Patient-Reported Outcome Measures (PROMs)

A Patient-Reported Outcome Tool to Triage Total Hip Arthroplasty Patients to Hospital or Video Consultation: Pilot Study With Expert Panels and a Cohort of 1228 Patients

Yvette Pronk, Peter Pilot, Walter van der Weegen, Justus-Martijn Brinkman, Berend Willem Schreurs

JMIR Form Res 2021 (Dec 20); 5(12):e31232

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The Contact Dermatitis Quality of Life Index (CDQL): Survey Development and Content Validity Assessment

Mary K Hill, Melissa R Laughter, Cecile I Harmange, Robert P Dellavalle, Chandler W Rundle, Cory A Dunnick

JMIR Dermatol 2021 (Dec 16); 4(2):e30620

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Web-Based Return of Individual Patient-Reported Outcome Results Among Patients With Lymphoma: Randomized Controlled Trial

Simone Oerlemans, Lindy Paulina Johanna Arts, Jacobien M Kieffer, Judith Prins, Mels Hoogendoorn, Marjolein van der Poel, Ad Koster, Chantal Lensen, Wendy Bernadina Catharina Stevens, Djamila Issa, Johannes F M Pruijt, Margriet Oosterveld, René van der Griend, Marten Nijziel, Lidwine Tick, Eduardus F M Posthuma, Lonneke V van de Poll-Franse

J Med Internet Res 2021 (Dec 14); 23(12):e27886

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Long-Term Effects of a Web-Based Low-FODMAP Diet Versus Probiotic Treatment for Irritable Bowel Syndrome, Including Shotgun Analyses of Microbiota: Randomized, Double-Crossover Clinical Trial

Dorit Vedel Ankersen, Petra Weimers, Mette Bennedsen, Anne Birgitte Haaber, Eva Lund Fjordside, Moritz Emanuel Beber, Christian Lieven, Sanaz Saboori, Nicolai Vad, Terje Rannem, Dorte Marker, Kristine Paridaens, Suzanne Frahm, Lisbeth Jensen, Malte Rosager Hansen, Johan Burisch, Pia Munkholm

J Med Internet Res 2021 (Dec 14); 23(12):e30291

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Early Patient-Centered Outcomes Research Experience With the Use of Telehealth to Address Disparities: Scoping Review

James E Bailey, Cathy Gurgol, Eric Pan, Shirilyn Njie, Susan Emmett, Justin Gatwood, Lynne Gauthier, Lisa G Rosas, Shannon M Kearney, Samantha Kleindienst Robler, Raymona H Lawrence, Karen L Margolis, Ifeyinwa Osunkwo, Denise Wilfley, Vallabh O Shah

J Med Internet Res 2021 (Dec 07); 23(12):e28503

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Information Patients With Melanoma Spontaneously Report About Health-Related Quality of Life on Web-Based Forums: Case Study

Rachel R J Kalf, Diana M J Delnoij, Bettina Ryll, Marcel L Bouvy, Wim G Goettsch

J Med Internet Res 2021 (Dec 07); 23(12):e27497

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Re-examining COVID-19 Self-Reported Symptom Tracking Programs in the United States: Updated Framework Synthesis

Miranda Lynn Janvrin, Jessica Korona-Bailey, Tracey Pérez Koehlmoos

JMIR Form Res 2021 (Dec 06); 5(12):e31271

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Patient-Reported Outcome Measure for Real-time Symptom Assessment in Women With Endometriosis: Focus Group Study

Esther van Barneveld, Arianne Lim, Nehalennia van Hanegem, Lisa Vork, Alexandra Herrewegh, Mikal van Poll, Jessica Manders, Frits van Osch, Wilbert Spaans, Gommert van Koeveringe, Desiree Vrijens, Joanna Kruimel, Marlies Bongers, Carsten Leue

JMIR Form Res 2021 (Dec 03); 5(12):e28782

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Assessing the Implementation and Effectiveness of the Electronic Patient-Reported Outcome Tool for Older Adults With Complex Care Needs: Mixed Methods Study

Carolyn Steele Gray, Edward Chau, Farah Tahsin, Sarah Harvey, Mayura Loganathan, Brian McKinstry, Stewart W Mercer, Jason Xin Nie, Ted E Palen, Tim Ramsay, Kednapa Thavorn, Ross Upshur, Walter P Wodchis

J Med Internet Res 2021 (Dec 02); 23(12):e29071

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Evaluation of an Online System for Routine Outcome Monitoring: Cross-sectional Survey Study

