Published on in Vol 11, No 3 (2009): Jul-Sep

Patients’ Attitudes Toward Electronic Health Information Exchange: Qualitative Study

Patients’ Attitudes Toward Electronic Health Information Exchange: Qualitative Study

Patients’ Attitudes Toward Electronic Health Information Exchange: Qualitative Study

Journals

  1. Anderson C, Agarwal R. The Digitization of Healthcare: Boundary Risks, Emotion, and Consumer Willingness to Disclose Personal Health Information. Information Systems Research 2011;22(3):469 View
  2. Esmaeilzadeh P. The impacts of the privacy policy on individual trust in health information exchanges (HIEs). Internet Research 2020;30(3):811 View
  3. Rosenkranz N, Eckhardt A, Kühne M, Rosenkranz C. Gesundheitsinformationen im Internet. WIRTSCHAFTSINFORMATIK 2013;55(4):257 View
  4. Esmaeilzadeh P. Healthcare consumers' opt-in intentions to Health Information Exchanges (HIEs): An empirical study. Computers in Human Behavior 2018;84:114 View
  5. Bernaerdt J, Moerenhout T, Devisch I. Vulnerable patients' attitudes towards sharing medical data and granular control in patient portal systems: an interview study. Journal of Evaluation in Clinical Practice 2021;27(2):429 View
  6. Medford-Davis L, Chang L, Rhodes K. Health Information Exchange: What do patients want?. Health Informatics Journal 2017;23(4):268 View
  7. Haluza D, Jungwirth D. ICT AND THE FUTURE OF HEALTH CARE: ASPECTS OF DOCTOR-PATIENT COMMUNICATION. International Journal of Technology Assessment in Health Care 2014;30(3):298 View
  8. Ermakova T, Fabian B, Zarnekow R. Improving Individual Acceptance of Health Clouds through Confidentiality Assurance. Applied Clinical Informatics 2016;07(04):983 View
  9. Ancker J, Edwards A, Miller M, Kaushal R. Consumer Perceptions of Electronic Health Information Exchange. American Journal of Preventive Medicine 2012;43(1):76 View
  10. Abdelhamid M, Gaia J, Sanders G. Putting the Focus Back on the Patient: How Privacy Concerns Affect Personal Health Information Sharing Intentions. Journal of Medical Internet Research 2017;19(9):e169 View
  11. Vodicka E, Mejilla R, Leveille S, Ralston J, Darer J, Delbanco T, Walker J, Elmore J. Online Access to Doctors' Notes: Patient Concerns About Privacy. Journal of Medical Internet Research 2013;15(9):e208 View
  12. Wormer B, Colavita P, Yokeley W, Bradley J, Williams K, Walters A, Green J, Heniford B. Impact of Implementing an Electronic Health Record on Surgical Resident Work Flow, Duty Hours, and Operative Experience. The American Surgeon™ 2015;81(2):172 View
  13. Adjerid I, Acquisti A, Telang R, Padman R, Adler-Milstein J. The Impact of Privacy Regulation and Technology Incentives: The Case of Health Information Exchanges. Management Science 2016;62(4):1042 View
  14. Davis E, Thewes B, Butow P, Mason C. A qualitative study of consumer attitudes to sharing psychosocial information within the multidisciplinary cancer care team. Supportive Care in Cancer 2014;22(4):869 View
  15. Srinivasan D. The Impact of Trust in E‐Government on Electronic Health Literacy. World Medical & Health Policy 2014;6(1):22 View
  16. Maiorana A, Steward W, Koester K, Pearson C, Shade S, Chakravarty D, Myers J. Trust, confidentiality, and the acceptability of sharing HIV-related patient data: lessons learned from a mixed methods study about Health Information Exchanges. Implementation Science 2012;7(1) View
  17. Naszay M, Stockinger A, Jungwirth D, Haluza D. Digital age and the Public eHealth perspective: Prevailing health app use among Austrian Internet users. Informatics for Health and Social Care 2018;43(4):390 View
  18. Gulliver A, Bennett K, Bennett A, Farrer L, Reynolds J, Griffiths K. Privacy Issues in the Development of a Virtual Mental Health Clinic for University Students: A Qualitative Study. JMIR Mental Health 2015;2(1):e9 View
