J. Moving from development to implementation of digital innovations within the NHS: myHealthE, a remote monitoring system for tracking patient outcomes in child and adolescent mental health services. DIGITAL HEALTH 2023;9 View
- Unni E, Coles T, Lavallee D, Freel J, Roberts N, Absolom K. Patient adherence to patient-reported outcome measure (PROM) completion in clinical care: current understanding and future recommendations. Quality of Life Research 2024;33(1):281 View
- Silveira Bianchim M, Crane E, Jones A, Neukirchinger B, Roberts G, Mclaughlin L, Noyes J, Baradaran H. The implementation, use and impact of patient reported outcome measures in value-based healthcare programmes: A scoping review. PLOS ONE 2023;18(12):e0290976 View
- Pantiora E, Hedman L, Aristokleous I, Sjökvist O, Karakatsanis A, Schiza A. Effect of mode of delivery of patient reported outcomes in patients with breast disease: a randomised controlled trial. International Journal of Surgery 2023 View
- Taylor J, Wright P, Rossington H, Mara J, Glover A, West N, Morris E, Quirke P. Regional multidisciplinary team intervention programme to improve colorectal cancer outcomes: study protocol for the Yorkshire Cancer Research Bowel Cancer Improvement Programme (YCR BCIP). BMJ Open 2019;9(11):e030618 View
- Torres S, Bayoumi A, Abrahao A, Trudeau M, Pritchard K, Li C, Mitsakakis N, Liu G, Krahn M, Jacobsen R. Implementing routine collection of EQ-5D-5L in a breast cancer outpatient clinic. PLOS ONE 2024;19(8):e0307225 View
- Stirling R, Melder A, Eyles E, Reich M, Dawkins P. An Exploration of the Utility and Impacts of Implementation Science Strategies by Cancer Registries for Healthcare Improvement: A Systematic Review. International Journal of Health Policy and Management 2024;13:8297 View