Deanna E Wiebe, Shannon Remers, Pria Nippak, Julien Meyer

JMIR Ment Health 2021 (Dec 01); 8(12):e29243

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An Electronic Patient-Reported Outcome Mobile App for Data Collection in Type A Hemophilia: Design and Usability Study

Francesco Petracca, Rosaria Tempre, Maria Cucciniello, Oriana Ciani, Elena Pompeo, Luigi Sannino, Valeria Lovato, Giancarlo Castaman, Alessandra Ghirardini, Rosanna Tarricone

JMIR Form Res 2021 (Dec 01); 5(12):e25071

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Patient-Reported Outcomes in a Nationally Representative Sample of Older Internet Users: Cross-sectional Survey

Gul Seckin, Susan Hughes

JMIR Aging 2021 (Nov 24); 4(4):e16006

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Digital Instruments for Reporting of Gastrointestinal Symptoms in Clinical Trials: Comparison of End-of-Day Diaries Versus the Experience Sampling Method

Abraham B Beckers, Johanna T W Snijkers, Zsa Zsa R M Weerts, Lisa Vork, Tim Klaassen, Fabienne G M Smeets, Ad A M Masclee, Daniel Keszthelyi

JMIR Form Res 2021 (Nov 24); 5(11):e31678

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A Quality-of-Life Evaluation Study Assessing Health-Related Quality of Life in Patients Receiving Medicinal Cannabis (the QUEST Initiative): Protocol for a Longitudinal Observational Study

Margaret-Ann Tait, Daniel S J Costa, Rachel Campbell, Richard Norman, Stephan Schug, Claudia Rutherford

JMIR Res Protoc 2021 (Nov 24); 10(11):e32327

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Use of Patient-Reported Outcome Measures and Patient-Reported Experience Measures Within Evaluation Studies of Telemedicine Applications: Systematic Review

Andreas Knapp, Lorenz Harst, Stefan Hager, Jochen Schmitt, Madlen Scheibe

J Med Internet Res 2021 (Nov 17); 23(11):e30042

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The Relationship Between Electronic Health Record System and Performance on Quality Measures in the American College of Rheumatology’s Rheumatology Informatics System for Effectiveness (RISE) Registry: Observational Study

Nevin Hammam, Zara Izadi, Jing Li, Michael Evans, Julia Kay, Stephen Shiboski, Gabriela Schmajuk, Jinoos Yazdany

JMIR Med Inform 2021 (Nov 12); 9(11):e31186

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Data Quality of Longitudinally Collected Patient-Reported Outcomes After Thoracic Surgery: Comparison of Paper- and Web-Based Assessments

Hongfan Yu, Qingsong Yu, Yuxian Nie, Wei Xu, Yang Pu, Wei Dai, Xing Wei, Qiuling Shi

J Med Internet Res 2021 (Nov 09); 23(11):e28915

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Natural Language Processing and Machine Learning Methods to Characterize Unstructured Patient-Reported Outcomes: Validation Study

Zhaohua Lu, Jin-ah Sim, Jade X Wang, Christopher B Forrest, Kevin R Krull, Deokumar Srivastava, Melissa M Hudson, Leslie L Robison, Justin N Baker, I-Chan Huang

J Med Internet Res 2021 (Nov 03); 23(11):e26777

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Feasibility and Acceptability of a Digital Patient-Reported Outcome Tool in Routine Outpatient Diabetes Care: Mixed Methods Formative Pilot Study

Soren E Skovlund, Lise Havbæk Troelsen, Lise Mellergaard Noergaard, Anna Pietraszek, Poul Erik Jakobsen, Niels Ejskjaer

JMIR Form Res 2021 (Nov 03); 5(11):e28329

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Function and Emotion in Everyday Life With Type 1 Diabetes (FEEL-T1D): Protocol for a Fully Remote Intensive Longitudinal Study

Elizabeth Ann Pyatak, Raymond Hernandez, Loree T Pham, Khatira Mehdiyeva, Stefan Schneider, Anne Peters, Valerie Ruelas, Jill Crandall, Pey-Jiuan Lee, Haomiao Jin, Claire J Hoogendoorn, Gladys Crespo-Ramos, Heidy Mendez-Rodriguez, Mark Harmel, Martha Walker, Sara Serafin-Dokhan, Jeffrey S Gonzalez, Donna Spruijt-Metz

JMIR Res Protoc 2021 (Oct 22); 10(10):e30901

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