  19. Haluza D, Naszay M, Stockinger A, Jungwirth D. Prevailing Opinions on Connected Health in Austria: Results from an Online Survey. International Journal of Environmental Research and Public Health 2016;13(8):813 View
  20. Grande S, Sherman L. Too Important to Ignore: Leveraging Digital Technology to Improve Chronic Illness Management Among Black Men. Journal of Medical Internet Research 2018;20(5):e182 View
  21. Thornewill J, Dowling A, Cox B, Esterhay R. Information Infrastructure for Consumer Health. American Journal of Preventive Medicine 2011;40(5):S123 View
  22. Fenz S, Heurix J, Neubauer T, Rella A. De-identification of unstructured paper-based health records for privacy-preserving secondary use. Journal of Medical Engineering & Technology 2014;38(5):260 View
  23. Wen K, Kreps G, Zhu F, Miller S. Consumers’ Perceptions About and Use of the Internet for Personal Health Records and Health Information Exchange: Analysis of the 2007 Health Information National Trends Survey. Journal of Medical Internet Research 2010;12(4):e73 View
  24. Esmaeilzadeh P. Challenges and Opportunities of Health Information Exchange (HIE) From Health Consumers' Perspective. International Journal of E-Health and Medical Communications 2018;9(3):20 View
  25. Heyworth L, Clark J, Marcello T, Paquin A, Stewart M, Archambeault C, Simon S. Aligning Medication Reconciliation and Secure Messaging: Qualitative Study of Primary Care Providers’ Perspectives. Journal of Medical Internet Research 2013;15(12):e264 View
  26. Abdelhamid M. Greater patient health information control to improve the sustainability of health information exchanges. Journal of Biomedical Informatics 2018;83:150 View
  27. Esmaeilzadeh P. An Empirical Evaluation of Factors Influencing Patients’ Reactions to the Implementation of Health Information Exchanges (HIEs). International Journal of Human–Computer Interaction 2019;35(13):1135 View
  28. Hall M, Herda M, Handorf E, Rybak C, Keleher C, Siemon M, Daly M. Direct-to-patient disclosure of results of mismatch repair screening for Lynch syndrome via electronic personal health record: a feasibility study. Genetics in Medicine 2014;16(11):854 View
  29. Rahman M, Ko M, Warren J, Carpenter D. Healthcare Technology Self-Efficacy (HTSE) and its influence on individual attitude: An empirical study. Computers in Human Behavior 2016;58:12 View
  30. Luchenski S, Reed J, Marston C, Papoutsi C, Majeed A, Bell D. Patient and Public Views on Electronic Health Records and Their Uses in the United Kingdom: Cross-Sectional Survey. Journal of Medical Internet Research 2013;15(8):e160 View
  31. Williams H, Spencer K, Sanders C, Lund D, Whitley E, Kaye J, Dixon W. Dynamic Consent: A Possible Solution to Improve Patient Confidence and Trust in How Electronic Patient Records Are Used in Medical Research. JMIR Medical Informatics 2015;3(1):e3 View
  32. Kao C, Liebovitz D. Consumer Mobile Health Apps: Current State, Barriers, and Future Directions. PM&R 2017;9(5S) View
  33. Cumyn A, Barton A, Dault R, Cloutier A, Jalbert R, Ethier J. Informed consent within a learning health system: A scoping review. Learning Health Systems 2020;4(2) View
  34. Rozenkranz N, Eckhardt A, Kühne M, Rosenkranz C. Health Information on the Internet. Business & Information Systems Engineering 2013;5(4):259 View
  35. Chang J. Privacy and security concerns in online health services. Applied Economics Letters 2018;25(19):1351 View
  36. Unertl K, Johnson K, Gadd C, Lorenzi N. Bridging Organizational Divides in Health Care: An Ecological View of Health Information Exchange. JMIR Medical Informatics 2013;1(1):e3 View
  37. Sunyaev A, Dehling T, Taylor P, Mandl K. Availability and quality of mobile health app privacy policies. Journal of the American Medical Informatics Association 2015;22(e1):e28 View
  38. Patel V, Dhopeshwarkar R, Edwards A, Barrón Y, Sparenborg J, Kaushal R. Consumer Support for Health Information Exchange and Personal Health Records: A Regional Health Information Organization Survey. Journal of Medical Systems 2012;36(3):1043 View
  39. Downing N, Adler-Milstein J, Palma J, Lane S, Eisenberg M, Sharp C, Longhurst C. Health information exchange policies of 11 diverse health systems and the associated impact on volume of exchange. Journal of the American Medical Informatics Association 2017;24(1):113 View
  40. Heyworth L, Paquin A, Clark J, Kamenker V, Stewart M, Martin T, Simon S. Engaging patients in medication reconciliation via a patient portal following hospital discharge. Journal of the American Medical Informatics Association 2014;21(e1):e157 View
  41. Harris J, Brierley R, Pufulete M, Bucciarelli-Ducci C, Stokes E, Greenwood J, Dorman S, Anderson R, Rogers C, Wordsworth S, Berry S, Reeves B. A national registry to assess the value of cardiovascular magnetic resonance imaging after primary percutaneous coronary intervention pathway activation: a feasibility cohort study. Health Services and Delivery Research 2019;7(24):1 View
  42. Mostert-Phipps N, Pottas D, Korpela M. Improving continuity of care through the use of electronic records: a South African perspective. South African Family Practice 2012;54(4):326 View
  43. Jokinen A, Stolt M, Suhonen R. Ethical issues related to eHealth: An integrative review. Nursing Ethics 2021;28(2):253 View
  44. Dossa A, Welch L. GPs’ approaches to documenting stigmatising information: a qualitative study. British Journal of General Practice 2015;65(635):e372 View
  45. Ermakova T, Fabian B, Kornacka M, Thiebes S, Sunyaev A. Security and Privacy Requirements for Cloud Computing in Healthcare. ACM Transactions on Management Information Systems 2020;11(2):1 View
  46. Zhuang Y, Sheets L, Chen Y, Shae Z, Tsai J, Shyu C. A Patient-Centric Health Information Exchange Framework Using Blockchain Technology. IEEE Journal of Biomedical and Health Informatics 2020;24(8):2169 View
  47. Petrova M, Barclay M, Barclay S, Barclay S. Between “the best way to deliver patient care” and “chaos and low clinical value”: General Practitioners’ and Practice Managers’ views on data sharing. International Journal of Medical Informatics 2017;104:74 View
  48. Goel M, Brown T, Williams A, Cooper A, Hasnain-Wynia R, Baker D. Patient reported barriers to enrolling in a patient portal. Journal of the American Medical Informatics Association 2011;18(Supplement 1):i8 View
  49. Alanazi H, Zaidan A, Zaidan B, Kiah M, Al-Bakri S. Meeting the Security Requirements of Electronic Medical Records in the ERA of High-Speed Computing. Journal of Medical Systems 2015;39(1) View
  50. Qiao Y, Asan O, Montague E. Factors associated with patient trust in electronic health records used in primary care settings. Health Policy and Technology 2015;4(4):357 View
  51. Park H, Lee S, Kim Y, Heo E, Lee J, Park J, Ha K. Patients’ perceptions of a health information exchange: A pilot program in South Korea. International Journal of Medical Informatics 2013;82(2):98 View
  52. Mäenpää T, Asikainen P, Suominen T. Views of patient, healthcare professionals and administrative staff on flow of information and collaboration in a regional health information exchange: a qualitative study. Scandinavian Journal of Caring Sciences 2017;31(4):939 View
  53. Esmaeilzadeh P. Consumers’ Perceptions of Using Health Information Exchanges (HIEs) for Research Purposes. Information Systems Management 2019;36(1):57 View
  54. Abdel-Monem T, Herian M, Shank N. Electronic Medical Records and Public Perceptions. International Journal of Healthcare Information Systems and Informatics 2013;8(3):38 View
  55. Or C, Liu K, So M, Cheung B, Yam L, Tiwari A, Lau Y, Lau T, Hui P, Cheng H, Tan J, Cheung M. Improving Self-Care in Patients With Coexisting Type 2 Diabetes and Hypertension by Technological Surrogate Nursing: Randomized Controlled Trial. Journal of Medical Internet Research 2020;22(3):e16769 View
  56. Müthing J, Jäschke T, Friedrich C. Client-Focused Security Assessment of mHealth Apps and Recommended Practices to Prevent or Mitigate Transport Security Issues. JMIR mHealth and uHealth 2017;5(10):e147 View
  57. Wang J, Huang J, Cheung C, Wong W, Cheung N, Wong M. Adoption of an Electronic Patient Record Sharing Pilot Project: Cross-Sectional Survey. Journal of Medical Internet Research 2020;22(4):e13761 View
  58. Dehling T, Sunyaev A. Secure provision of patient-centered health information technology services in public networks—leveraging security and privacy features provided by the German nationwide health information technology infrastructure. Electronic Markets 2014;24(2):89 View
  59. Wiley L, Tarczy-Hornoch P, Denny J, Freimuth R, Overby C, Shah N, Martin R, Sarkar I. Harnessing next-generation informatics for personalizing medicine: a report from AMIA’s 2014 Health Policy Invitational Meeting. Journal of the American Medical Informatics Association 2016;23(2):413 View
  60. Steele Gray C, Miller D, Kuluski K, Cott C. Tying eHealth Tools to Patient Needs: Exploring the Use of eHealth for Community-Dwelling Patients With Complex Chronic Disease and Disability. JMIR Research Protocols 2014;3(4):e67 View
  61. Bouras A, Simoes E, Boren S, Hicks L, Zachary I, Buck C, Dhingra S, Ellis R. Non-Hispanic White Mothers’ Willingness to Share Personal Health Data With Researchers: Survey Results From an Opt-in Panel. Journal of Participatory Medicine 2020;12(2):e14062 View
  62. Esmaeilzadeh P, Sambasivan M. Patients’ support for health information exchange: a literature review and classification of key factors. BMC Medical Informatics and Decision Making 2017;17(1) View
  63. Farrell H. Transparency in psychiatric care. Asian Journal of Psychiatry 2012;5(3):273 View
  64. Smith S, Pandit A, Rush S, Wolf M, Simon C. The association between patient activation and accessing online health information: results from a national survey of US adults. Health Expectations 2015;18(6):3262 View
  65. Tully M, Kettis Å, Höglund A, Mörlin C, Schwan Å, Ljungberg C. Transfer of data or re-creation of knowledge – Experiences of a shared electronic patient medical records system. Research in Social and Administrative Pharmacy 2013;9(6):965 View
  66. Esmaeilzadeh P, Mirzaei T, Dharanikota S. The impact of data entry structures on perceptions of individuals with chronic mental disorders and physical diseases towards health information sharing. International Journal of Medical Informatics 2020;141:104157 View
  67. Patel V, Dhopeshwarkar R, Edwards A, Barron Y, Likourezos A, Burd L, Olshansky D, Kaushal R. Low-income, ethnically diverse consumers' perspective on health information exchange and personal health records. Informatics for Health and Social Care 2011;36(4):233 View
  68. Dehling T, Gao F, Schneider S, Sunyaev A. Exploring the Far Side of Mobile Health: Information Security and Privacy of Mobile Health Apps on iOS and Android. JMIR mHealth and uHealth 2015;3(1):e8 View
  69. Heurix J, Fenz S, Rella A, Neubauer T. Recognition and pseudonymisation of medical records for secondary use. Medical & Biological Engineering & Computing 2016;54(2-3):371 View
  70. Armstrong R, Mouton R, Hinchliffe R. Routinely collected data and patient‐centred research in anaesthesia and peri‐operative care: a narrative review. Anaesthesia 2021;76(8):1122 View
  71. Moerenhout T, Devisch I, Cooreman L, Bernaerdt J, De Sutter A, Provoost V. Patients’ moral attitudes toward electronic health records: Survey study with vignettes and statements. Health Informatics Journal 2021;27(1) View
  72. Dang Y, Guo S, Guo X, Wang M, Xie K. Privacy Concerns About Health Information Disclosure in Mobile Health: Questionnaire Study Investigating the Moderation Effect of Social Support. JMIR mHealth and uHealth 2021;9(2):e19594 View
  73. Zhu P, Shen J, Xu M. Study on the evolution of information sharing strategy for users of online patient community. Personal and Ubiquitous Computing 2023;27(3):689 View
  74. Dixon B, Luckhurst C, Haggstrom D. Leadership Perspectives on Implementing Health Information Exchange: Qualitative Study in a Tertiary Veterans Affairs Medical Center. JMIR Medical Informatics 2021;9(2):e19249 View
  75. Esmaeilzadeh P, Dharanikota S, Mirzaei T. The role of patient engagement in patient-centric health information exchange (HIE) initiatives: an empirical study in the United States. Information Technology & People 2024;37(2):521 View
  76. Agarwal P, Gordon D, Griffith J, Kithulegoda N, Witteman H, Sacha Bhatia R, Kushniruk A, Borycki E, Lamothe L, Springall E, Shaw J. Assessing the quality of mobile applications in chronic disease management: a scoping review. npj Digital Medicine 2021;4(1) View
  77. Speechly C, Stenhouse R, Berman Y, Barlow‐Stewart K, Fleming J, Petrie D, Culling B. Genetic counselors, patients', and carers’ views on an Australian clinical genetics service information system. Journal of Genetic Counseling 2021;30(5):1440 View
  78. Numair T, Harrell D, Huy N, Nishimoto F, Muthiani Y, Nzou S, Lasaphonh A, Palama K, Pongvongsa T, Moji K, Hirayama K, Kaneko S. Barriers to the Digitization of Health Information: A Qualitative and Quantitative Study in Kenya and Lao PDR Using a Cloud-Based Maternal and Child Registration System. International Journal of Environmental Research and Public Health 2021;18(12):6196 View
  79. Cherif E, Mzoughi M. Electronic health record adopters: a typology based on patients’ privacy concerns and perceived benefits. Public Health 2022;207:46 View
  80. Reuland B, Redman C, Kneifati-Hayek J, Fernandes Y, Kosber R, Ortuno-Garcia C, Crossman D, Salmasian H, Chen A, Barchi D, Applebaum J, Green R, Adelman J. Observation and Patients’ Perceptions of Incorporating Their Photograph Into the Electronic Health Record. Journal of Patient Safety 2022;18(5):377 View
  81. Guo S, Dang Y, She B, Li Y. Sharing intention of electronic health records in online health communities: Patients’ behavioral decisions in the context of privacy protection measures. Frontiers in Psychology 2022;13 View
  82. Mandel J, Pollak J, Mandl K. The Patient Role in a Federal National-Scale Health Information Exchange. Journal of Medical Internet Research 2022;24(11):e41750 View
  83. Kilgallon J, Tewarie I, Broekman M, Rana A, Smith T. Passive Data Use for Ethical Digital Public Health Surveillance in a Postpandemic World. Journal of Medical Internet Research 2022;24(2):e30524 View
  84. Abdelhamid M. Fitness Tracker Information and Privacy Management: Empirical Study. Journal of Medical Internet Research 2021;23(11):e23059 View
  85. Kutzleben M, Galuska J, Hein A, Griesinger F, Ansmann L. Needs of Lung Cancer Patients Receiving Immunotherapy and Acceptance of Digital and Sensor-Based Scenarios for Monitoring Symptoms at Home—A Qualitative-Explorative Study. International Journal of Environmental Research and Public Health 2022;19(15):9265 View
  86. Pattanaik P, Himanshu U, Bhushan B, Thakur M, Pani A. A study of the adoption behaviour of an Electronic Health Information Exchange System for a Green economy. International Journal of Logistics Research and Applications 2024;27(4):512 View
  87. Benevento M, Mandarelli G, Carravetta F, Ferorelli D, Caterino C, Nicolì S, Massari A, Solarino B. Measuring the willingness to share personal health information: a systematic review. Frontiers in Public Health 2023;11 View
  88. Pool J, Akhlaghpour S, Fatehi F, Burton-Jones A. A systematic analysis of failures in protecting personal health data: A scoping review. International Journal of Information Management 2024;74:102719 View
  89. Busch-Casler J, Radic M. Trust and Health Information Exchanges: Qualitative Analysis of the Intent to Share Personal Health Information. Journal of Medical Internet Research 2023;25:e41635 View
  90. Rahdar S, Montazeri M, Mirzaee M, Ahmadian L. The relationship between e-health literacy and information technology acceptance, and the willingness to share personal and health information among pregnant women. International Journal of Medical Informatics 2023;178:105203 View
  91. Swain S, Muduli K, Kumar A, Luthra S. Analysis of barriers of mHealth adoption in the context of sustainable operational practices in health care supply chains. International Journal of Industrial Engineering and Operations Management 2024;6(2):85 View
  92. Afraz A, Montazeri M, Shahrbabaki M, Ahmadian L, Jahani Y. The viewpoints of parents of children with mental disorders regarding the confidentiality and security of their children’s information in the Iranian national electronic health record system. International Journal of Medical Informatics 2024;183:105334 View
  93. Chien S, Wong A, Tseng W, Hu H, Cho H. Feasibility and Design Factors for Home-Based Pulmonary Rehabilitation of Patients With Chronic Obstructive Pulmonary Disease and Chronic Lung Diseases Based on a People-Object-Environment Framework: Qualitative Interview Study. JMIR Human Factors 2024;11:e51150 View
  94. Papadopoulos K, von Wyl V, Gille F. What is public trust in national electronic health record systems? A scoping review of qualitative research studies from 1995 to 2021. DIGITAL HEALTH 2024;10 View
  95. Brierley R, Pufulete M, Harris J, Bucciarelli-Ducci C, Greenwood J, Dorman S, Anderson R, Rogers C, Reeves B. Developing a UK registry to investigate the role of cardiovascular magnetic resonance (CMR) in patients who activate the primary percutaneous coronary intervention (PPCI) pathway: a multicentre, feasibility study linking routinely collected electronic patient data. BMJ Open 2018;8(3):e018987 View
  96. Mondragón Gómez R, Martínez Vélez N, Tiburcio Sainz M, Fernández Torres M. Design, reliability, and validity of the acceptability of internet-based psychological interventions questionnaire in Mexican university students. Salud mental 2024;47(3):107 View
  97. Lek J, Cham K, Merolli M. Evaluating perceived technology self-efficacy and telehealth acceptance in optometry students. Clinical and Experimental Optometry 2024:1 View
  98. Janssen A, Shah K, Keep M, Shaw T. Community perspectives on the use of electronic health data to support reflective practice by health professionals. BMC Medical Informatics and Decision Making 2024;24(1) View
  99. Jabour A. Putting patients at the center of health information exchange design: An exploration of patient preferences for data sharing. Health Informatics Journal 2024;30(3) View
  100. Lee S, Shin J, Kang M, Lee J, Yu Y, Ah Y. A study on user willingness to participate in an adverse drug event information sharing system. BMC Public Health 2024;24(1) View

Books/Policy Documents

  1. Atkinson P, Jahromi S, Kongsansatean P, Chan L. Infrastructure and Technology Management. View
  2. Abdel-Monem T, Herian M, Shank N. Public Affairs and Administration. View